Advice re leg bag.

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stevmac1
Regular Member


Date Joined May 2010
Total Posts : 129
   Posted 6/17/2010 7:58 AM (GMT -6)   
I'm 10 days post op. Home for 7. Haven't had occasion to use the leg bag yet, but need to make appearance @ bbq on Sunday. Do I wear it just above the knee? What happens if I'm sitting & the bag is higher than my bladder? Risk of back flow?
thanks
steve


50 Yrs. old
DX Feb, 2010 w/6.6 PSA.
Biopsy 04-24-10, Gleason 3+3=6
4 of 5 cores left side inv. 10%
RRP 06-07-10....
 


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 6/17/2010 8:03 AM (GMT -6)   

I would wear mine above the knee.  Depends also on what tubing you have.  I would use paper tape over the velcro to make sure it doesn't come loose, and I also tape the catheter end to my leg so it can't pull on it.  Might also want to tape the tubing together as well.  Embarassing as all get out to have a tube come loose.

Backflow is not an issue. 

Good luck, and enjoy the barbeque.  Everyone is not looking at you even tho sometimes it feels that way.


Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


profman
Regular Member


Date Joined Jan 2010
Total Posts : 55
   Posted 6/17/2010 8:28 AM (GMT -6)   
I wore mine below the knee, above the ankle. The hospital gave me long tubing for the leg bag so it would reach. Found it much more convenient to empty that way while out (just stick foot on toilet and open the valve). The bag came with velcro straps at top and bottom of bag, and they kept the bag in place without a problem.
Diagnosed 9/4/09, age 59
PSA 3.5, up from 1.8 year before
First biopsy showed 3/10 positive cores, Gleason 3+3, less than 10% involvement in all three cores, diagnosed as T2a; prostate size estimated at 32 gram
Thinking of Active Surveillance but
Second biopsy showed 5/10 positive cores, Gleason 3+3, left side (4 postitive cores) had 40% involvement
RRP on 12/15/09, home 12/16
Catheter out on 12/29/09 (failed cystogram earlier)
Path report was all good news, Gleason 3+3, no margin involvement, no perineural involvement, everything clean other than core of prostate, tumor on both sides, but more prevalent on left side, 5% involvement, 42 gram organ
Within two days down to one pad a day, pad free at six weeks
Back to work 1/4/10
First PSA 1/28/10 - nondetectable (<0.1)
Second PSA June 2, 2010 - nondetectable (<0.1)
Next PSA 12/16/10
ED present, although at times there is improvement with daily pump and 100 mg Viagra (or 20 mg Levitra)


Paella
Regular Member


Date Joined May 2010
Total Posts : 52
   Posted 6/17/2010 8:40 AM (GMT -6)   
Lots of options for the BBQ.  You can tape the bag to your leg above the knee or you can just let everything hang out below your shorts and put the bag in a small tote (the cloth kind like those they encourage you to use with groceries in order to be green) and haul it around.  Or wear loose long pants and tape the bag to just below your knee. 
 
 
Long and short is that we were told to keep the bag lower than the bladder.
 
Paella

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 6/17/2010 8:43 AM (GMT -6)   
I wore mine below the knee and had no problems walking or driving. JUst make sure that you are pulling on the catheter. I used an ace bandage on the tube to secure it to my leg as an extra precaution.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Pathology report:
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 6/17/2010 8:55 AM (GMT -6)   
I wore mine at hip level for five weeks. Since it was summer time I wore shorts all the time and could easily drain it. Just hike up the pant leg a few inches and out it went.
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 6/17/2010 9:02 AM (GMT -6)   
Only tip I can offer...just remember to close the little valve...I forgot one time and was a little embarrassed  blush
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009     .06
                   6 month Apr 2009     .06
                   9 month Jul  2009     .08
                 12 month Oct 2009     .09 
                 18 month April 2010   .19


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 6/17/2010 9:07 AM (GMT -6)   

I can beat ya there Les.

Since I wore mine high - the straps wouldn't fit around the old 38" waist. Ol bag slid down my leg twice and bounced off the ground. One of the times it almost yanked the cath right on out.  Yes - you can say OUCH.


Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/17/2010 9:13 AM (GMT -6)   
Best to fasten the leg bag just above your ankle. The bags with the velcro straps don't seem to stay fastened as well, as the bags that come with elastic straps with buttons.

Make sure to ask for the connecting tube. They don't come with the leg bag. The tube will connect between the "y" on the end of the catheter to the top of the leg bag

If you catheter is properly in place and attached to your thigh, just make sure there is always enough slack to bend or walk comfortably with it attached to you.

Urine is only sterile inside your bladder, the moment it leaves, either via your penis or catheter, it is not sterile. So with a leg bag, dont lie down, or fall asleep, and it can and it will back flow into your bladder, and it can cause infections and UTI's real quick, plus it would give you an unpleasant burning feeling in your bladder neck going up you in reverese.

Only time I wear shorts with a leg bag is at home, around people familiar with my situation. Otherwise, I only wear long loose black pants if I go out in public, or to a store.

The leg bag needs to be checked frequently. One minute it will look like not much is happening, and just like that, it can be as full as a tick. You can usually feel the weight of a full bag, as it tugs down your leg, so empty often.

And of course, make sure the valve is closed, or you will be leaking with every step.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


stevmac1
Regular Member


Date Joined May 2010
Total Posts : 129
   Posted 6/17/2010 9:18 AM (GMT -6)   
Wow, thanks for the tips. I know it's silly to sweat the small stuff.
sbs
50 Yrs. old
DX Feb, 2010 w/6.6 PSA.
Biopsy 04-24-10, Gleason 3+3=6
4 of 5 cores left side inv. 10%
RRP 06-07-10....
 


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 6/17/2010 9:29 AM (GMT -6)   
It's not the small stuff if you find yourself standing in a puddle.
Been there, done that.

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 6/17/2010 9:34 AM (GMT -6)   
David/ Purgatory is the expert. Listen to him.
I wore mine below the knee above the ankle and wore loose fitting cargo pants. I could drain it easily by bending over and unscrewing the valve either into a toilet or if outside onto the ground.

There is a check valve in the bag to prevent back flow but I still always kept the bag below my bladder.
Jeff

PeatyMalts
New Member


Date Joined Feb 2010
Total Posts : 8
   Posted 6/17/2010 11:12 AM (GMT -6)   
I also wore mine below the knee with the bag along the calf and valve down at the ankle. The valve opened by pulling up on a lever. But watch out - I accidentally bumped the valve getting into the car once and filled my shoe with warm yellow liquid.
Age: 58 at Dx, 1/2010.
PSA 2/07 12.10; 3/07 9.19, 12.23; prostate 37 ml on TRUS
neg. 13 core bx 3/07.
PSA 7/07 9.31; 12/07 11.59 (0.74 free, 6.3%); 8/08 8.42 (0.56 free)
neg. 13 core bx 9/08 (focal active chronic prostatitis)
PSA 7/09 7.10; 12/09 8.10 (free 0.56, 6.9%)
bx 1/10 1/6 cores pos. on right - Gleason (3+3), 1mm, 3% of core,
no perineural invasion, HGPIN on left.
Had DaVinci 5/10/10.
Path: Bilateral foci, up to 5mm. Gleason 6. about 5% of area examined. Contained within gland, capsule and margins clear. No perineural, vascular, or lymphatic invasion. Bilateral obturator lymph nodes negative.
Catheter out after 14 days. Only stress incontinence (<1 pad per day) after two days. Partial erections starting day cath removed, and slowly improving without medication.


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 6/17/2010 11:20 AM (GMT -6)   
I found the odds of bumping it were higher below the knee. Obviously with shorts, below the knee is a little obvious.

I think you got the jist, do what works for you.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/17/2010 11:21 AM (GMT -6)   
You will learn all the tricks when out in public if you have a full bag and no restroom handy, its the old bending down to tie my shoes while secretly releasing the precious fluid to the grass, or while standing over a drain. I figure dogs and other animals piss constantly outdoors, my little contribution not going to hurt. Yeah, depending on what you are wearing, some of the drain valves are easy to snag, or you just don't have it fully closed. One wet shoe is usually enough to teach you the correct closing technique. If not, just go barefoot, and be known as "Yellow Foot".
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17

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