New appointment with Prostate Oncologist

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Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted Yesterday 2:13 PM (GMT -6)   
 
 
Well I made an appointment with a Prostate Medical Oncologist for July 8th the office called today and said they will do any necessary tests and another PSA at the appointment.  I met this Doctor when I first went to the Lynn Cancer Center here in Fl and had a long discussion on HT treatments he seem to feel the same way I did about not starting early but will see what he says now that my doubling time is so short.  I feel better just knowing I will finally be seeing a medical oncologist who specializes in Prostate Cancer.  As least maybe I will get the straight story good or bad.
 
One of my biggest concerns is whenever I read anything about Gleason 8 they always talk Stage 3, I was a stage 2 at the time of my operation no traces of spread so does that make a difference?  Stage 2 Prostate cancer seems to have a better outlook long term but then its still a Gleason 8 cannot find any details on stage 2 gleason 8.  Maybe this new doctor will have some answers.
 
Jerry1
 
 
Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 
Finished IMRT
First PSA after 3 mos. 1.5 not good news


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted Yesterday 2:59 PM (GMT -6)   
Jerry,
Glad that you found a Dr that you feel comfortable with. Can't answer your question about the staging, but on my path report T3 was crossed out and T 2 was penciled in with a Gleason 8. Rather it had been typed in than printed in with a pencil or pen. Keep us posted as some of us might be right behind you.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted Yesterday 5:35 PM (GMT -6)   
Jerry,

Hope you get some good reliable info from this new doctor. Could help bring some peace of mind to you with your journey or at least help prepare you for future possibilities. Good luck.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted Yesterday 5:48 PM (GMT -6)   
Jerry, glad to read that you are progressing in your search for the best way to go with your disease. Looking at multiple options is always wise and advised...
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 285
   Posted Yesterday 6:22 PM (GMT -6)   
Jerry, nothing but best wishes as you find out more about your options. Hoping that you are very comfortable with the oncologist. Sorry don't know much about the staging either.

Please keep us posted on what you find out. As Michael said, several of us might be just a psa away from similar discussions.

Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4
Post SRT psa at 10 weeks (5/31/2010) down to .2


Carlos
Regular Member


Date Joined Nov 2009
Total Posts : 486
   Posted Yesterday 6:31 PM (GMT -6)   
Jerry,  I have similar post op pathology as yours and am very interested in what you learn.  Studies referenced in Walsh's book found that the severity of recurrence depended on three risk factors: PSA doubling time, Gleason score and time from surgery to the return of PSA.  Doubling time less than 3 months, Gleason 8 or higher,  and recurrence within 3 years of surgery are all high risk.  Staging wasn't mentioned.   The American Cancer Society also has a diagonstic tool that allows you to enter your post treatment data and links you to numerous studies with stats silmilar to yours.  If you haven't tried it, this is the link:  https://www.cancer.nexcura.com/Secure/InterfaceSecure.asp?CB=265.  Please keep us up to date.
 
Carlos

Diagnosed 2/2008 at age 71, Gleason score 5+3=8, stage T1c, PSA 9.1. 
Robotic surgery 5/2008, nerves spared, stg. pT2c, N0, MX, R0, Gleason 5+3=8 
PSA <0.1 at 20 months and each test since surgery.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted Yesterday 9:07 PM (GMT -6)   
Jerry, thanks for keeping us posted and I'll be watching to see how the appointment goes and what you learn. I pray it will be a good story.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  

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