I want to thank each one of you for your continued support and care. I really appreciate what we have here at HW, for Peter's support of this site and our cause, for our moderators, and for each brother and sister. I don't care if we disagree or ,agree on certain points, we are all individuals, we all have different backgrounds, views, beliefs, etc that make us unique.
Today was a day of much pain. I stopped the ditropan, and started the new med as suggested by my dr. Big mistake, bet I have had close to 3 dozen long and painful spasms today. Much worse than normal, some enough to almost drop me to the ground and bring a tear to the eye. Just got back from my grand son's 5th birthday party. Felt like a dud, as I had to stay seated the whole time, too afraid to move in case it triggered another one.
My dr and I agree, with this 6th corrective surgery, it will be our last attempt at allowing a natural healing. We both agree that the radiation damage was just too much for my bladder neck/urethra area, which was already in bad shape prior to SRT. On July 1, will be on the SP cath continuous for 9 months, and there is very little evidence of any healing.
If this doesnt work in a couple of months, believe I will be ready to submit to a more serious surgery along the lines of a urinary bypass. Hate the thought of another major surgery and the recovery, but I can keep going on in this endless loop of pain and suffering.
One day at the time, all I can handle to be honest.
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17