Pre-op Completed

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/25/2010 5:03 PM (GMT -6)   
Today was one of those "in a lot of bladder neck" pain days, even shortly after I woke up.  I went to the hospital at 1:30, and this time, was done and back in my car at 2:30.  They are so effecient there, and since I have been there so many times, its scary about all the people I recognize and how much of the staff remembers me.  This will be my 3rd mini-op of the year, and its still June.
 
So in exactly a week, will be put under again, and hoping beyond hope, that my uro can see any evidence of healing down below.  Based on the pain levels today, I don't see how anything has changed, even though my radiation ended 7 months ago tommorow.  Even if it were cause by the radiation, one would think that I would be healed or at least in the process of healing by now.
 
Today, it hurts to sit or even lie on my side.  And if I stand too much, I have wicked bladder spasms, and if I walk too much or bend over too much, then bloods starts to go in the leg bag.
 
Back home, on the prescription pain meds, resting  (how I am so sick of that word: resting).  I want my life back,  I am in an endless loop here, hurting and resting and hurting and resting.  To show you how much I have gone downhill, last year atv this time, I had the strength and ability to completely restore a travel trailer inside and out, paint an outdoor shed, and paint half the rooms in my house, and did as much consulting work as was available.
 
Now today, I went to the hospital (whoopee), had lunch with my son/daughter, did some laundry, and did some inside painting for about 30 minutes, and I am completely shot physically, and just prior to taking some meds, was running a steady 5 on the pain scale.
 
So didnt mean for this to be a mini-vent.  Pain makes me on edge, and I don't want to take it out on anyone here, or at home.
 
David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


RayPat
Regular Member


Date Joined Apr 2010
Total Posts : 104
   Posted 6/25/2010 5:07 PM (GMT -6)   
David, I sincerely hope they will find evidence of the long awaited healing. You've been through way too much pain.
Age 63

01/26/10 ...PSA 9
Referred to urologist
Met urologist on 2/26/10....DRE normal new PSA test was 11. Taken after DRE.
Biopsy on 3/26/10. 14 samples...3 positive on right side...all 11% Gleason 3+3
Urologist said stage T-1c.
Advised treatment. Discussed surgery and set appointment with radiologist for 4/26/10
4/26/10 Met with radiologist. Thinks IMRT or Brachytherapy would be good choice.
5/20/10 volume study done all looks good for Brachytherapy.
6/22/10 Brachytherapy done.
6/24/10 Catheter out...pretty good flow most of day until 3:30 then stopped
Off to ER for new one. :>(


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 6/25/2010 5:18 PM (GMT -6)   
David, vent away!!!! I can't imagine going thru all that you have. Hope you get some relief soon. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*Still slightly incontinant after 3 months - 1 pad per day (light). Dry at night. 1-2 trips to toilet.
*ED - Yes (will start Levitra possibly in January)
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream. Unfortunately, incontinence back to post surgery level.
*04/14 - Six month PSA - .21.
*05/15 - Incontinence basically under control.  99% dry.  Wear pad daily at work "just in case".
*06/10 - Started IGRT.   39 treatments scheduled.
 


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 6/25/2010 5:39 PM (GMT -6)   
David,
This is the place to vent, thank goodness. Hope next week goes better. Will you be starting work soon?
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 285
   Posted 6/25/2010 5:55 PM (GMT -6)   
Sure can't fault you for venting, but sure hope the reasons for doing so ease up soon. I've been known to shout at the tv and feel better afterward.... does concern my wife now and again though.

Hang in there,
Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4
Post SRT psa at 10 weeks (5/31/2010) down to .2


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/25/2010 7:51 PM (GMT -6)   
Thanks, guys. Just the pain talking. Work? Suppose to meet with my "future boss" sometime Monday, but still don't know for sure how to handle this situation.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 6/25/2010 8:16 PM (GMT -6)   
David, while I'm pleased you are moving towards the mini-op and information which will, I pray, lead to a resolution of your situation, perhaps with what I think of as a shunt, I am distressed that you continue to be in such pain. And, I'm in awe that you spent 30 minutes painting!

Your work situation is difficult. I'm not sure what I'd do. It is easy to advise from 1,000 miles away to deal with it head on with the new boss --- straight up and all that, but if I were in your shoes ......??????

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  


pa69
Regular Member


Date Joined Mar 2009
Total Posts : 260
   Posted 6/25/2010 8:35 PM (GMT -6)   
Hi David,

I think a little venting is good for you. I like many others on this forum are listening intently.

