Break out the CHAMPAGNE!!!!!

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lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 6/25/2010 9:06 AM (GMT -6)   
Saw my urologist this morning and the GREAT NEWS IS I"M ACTUALLY STILL IN THE 0 CLUB!!!!!
WOO-HOO!!!! 
 
When I called in for my psa result the nurse stated .1 and I even asked her twice and she stated .1
When I talked to the Doc this morning in person I told him I was worried about my PSA and he said that the test result was recorded as < .1 which means 0 But the lady on the phone did not state less then!!!  
 
Doc  told me that is why he doesn't like his staff giving out the numbers over the phone.
I told him that next time I will wait to get the words from his mouth!!!
 
Thanks all for your thoughts, prayers, words of kindness.
My next check up will be the end of October which will be 15 months post surgery.
 
Larry (STILL IN THE ZERO CLUB)!!!!!!!
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Involved
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0
Six month PSA - 0
Ten month PSA - 0


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 6/25/2010 9:10 AM (GMT -6)   
GREAT NEWS...

Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4463
   Posted 6/25/2010 9:25 AM (GMT -6)   
Larry, congrats in maintaining your membership in our exclusive club.
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 6/25/2010 9:43 AM (GMT -6)   
That must be a big relief!!!!

Congratulations!

Dan
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery on 6/1/10
Pathology report shows cancer confined to prostate and all other tissue clean


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 6/25/2010 9:47 AM (GMT -6)   
One of those times when less is better... may it be "less than" forever!

Congrats,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4
Post SRT psa at 10 weeks (5/31/2010) down to .2


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/25/2010 9:52 AM (GMT -6)   
Larry, that is really great news, what a way to start your weekend!!!
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6048
   Posted 6/25/2010 11:42 AM (GMT -6)   
Larry, what can I say, that is such a relief for you. I had one recently and I made the receptionist/nurse mad be cause I made her give me the date of the test cause she has made mistakes before on other issues.
age 67 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of Washington Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci, extensive PNI, That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
Dec 14,2009 psa 0.0 May 10 2010, psa 0.0

" Hypocrisy is vice's homage to Virtue " read it in Bartlet's book of quotation years ago stuck with me, can't remember who said it.


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 6/25/2010 12:23 PM (GMT -6)   
Great news. Seems to be a common problem. My primary care doc told me my PSA was .1 when it was <.1 also. Guess it is important to get the info from the urologist.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream. Unfortunately, incontinence back to post surgery level.
*04/14 - Six month PSA - .21.
*05/15 - Incontinence basically under control.  99% dry.  Wear pad daily at work "just in case".
*06/10 - Started IGRT.   39 treatments scheduled.
 


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 348
   Posted 6/25/2010 12:37 PM (GMT -6)   
Fantastic mate.
Have a great weekend
Mike
Age 51
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report gleason 3+4 = 7 (yukk)
post op psa 22/12/09,  0.04
                    09/04/10 <0.03

no incontinence after 7 days
total ed, good erection using the pump

 


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7078
   Posted 6/25/2010 11:08 PM (GMT -6)   
Larry,
Welcome back - glad you double checked!

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3739
   Posted 6/26/2010 5:40 AM (GMT -6)   
Welcome back!

lewvino said...
Doc told me that is why he doesn't like his staff giving out the numbers over the phone.


I think the Uroolgist should spend two minutes training his staff to read the report correctly.

That small "<" sign made a difference. It caused you worry for a few days and he got paid for another office visit

Call the person who gave you the number and in the sweetest voice you can muster tell them that there is a difference.
Think how many other poor guys per week are getting the same response from that office. (And how many extra office visits are taking place.)

Surely the Uro could educate his staff.
Jeff

Post Edited (Worried Guy) : 6/26/2010 4:43:40 AM (GMT-6)


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 6/26/2010 5:51 AM (GMT -6)   
Larry - congrats on staying in the zero club - too bad he couldn't be even more precise - but hey, a zero is a zero is a zero ... congrats !!

BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs...
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 6/26/2010 6:10 AM (GMT -6)   
what a great club to to be in. Glad you decided to stay, have a great weekend

peace to
you
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
Casodex
Currently on Lupron
I go to The Cancer Treatment Center of America
Married with two kids
latest PSA 5-27-08 0.11

PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13
PSA April 16th of 2010 is .16
Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


ChrisR
Veteran Member


Date Joined Apr 2008
Total Posts : 831
   Posted 6/26/2010 10:42 AM (GMT -6)   
This exactly why I make my dr. Fax or mail me a copy of everthing. You would think that professionls who are dealing with cancer patients would be much more careful when reading test results to patients. What if you went off for radiation and didn't need it.
Dx 42
Gleason 6 (tertiary score 0)
OPEN RP 10/08  Johns Hopkins
pT2 Organ confined Gleason 6
PSA Undetectable as of 10/15/09
Next PSA 10/15/2010


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 6/26/2010 12:45 PM (GMT -6)   
Congratulations, Larry !

Keep those goose eggs coming ! tongue
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
Latest PSA 3/'10 <0.04


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 6/26/2010 2:01 PM (GMT -6)   
Well Larry, nothing like a good zero in the morning. Congrats!!!!


Mika
age at dx 54 now 58
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
three years of zero's
Retired again after 36 years February 1, 2010


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 6/26/2010 3:34 PM (GMT -6)   
I have heard too many of these stories.

I have my doctor write me a script for the hospital lab.

I then go to the records office two days later and get a written copy, long before the doctor even sees it.

PSA day is stressful enough !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01

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