Two and one-half years later a Stiffy

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wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 6/23/2010 1:08 PM (GMT -6)   
I didn't ask for it. I had taken no pill. A stiffy on its own with just a little nudge. It didn't last long but it did happen. Maybe not blue steel, but it did happen all by itself. Then a week later, it happened again. No more pills, the pump was dusty, I had all but given up. Oh how I longed for the days when I would have to put my hands in my pocket to keep Billy bulge from showing.

I do remember when I first lost the walnut, a guy posting that he had gotten a stiffy after two years and he had given up.

I guess it just takes a long time and maybe just as important, don't try so hard.

I hope this helps someone else.
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.


stevmac1
Regular Member


Date Joined May 2010
Total Posts : 129
   Posted 6/23/2010 1:37 PM (GMT -6)   
    yeah    Hah!! You are an awesome purveyor of joyous news...
steve
50 Yrs. old
DX Feb, 2010 w/6.6 PSA.
Biopsy 04-24-10, Gleason 3+3=6
4 of 5 cores left side inv. 6 of 6 rt side
RRP 06-07-10....
 


fertree
Regular Member


Date Joined Jun 2010
Total Posts : 118
   Posted 6/23/2010 1:37 PM (GMT -6)   
Congratulations! I have only 1 year and 11 months to go! Were your nerve bundles removed when you had your surgery?

lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 6/23/2010 1:39 PM (GMT -6)   
Conrats to you wd40. Now break out some WD40 and lube it up and use it! Well maybe use the KY jell instead of WD40.

larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Involved
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0
Six month PSA - 0
Ten month PSA - .1


Worried Guy
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Date Joined Jul 2009
Total Posts : 3732
   Posted 6/23/2010 2:05 PM (GMT -6)   
Oh WD

That is such inspirational news! You have no idea how many men's spirits you just lifted.

May your VED pump remain ever dusty.

Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 3+4=7, 3+3=6. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day. Try controlling fluids.
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. There must be another issue. Uro mtg 4/23.
5/22/10 10 months: 2 pads per day, 190 ml/day Scope on June 15 Short sphincter
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05, 4/14 9 months - 0.04 and <0.01 with ECLIA.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/23/2010 2:08 PM (GMT -6)   
Congratulations, I detect a stiff breeze in the air over your way
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 6/23/2010 3:17 PM (GMT -6)   
Congratulations on your woody!

Dan
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery on 6/1/10
Pathology report shows cancer confined to prostate and all other tissue clean


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 6/23/2010 3:48 PM (GMT -6)   
HOUSTON, we have lift off ... congrats on the woody - the stiffy - etc... it's gives up hope and encouragement

-thanks

huugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs...
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 6/23/2010 6:48 PM (GMT -6)   
Wow! That is great news. You are making us jealous. My days of having a woody on its own are probably gone forever.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 6/23/2010 7:04 PM (GMT -6)   
Hey WD40, Ed, Purgatory.
Almost 11 months ago I asked my first question on this site. "Prostatectomy - How do I get to sleep?"
You guys and Tony, Goodlife, James C, Sleepless, Geezer, livinadream, JackTech, DS Can, RicknDallas and others answered me with humor and helped me get my head on straight.

Here you are, once again, indirectly encouraging me.
Thanks,
Jeff

Post Edited (Worried Guy) : 6/23/2010 7:13:24 PM (GMT-6)


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 6/23/2010 8:46 PM (GMT -6)   
Onward and upward ! ! !

Back to the ABC days of sex.

"ABC?" you ask.

Anniversary.
Birthday.
Christmas.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  


twash
New Member


Date Joined Jun 2010
Total Posts : 14
   Posted 6/23/2010 8:53 PM (GMT -6)   
Wow, that is great news. You are an inspiration to all of us.

Heads up!

