low testosterone

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mspt98
Regular Member


Date Joined Dec 2008
Total Posts : 377
   Posted 6/25/2010 12:10 AM (GMT -6)   
I have just found out from out from a blood test that I have low testosterone levels for a man my age, 230 for a 54 year old man, to be exact. I know this has been discussed in other threads before but I can't seem to figure out how to get to these old threads. Any help with this would be greatly appreciated by me, thank you.....
my age=52 when all this happened,
DRE=negative
PSA went from 1.9 to 2.85 in one year, urologist ordered biopsy,
First biopsy on 03/08, "suspicious for cancer but not diagnostic"
Second biopsy on 08/14/08, 2/12 cores positive on R side, 1 core=5% Ca, other core = 25% Ca, Gleason Score= 6 both cores,
Clinical Stage T1C
Bilateral nerve sparing Robotic Surgery on 09/11/08, pathological stage T2A at surgery
No signs of spread, organ contained,
5 0's in a row now, 18 months out
Incontinence gone in early December '08,
ED still a problem, normal erections with manual effort but wife is now ill, not interested in sex anymore


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 374
   Posted 6/25/2010 11:18 AM (GMT -6)   

mspt98.......this topic/thread never gets much attention, but it should. There are more than a handful of us complaining of symptoms of Low T following treatment, especially surgery. You're a little ahead of me recovery-wise. I too have been fighting what I consider Low T, although my numbers are in the low to mid 300's. very low, but within "normal" range. I have really gotten into the weeds on this, and the more I find out, the more I find out I don't know. I've consulted urologists, endocrinologists, and a medical oncologist in addition to my GP.......the mainstream thinking is that you don't want to give PCa it's food, but when guys are given ADT following a recurrence, they don't take you down to 300 or 240 , etc., they take you to almost zero, or at least below 50. According to Mulhall at MSK, cell saturation occurs around 150, so PCa will get all the food it needs if it's going to at that level. Your stats both pre-surgery and post surgery are favorable to a discussion with your doctors about this. I'm currently investigating (with the help of my GP and a compounding pharmacist) the role of Vitamin D-3 and Zinc in the testosterone conversion process. When I get more info, which should occur shortly, I hope to post a more comprehensive summary of my journey, with the hope that it will help more of us who are experiencing this, but who are caught in the Catch-22 of PCa/testosterone conundrum. I consider myself very fortunate so far to not have had a lot of the complications that other guys are experiencing. So maybe I can help on this issue.........take care,

Arnie in DE

 


Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1

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