Good luck with your mini-op,
Bob
Age 70, First ever PSA 7.8 taken June 2008, Biopsy July 2008, 10 of 12 cores positive, Gleason 3+3=6
da Vinci surgery December 10, 2008, catheter removed December 29 2008
St. Lukes Hospital, Bethlehem, Pa.
Dr. Frank Tamarkin
Prostate weight 73.0 grams, Gleason 3+3=6, stage pT3a
Tumor locations: right anterior apex, right posterior apex to mid
left anterior mid to base, left posterior apex to mid
extensive perineural invasion in right anterior apex, right and left posterior apex to mid
seminal vesicles negative
Six PSA tests undetectable, latest April 30
Pad free beginning Mar. 18, 2010!


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 6/25/2010 10:02 PM (GMT -6)   
Glad the hosp. visit went well, at least.
The venting helps. We're still here -

rhb47
Regular Member


Date Joined Mar 2010
Total Posts : 208
   Posted 6/26/2010 11:08 AM (GMT -6)   
Oh David, I just don't know what to say-you've been thru so much! Can't wait for the post where you say you're getting better. Good luck with the mini-op; hope you get some good news for a change.

Renee
Husband diagnosed 3/10
Age 56, PSA 4.7, free 7.6%
Biopsy 5 of 10 cores positve-all right side-25% to 57%
Gleason 6
DaVinci surgery with Dr. Vip Patel scheduled 8/9/10
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/26/2010 11:23 AM (GMT -6)   
Thanks, Sheldon, Bob, 142, Renee

I long to be the one to post a good one, one day, where most if not all of this extended suffering in over and in the past.

It may seem eternal now, but still have to belive that it can be fixed.


David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 6/26/2010 11:29 AM (GMT -6)   
Hi David,

Think of venting here as "free" therapy tongue

I hope talking about your situation helps you to cope.

Here's hoping your weekend brings you some comfort and relaxation.

Also, it was nice chatting with you and others from the forum on Wednesday.

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
Latest PSA 3/'10 <0.04


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5828
   Posted 6/26/2010 11:33 AM (GMT -6)   
Purgatory, I"m believing with you and am praying for you, its the best I can do, and I have faith in your recovery!!
age 67 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of Washington Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci, extensive PNI, That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
Dec 14,2009 psa 0.0 May 10 2010, psa 0.0

" Hypocrisy is vice's homage to Virtue " read it in Bartlet's book of quotation years ago stuck with me, can't remember who said it.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/26/2010 11:38 AM (GMT -6)   
Barry, its always good to hear from you, hope you can make another chat night soon as well.

Thank you, Logo
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 6/26/2010 1:03 PM (GMT -6)   
David, here is hoping this one will be the last. Good luck

Mika
age at dx 54 now 58
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
three years of zero's
Retired again after 36 years February 1, 2010


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/26/2010 6:01 PM (GMT -6)   
Thanks, Mika

Unfortunatley, not expecting this to be the last one. This should be the last of the periodic "inspection" trips and scar clearing procedures. If, this one doesn't produce good and/or lasting results, or if the doctor stills sees evidence of much post radiation damage, then we will be moving on to a more perm. solution, that will involve a more serious operation. My doctor honestly is honestly holding back, still hoping for a natural healing to avoid another complex operation. If anyone thinks the doc is just trying to weasel his way into more surgery to make more money, definitely not the case at all.. He wishes as much as I, that this ordeal would just heal on its on over time.
_____________________

Saturday Evening Update

Stayed home almost all day on the "big" bag, definitely have more issues when I have to be on the "leg" bag for long. Did go out with the wife earlier this evening to eat dinner and run a few errands. Pain started kicking in quickly, stomach cramps again, and lots of pressure pains at the bladder neck.

So back home, where I guess I should have stayed, and back on the "big" bag and meds. Another day in paradise, lol. What a life.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 6/27/2010 7:30 AM (GMT -6)   
Hi David,

Rant away. You certainly have the right to do so. I sincerely hope that this latest procedure brings you some relief. I am sure that someone had mentioned hyperbaric healing to you in the past. Have you considered this? I have not done it myself but have read some very good results for persons having difficulty healing from surgery and/or radiation. Here is hoping for good results for you this week.

Don
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Two years on Lupron completed 01/2010.
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 were full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones
PSA 06/09 .36 or .30 depending on who did the test
PSA 09/09 .33 one year after IMRT and 16 months into hormone
PSA 03/10 .32 18 months after IMRT Still on hormones
PSA 05/10 .42 Rising a little as the lupron wears off. Last lupron shot 01/10.
PSA 06/10 .322 Maybe the .42 reported in May was in error?


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/27/2010 10:13 AM (GMT -6)   
Don, I mentioned that method to my uro this past visit, and reported what he said about it. He said that he honestly didn't think it would help with my particular problem, though he does use it for other urological problems.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17

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