Red Nighthawk
Regular Member


Date Joined Oct 2009
Total Posts : 289
   Posted 6/23/2010 8:58 PM (GMT -6)   
That is certainly inspiring news and I am very encouraged by your report. However, it gets me thinking my surgeon has been right all along. He is not a fan of pumps, pills, pricks, and anything else we try to make little johnny become big bad john. Maybe it's all a waste of time and money and we should just let nature take its course. We need a large study of men with nerves spared, half do nothing, the other half pump, prick, and take pills and compare the results. After one year, how many can get it up. After two years how many?
Age: 62
Pre-op PSA: 4.1
Post-op pathology:
Gleason grade: 3+4=7, present in both lobes, at least 1.1 cm, and occupying less than 5% of prostate by volume. pT2c NX MX
No lymphatic/vascular invasion present.
Seminal vesicles and extraprostatic soft tissue free of tumor.
Inked margins are free of tumor.
High grade prostatic intraepithelial neoplasia is present
Robotic RP: Sept. 15th, 2009 1 day in hospital, cath out on 9th day
Post-op PSA: at 4 weeks ---> .04
at three month intervals -> .03; .02 (the trend is my friend!)
ED: Improvement is very slow but there are positive signs. Doc has NOT put me on ED drugs yet but I am starting to anyhow.
One pad/day for the first six weeks. Two pairs of underpants, just to play it safe, for a few months.
Surgery: Dr. Jim Hu. Brigham & Women's Hospital, Boston


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 6/23/2010 10:27 PM (GMT -6)   
WD40; What great news. You do give this cajun some hope.

Cajun jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 6/25/2010 4:25 AM (GMT -6)   
Thanks guys. What a great bunch of replies.

Here is a big wish for everyone to experience the same thing.
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/25/2010 8:06 AM (GMT -6)   
I missed this somehow, but that's great news, it gives a glimmer of hope for me....
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


wd40
Regular Member


Date Joined Jan 2008
Total Posts : 218
   Posted 6/25/2010 11:41 AM (GMT -6)   
James we are the same age and the specs are about the same. Hang in there dude, your day is coming.
12/06/07 DaVinci and open prostate surgery after difficulties in breathing stopped the davinci.


Sharp18
Regular Member


Date Joined Mar 2010
Total Posts : 78
   Posted 6/25/2010 5:44 PM (GMT -6)   
Keep it up -:)

male_sling_problems
Regular Member


Date Joined Nov 2009
Total Posts : 134
   Posted 6/25/2010 6:06 PM (GMT -6)   
Congratulations WD40

At some time you might want to ask your doctor about some 20mg samples of Cialis.

Split then 4 ways with sharp diagonal pliers. Then try 1/4 of tablet or approximately 5mg daily for a couple of weeks.

This daily low dose works wonders for me including waking up in a "ready state" like a teenager.

Without the daily low dose Cialis, there are very few surprises.

Best wishes,

John

Dilbert61
Regular Member


Date Joined Nov 2009
Total Posts : 21
   Posted 6/25/2010 10:58 PM (GMT -6)   
Most excellent. I can get some reaction now finally at 12 months. I do look forward to more. Even what I'm getting gives me some hope. Cheers.
Initial PSA 4.7 retest 4.9
Biopsy January 2009, two cores 3+3=6 Gleason
Diagnosed Febuary 2009, age 47
open Surgery June 2009, radical, open, nerve sparing retropublic prostectomy
No positive margins and a favorable Gleason's grade of 3+3=6
PSA August 2009 .3
PSA November 2009 undetectable
PSA February 2010 undetectable
PSA June 2010 undetectable


maltratado45
Regular Member


Date Joined Jun 2010
Total Posts : 84
   Posted 7/4/2010 5:45 PM (GMT -6)   
Hello wd40
This is how that happened to me.  This took place 1 1/2 years after surgery.  I then knew I was going to be fine.  I just had to rehabilitate and did.
 
Copy Follows::::
 
A birthday pool party for a Grandson gets us all together, 20-30 people.  My daughter in law is of Cuban heritege. She was sisters.  One of those sisters is a knockout and she has a new bikini.  Waterpolo in the pool and I'm sitting in the cabana with ice tea watching that bikini.  My goodness it starts.  It grows, it bulges. it protrudes and felt wonderful but embarrasing.  I mean "HELLO BUDDY, WELCOME BACK.  WHERE HAVE YOU BEEN SO LONG"  I quickly grabbed a towel and went to the bathroom.  It went down just as quick as it came up and before I could do anything about it too, darned.
 
