Continence/Urgency

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compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7197
   Posted 6/24/2010 9:16 AM (GMT -6)   
At this stage (see my signature) I am noting that my continence is fine. I am calling it 100%. Pretty much no squirts.
 
HOWEVER, I still have quite a bit of urgency. Quite often, when I have to urinate, I am very uncomfortable until I do.
 
I might add that before my PC surgery I had BPH and at times it was difficult to urinate. It took awhile to get the flow going and the flow was not that great. These days, NO DIFFICULTY in starting the flow and while I am not peeing like a teenager, it is pretty good. I guess that's one improvement from the surgery.
 
Anyone else experience this sense of urgency??
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week).

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.

Second post-op PSA on 6/21/10--0.02--


daveshan
Regular Member


Date Joined Jan 2010
Total Posts : 363
   Posted 6/24/2010 9:26 AM (GMT -6)   
Sounds like we're on the same track almost exactly as far as continence goes. If I stand up I may suddenly have to go badly and I do get an occasional sense of having to go sometimes just after I leave the bathroom totally empty.

The way I look at it is, things got seriously torn up in there, the nerves that signal full/empty may have got hit hard I'm not too worried at this point. If it continues, say 6 more months then I'll start to wonder if it's going to be a long term issue. For now I'm pretty happy with the way it has progressed.

BTW, same here on the before surgery, I used to have to pinch off flow to build pressure opening up the urethra to get a good stream, it happened over time and I never even thought of it as a symptom 'till I got the bad news.
Diagnosed 12-09 age 55
07-06 PSA 2.5
01-08 PSA 5.5 (PCP did not tell me of increase or schedule follow-up!!!!)
09-09 PSA 6.5 Sent for consult with Urologist
11-09 Consult, scheduled for biopsy, found out about PSA from '08 (yes I was pissed)
12-09 Biopsy, initial Gleason 9 (4+5) later reduced to 8 with tertiary 5, ain't much but I'll take it.
01-10 Bone Scan, "appears negative"
03-01-10 RRP in Durango CO by Dr Sejal Quale and Shandra Wilson, no naked eye evidence of spread, Vesicles and lymph nodes taken for microscopic exam.

03-16-10 Removal of cath' and pathology results of samples.
Multifocal carcinoma with areas of Gleason pattern 3, 4 and 5, Overall Gleason grade 4+4 with tertiary 5, Bilateral involving 21% of left lobe, 3% of right lobe, Invasion of left Seminal vesicle, Tumor focally present at left resection margin, 9 lymph nodes removed all negative, Tumor staging pT3b NO MX

04-23-10 PSA <0.04
05-03-10 1 week without pads
06-07-10 PSA <0.04


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7197
   Posted 6/24/2010 9:45 AM (GMT -6)   

Thanks David.

The urgency is not much of a problem, but I guess it could be a BIG problem in certain situations. So far, there has always been a bathroom around when I needed one and I am aware not to let myself get in a situation with urgency sans bathroom.

 

("OK class, let's take a break--heh heh heh")

 

Mel


63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week). As of 6/22/10, I would say I am 100% continent, but I do have (controllable) significant urgency.

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.

Second post-op PSA on 6/21/10--0.02--Not too bad!


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5682
   Posted 6/24/2010 11:44 AM (GMT -6)   
I'm 8mos post op and occasionally get urgency. I have no problem holding it but at times, there is the sense of urgency!!
age 67 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of Washington Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci, extensive PNI, That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
Dec 14,2009 psa 0.0 May 10 2010, psa 0.0

" Hypocrisy is vice's homage to Virtue " read it in Bartlet's book of quotation years ago stuck with me, can't remember who said it.


MrGimpy
Veteran Member


Date Joined Jul 2009
Total Posts : 504
   Posted 6/24/2010 12:50 PM (GMT -6)   
Hi Mel,

Since the plumbing once the prostate has been removed has changed, the mind now takes a more active role in making sure we stay dry.

Since staying dry is still a new routine that the mind needs to get used to it alerts us more when it detects that the bladder needs to be relieved

It means that all is ok
Stats:
Age: 52, PSA (2008)=1.9
Biopsy on 01/09/09, Gleason Score = 3+3
One (1) out of twelve (12) cores was positive, plus external nodule found
Surgery (Da Vinci, robotic prostatectomy): 4/7/09
Post Op Path 3+3
Removed Catheter: 04/19/09
100% bladder control - Pad free 7/09
PSA 7/09 undetectable, <0.01 - 3 months post-op
PSA 1/10 undetectable, <0.01 - 9 months post-op
Trimix provides 100% erectile function


NY-Sooner
Regular Member


Date Joined Sep 2009
Total Posts : 462
   Posted 6/24/2010 1:32 PM (GMT -6)   
I had my prostate out 3 yaers ago, and I have had urgency since the catheter was removed. I was off pads after 3 months, but when ever I  drink something, within a half hour I will get the urge to go. If I don't go right away, the urge gets so great that I will start to drip and it gets very uncomfortable.
 
 I have learned to live with it and it really does not bother me much anymore.  I wish I didn't have the urge and could hold it longer, but small price to pay for not having cancer.
 
Age 56, Biopsy 6/2007 - PSA 4.5, 2 of 12 with  <5% cancer Gleason 6
Surgery 9/2007 Strong Memorial,  Rochester  NY with Dr. Jean Joseph (1300 plus surgeries)
 Path - Negative margins, cancer in 20% examined tissue, Gleason 6
 Post Op - No ED issues, full erections without drugs,  used 5-7 pads a day for 3 months. Now dry except for stress leaks now and then.
 All post op psa's <.04


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6898
   Posted 6/24/2010 6:25 PM (GMT -6)   
Mel,
I was down to one pad a day, and that was damp not wet, before radiation almost 6 months out from DaVinci. The radiation kicked me in the arse, and I am back to two, but I've also noticed daytime urgency is way up, but little to pass because I'm going so often.
So far overnight has remained generally dry.
I guess things have become more sensitive after the rads, but I'm hoping to get back down to one, and maybe quit investing in Depends altogether (wouldn't that be great!)
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