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English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2211
   Posted 6/27/2010 2:42 AM (GMT -6)   
50 today!

Not a PSA of 50, or 50 sessions of RT, or 50 questions for your uro, or 50 tips about how to cope with PCa, nor my 50th post, but my 50th Birthday.

Okay so a lot has happened since my 49th birthday, and I’m not the way I thought I’d be at 50, but I’m having a great weekend. No party planned or visitors, not even family, as with RT only finished two weeks ago we realized that we had no idea how I’d feel by today, especially as I am “head of catering” in the family and had no energy to do all the extra grocery shopping, food preparation, cooking clearing up etc. Visitors and some sort of celebration will thus occur later in the summer: my wife was 50 earlier in the year so we can have some kind of joint party.

As for how I am today:

I’m not depressed, but there is quite a bit of frustration in my head regarding what has happened to my body, my quality of life etc. However, given the bereavements, and other major problems which others in my life, and elsewhere, have suffered since my diagnosis, I know I have not had it as bad as it can be.

ED is not a problem for me at present and the fact that “fun and games” now takes more than 30 minutes rather than less than 20 does have an up side. Orgasm rather than Erectile Dysfunction is my area of difficulty, but hey, it’s a problem that’s no bother to keep working at.

My bladder is in two minds regarding continence. Last night I just about went a whole night without needing to get up, yet yesterday afternoon I was leaking like a dripping tap, and of course that happened when I was out at the shops so I had to grab some paper towels from the men’s room in a department store whack them in the way of the dribbler and hope for the best. Luckily it has been really hot weather here and I was wearing patterned shorts.

As for the future, well I don’t feel like I have a lot of control about what is going to happen but I have the following in the corner of the screen of my laptop:
“If I have less time then I must do more of everything I enjoy.”

So on my birthday I have just baked some scones to be able to have scones and cream and home-made strawberry jam for tea.


Alfred
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking of urine
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc. but...
Nov 17th 2009 PSA = 0.1
Can still get erections okay, and almost no leaking of urine, but since December 2009 I don't have orgasms, instead I just have intense pain in place where prostate used to be.
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
April 13th 2010 CT scan.
April 28th 2010 Started Radiation Therapy (66Gy - 33 sessions)
June 11th 2010 finished RT - main side effect tiredness, but also the occasional small leak


Tim-from-Maine
Regular Member


Date Joined Apr 2010
Total Posts : 83
   Posted 6/27/2010 2:52 AM (GMT -6)   
Happy Birthday to you!!!!
PSA Feb 09 - 9
Dx age 62 - March 2009 - Gleason 7
Surgery - da-vinci RP on April 29, 2009 Gleason upgraded to 9
Started VEGAN diet June 2009
3 month PSA - <.04
6 month PSA <.04
9 month PSA .05
12 Month PSA  .16
SRT began May 3, 2010
SRT complete June 25, 2010 - 38 treatments
 
 


Gleason7
Regular Member


Date Joined Feb 2010
Total Posts : 111
   Posted 6/27/2010 3:34 AM (GMT -6)   
Happy birthday Alf! yeah

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4823
   Posted 6/27/2010 4:06 AM (GMT -6)   
Happy birthday....

I had to Google scones....The scone is a small British quick bread (or cake if recipe includes sugar) of Scottish origin.

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2840
   Posted 6/27/2010 4:45 AM (GMT -6)   
Happy Birthday Alf !

hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs...
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 6/27/2010 5:27 AM (GMT -6)   
Alf, our very best wishes for a great year ahead...like your attitude about life and it's how we should all live by enjoying every minute we're given as none of us knows what is around the next corner.

Congratulations on turning 50. Now, if you haven't already had one, it's time for that "welcome to 50" test - the perennial favorite - a colonoscopy!
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 6/27/2010 6:37 AM (GMT -6)   
Happy Birthday, Alf
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


daveshan
Regular Member


Date Joined Jan 2010
Total Posts : 363
   Posted 6/27/2010 6:58 AM (GMT -6)   
Happy Birthday Alf,
Sounds like you have a great attitude and outlook on life.
Best to you and yours.
Dave in Durango CO
Diagnosed 12-09 age 55
07-06 PSA 2.5
01-08 PSA 5.5 (PCP did not tell me of increase or schedule follow-up!!!!)
09-09 PSA 6.5 Sent for consult with Urologist
11-09 Consult, scheduled for biopsy, found out about PSA from '08 (yes I was pissed)
12-09 Biopsy, initial Gleason 9 (4+5) later reduced to 8 with tertiary 5, ain't much but I'll take it.
01-10 Bone Scan, "appears negative"
03-01-10 RRP in Durango CO by Dr Sejal Quale and Shandra Wilson, no naked eye evidence of spread, Vesicles and lymph nodes taken for microscopic exam.

03-16-10 Removal of cath' and pathology results of samples.
Multifocal carcinoma with areas of Gleason pattern 3, 4 and 5, Overall Gleason grade 4+4 with tertiary 5, Bilateral involving 21% of left lobe, 3% of right lobe, Invasion of left Seminal vesicle, Tumor focally present at left resection margin, 9 lymph nodes removed all negative, Tumor staging pT3b NO MX

04-23-10 PSA <0.04
05-03-10 1 week without pads
06-07-10 PSA <0.04


RayPat
Regular Member


Date Joined Apr 2010
Total Posts : 104
   Posted 6/27/2010 7:02 AM (GMT -6)   
Alf, Here's to you old man on your 50th. :-) Enjoy those scones.
Age 63

01/26/10 ...PSA 9
Referred to urologist
Met urologist on 2/26/10....DRE normal new PSA test was 11. Taken after DRE.
Biopsy on 3/26/10. 14 samples...3 positive on right side...all 11% Gleason 3+3
Urologist said stage T-1c.
Advised treatment. Discussed surgery and set appointment with radiologist for 4/26/10
4/26/10 Met with radiologist. Thinks IMRT or Brachytherapy would be good choice.
5/20/10 volume study done all looks good for Brachytherapy.
6/22/10 Brachytherapy done.
6/24/10 Catheter out...pretty good flow most of day until 3:30 then stopped
Off to ER for new one. :>(


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 6/27/2010 7:16 AM (GMT -6)   
Alfred, happy birthday, you are now a half-century of stud muffin in action. enjoy your day!

