Today was one of those "in a lot of bladder neck" pain days, even shortly after I woke up. I went to the hospital at 1:30, and this time, was done and back in my car at 2:30. They are so effecient there, and since I have been there so many times, its scary about all the people I recognize and how much of the staff remembers me. This will be my 3rd mini-op of the year, and its still June.
So in exactly a week, will be put under again, and hoping beyond hope, that my uro can see any evidence of healing down below. Based on the pain levels today, I don't see how anything has changed, even though my radiation ended 7 months ago tommorow. Even if it were cause by the radiation, one would think that I would be healed or at least in the process of healing by now.
Today, it hurts to sit or even lie on my side. And if I stand too much, I have wicked bladder spasms, and if I walk too much or bend over too much, then bloods starts to go in the leg bag.
Back home, on the prescription pain meds, resting (how I am so sick of that word: resting). I want my life back, I am in an endless loop here, hurting and resting and hurting and resting. To show you how much I have gone downhill, last year atv this time, I had the strength and ability to completely restore a travel trailer inside and out, paint an outdoor shed, and paint half the rooms in my house, and did as much consulting work as was available.
Now today, I went to the hospital (whoopee), had lunch with my son/daughter, did some laundry, and did some inside painting for about 30 minutes, and I am completely shot physically, and just prior to taking some meds, was running a steady 5 on the pain scale.
So didnt mean for this to be a mini-vent. Pain makes me on edge, and I don't want to take it out on anyone here, or at home.
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped 9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17