Congratulations your not back but your working on it now aren't ya?
 
Best Wishes Jim

Age 60 when presented to GP on 3 Aug. 2004 with elevated PSA of 13.8.
Referred to Urologist. Biopsy and bone scan in Oct 04.
Pathology report in Nov 04.  Initial Results are T2cNoMo carcinoma of prostate gland.
Had a RRP on 14 Feb 2005. Boy talk about irony look at that date again.
Dr. called 3 days after surgery. I want you both in my office tomorrow morning, we must talk now.
"I wish to apologize because I misdiagnosed your condition.
Biopsy of your organ says Staging is T3bNoMo. Please accept my apology."
At that moment I fell in love with my Dr. and have never changed my mind.
Followup radiation of the prostate bed started early June 05 and ran 42 sessions.
All PSA checkups to date, 5 1/2 yrs, are undetectable.


coc
New Member


Date Joined Jul 2010
Total Posts : 3
   Posted 7/5/2010 7:13 AM (GMT -6)   
hi so pleased for you .i am getting impatiant after 4 months as cialis and viagra have no effect.the pump works but i dont stay hard for long.just hope i dont have to wait that long

pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 7/5/2010 8:33 PM (GMT -6)   
Appreciate the encouragement. At about 19 months after surgery I'm still 100 percent comatose in the ED department.

Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Six PSA tests undetectable, latest April 30
Pad free beginning Mar. 18, 2010!


maltratado45
Regular Member


Date Joined Jun 2010
Total Posts : 84
   Posted 7/5/2010 9:21 PM (GMT -6)   
We use a pump but a little differently then some other people.  We don't use the pump before intercourse.  We use it to condition my tissue.  I get decent erections now with 1/2 a 20mg Levitra only and no pump.  I get 6 free every 90 days from the VA.  We use the pump to keep my penis tissues in good condition and able to swell later with the pill.  
 
We and/or I make it an 30 minute exercise routine a couple times a week that goes something like this.  Take a warm bath or shower and shave "around" if needed.  Skin care with something she likes the smell of, that I can tolerate.  Apply pump with lube and raise low vac. only.  While under low vac.  I do a series of kegels as groups of 10 and then nutralize vac. to 0 each time and rest for a few minutes in between.  Usually 100 or so total.  Back and forth holding the inner muscles tight enough to make the cyclinder bounce.  That helps me keep the tissue in decent condition.  It goes up and down many times but I never go all the way to erection during exercise.
 
Like I said I was a long time coming but with patience things worked out just fine.  So I have a different goal when I pump. I also can endorce All Day Chemist as a vendor.
 
How about some of you other guys jumpin in here.  How do you use your pump and what is your routine?
 
Best Wishes
 
Jim

Age 60 when presented to GP on 3 Aug. 2004 with elevated PSA of 13.8.
Referred to Urologist. Biopsy and bone scan in Oct 04.
Pathology report in Nov 04.  Initial Results are T2cNoMo carcinoma of prostate gland.
Had a RRP on 14 Feb 2005. Boy talk about irony look at that date again.
Dr. called 3 days after surgery. I want you both in my office tomorrow morning, we must talk now.
"I wish to apologize because I misdiagnosed your condition.
Biopsy of your organ says Staging is T3bNoMo. Please accept my apology."
At that moment I fell in love with my Dr. and have never changed my mind.
Followup radiation of the prostate bed started early June 05 and ran 42 sessions.
All PSA checkups to date, 5 1/2 yrs, are undetectable.


justus1292
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 7/6/2010 7:09 PM (GMT -6)   
:-)  We're all different.  Its been over 4 years since I have had regular erections. I can only encourage those interested, to read up on nerve regrowth.  Its a slow process, but most of all the B vitamins are helpful.
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