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 6/27/2010 7:18 AM (GMT -6)   
Alf, best to you on your 50th trip around the sun.
 
Don
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Two years on Lupron completed 01/2010.
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 were full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones
PSA 06/09 .36 or .30 depending on who did the test
PSA 09/09 .33 one year after IMRT and 16 months into hormone
PSA 03/10 .32 18 months after IMRT Still on hormones
PSA 05/10 .42 Rising a little as the lupron wears off. Last lupron shot 01/10.
PSA 06/10 .322 Maybe the .42 reported in May was in error?


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 6/27/2010 8:23 AM (GMT -6)   
Happy birthday Alfred !

Nothing like a hot, buttered scone with jam to make one love life.

Thanks for the report and the update. Your thoughts remind me of the story Abraham Lincoln used to tell about the man being run out of town on a rail, tared and feathered. A reporter for the newspaper asked him how he felt, and he replied (according to Abe,) "If it wasn't for the honor of it .... I'd just as soon walk."

When it come to PCa I think you and I are of a mind: If it wasn't for the honour of it, we'd just as soon walk.

Have a great day and cheers to that wonderful wife of your's too. Word of warning though. Don't tell her she doesn't look a day over 49. I tried that with my wife and she wasn't amused. ...... Well, actually I think what I said was she didn't look a day over 59, but you get the idea it's a bad idea.

And, while we're on wives and bad ideas, sending out invites to a surprise 70th birthday party does also NOT go down well. At least when it's her 65th it doesn't. You'd think when they're worried at 65 about turning 70 they'd be grateful for getting it done and over with. Friends, family, baloons with "70" a cake saying "Happy 70th." the whole nine yards. Not the case. Women! Go figure.

Again, Alfred, many happy returns,

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  


JB71
Regular Member


Date Joined Nov 2009
Total Posts : 206
   Posted 6/27/2010 12:10 PM (GMT -6)   
Happy Birthday Alf from Jerry and Debbie in Canada.

RobnTexas
Regular Member


Date Joined Apr 2010
Total Posts : 24
   Posted 6/27/2010 12:49 PM (GMT -6)   
Happy Birthday Alf. Hope your birthday wish comes true. I assume you guys make a wish when you blow out the candles on your scone. :)
Age: 49, Height 5'11, Weight 190
Problem with urgency and frequency
No family history of C
Biopsy: 4/10 - 4 of 12 Positive 2@ 30% 2 @ 60%, Gleason 3+3=6, T2A
RRP: 5/18
PostOp: Gleason 3+4=7, 45g, 2cm tumor
6/1 - Catheter out YES!!!!
Pad Free after 2 days
No problem with ED


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 6/27/2010 3:18 PM (GMT -6)   
Happy birthday to you Alfred, from Canada. Hoping and wishing that your future will contain dry pads and lots of zeros.
All the best to you.

Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 6/27/2010 3:34 PM (GMT -6)   
Happy birthday Alf
 
Hope its a great day and year
 
Ray
Diagnosed 9/09 at age 54  
PSA 6/09 1.3 
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Post OP Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
POST OP PSA   4/10 <0.1,
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day
 
ED - yes but seeing some improvements - levitra 10 mg 2x week 3 months  100 mg almost daily
 
 
 


Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 696
   Posted 6/27/2010 5:53 PM (GMT -6)   
Happy birthday, Alfred!

As the lads from Monty Python would say (or whistle) "Always look on the bright side of life!"

Wishing you plenty of health and healing.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
pcabefore50.blogspot.com


Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 6/27/2010 6:31 PM (GMT -6)   
Happy Birthday, Alfred.
Scones and cream...with strawberries. Yum! I had to settle for strawberry shortcake with whipped cream. Oh.....so good!
So many deserts...so little time. Enjoy.

Bob
 AGE:58
 Dx: October,27(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive, left side, pre-cancerous on the right.
 Confined to prostate.
 DaVinci Jan. 19th, No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 6 month Psa , 0.1 
 9 month Psa,  0.2  Doubled! Criminy!
 Started RT 10/28...one year since diagnosis.  RT over 12/22.
 3 month post RT Psa 0.1.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2215
   Posted 6/27/2010 6:46 PM (GMT -6)   
Happy Birthday to you Alfred. 50 is a good number and sixty is even better. Cant wait until 70 as it might just take the cake, or the scones and ice cream. Have a great day!!!
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 6/27/2010 7:00 PM (GMT -6)   
Alfred,

Truly I hope you have a Happy Birthday. It is the simple things in life like scones and cream that bring us back to reality sometimes. It would be wonderful if we could wish our PC away, but we can't.

So let's treat every day as a gift, and enjoy our scones and cream every day that we can. As you said, we don't have to look far to find others in worse situations.

Have a great day !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6888
   Posted 6/27/2010 10:07 PM (GMT -6)   
Happy Birthday!
I tell people at my next I'll still be glowing - no candles needed!

bsjoplin
Regular Member


Date Joined Feb 2010
Total Posts : 308
   Posted 6/28/2010 10:54 AM (GMT -6)   
happy bd, Alf! i appreciate your experience and upbeat attitude !
have many more fun birthdays...

bob
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