Fatigue after Radiation therapy

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Sport83
New Member


Date Joined Jun 2010
Total Posts : 5
   Posted 6/29/2010 11:05 AM (GMT -6)   
Hello. I am new to the forum but my issue is getting old already. I finished treatments about 6 months ago and am experiencing about the same level of fatigue. Does anybody have this problem? Any clue as to duration?

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/29/2010 11:31 AM (GMT -6)   
Hello and welcome, Sport

I finished salvage radiation 7 full months ago, and still have strong daily bouts of chronic fatigue. Some people seem to recover from it faster and better than others. Have you mentioned it to your doctor? I run out of energy every day around 2-4 pm, no matter even if I have been resting or taking it easy. The fatigue hits me like a wall around that time, and I am basically done for the day. Anything after that is just a struggle for me. My dr. and radiation oncologist are both aware of my situation, not much they can do, but feel that over time it might improve.

Hope you can find a better answer than that for yourself. My situation is complicated that I had extensive mouth/throat radiation 10 years before I had the PC related radiation, so it was a double hitter for me.

Good luck

David in Sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Sport83
New Member


Date Joined Jun 2010
Total Posts : 5
   Posted 6/29/2010 12:47 PM (GMT -6)   
Thanks Purgatory. I thought about using "Teetering on The Abyss" as a display name but didn't want to type that much.
Though I am sorry about your dilemma, it is helpful to hear that someone else shares my problem. A lot of things that I read and people that I talk to want to attribute it to depression. I can understand that. Not much can wear you down worse than carrying the weight and worries of the world on your back. Spent some time there. Don't need to go back. I would rather golf. Trouble with that is I am spent by 18 holes and that is in a cart. Can't do 36 any more. I'll get it back I'm thinking.When.....?
I have an appointment with my oncologist this week. Ask him some questions and get a time line. 'Right as rain in a month or two.' Isn't it.
Thanks again,
Dave in CA

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 6/29/2010 2:17 PM (GMT -6)   
Dave,
Welcome aboard. I am 3 1/2 months out of SRT and run out of energy in the early evening. Just not my old self yet, but hope to be. Glad your seeing your Dr. soon as he might have an answer for you. My own hunch is that I will worry about this if it doesnt get better at the one year mark as I will give it that amount of time due to surgery, SRT and other medical issues. Take care.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Sport83
New Member


Date Joined Jun 2010
Total Posts : 5
   Posted 6/29/2010 8:01 PM (GMT -6)   
Michael,
Thanks for your input. It is funny how every little bit helps. This process seems so slow to me. My sis suggested that I keep a journal while undergoing treatment. I did it in video format and when I look at some of them, then I see a difference, slight, but I am progressing from then.
Hang in, it has to get more better.
Dave

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 6/29/2010 8:47 PM (GMT -6)   
I'm just under two weeks out of IGRT, and take more quick naps than I did in the first grade. about 2pm, if I don't stop, I will stop. Hoping that will improve.

Sport83
New Member


Date Joined Jun 2010
Total Posts : 5
   Posted 6/30/2010 8:13 AM (GMT -6)   
The napping during treatment was a given after a while. Two or three a day at least. For a week or two after cessation of treatment I went down hard on the "naps"- three and a half hours some times. The naps get shorter in duration and now I am trying to keep them to 45 minutes or less and as few as I can. That way I am better ready for a night of sleeping and peeing.

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 6/30/2010 8:36 AM (GMT -6)   

Food for thought-> EXERCISE

When you exercise, your brain releases endorphins, adrenaline, serotonin and dopamine. These chemicals all work together to make you feel good. In addition, after exercising you may feel a sense of accomplishment and your muscles will relax deeper because of the workout – easing tension and strain.

I started walking aroung the neighborhood a few months ago. Finally figured out that walking at 5AM works for me compared to 6PM....Few weeks ago I double the distance I walk and got up to a full thirty minutes. I immediately notice the difference in my overall well being.


Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Bootheel
Regular Member


Date Joined Oct 2007
Total Posts : 300
   Posted 6/30/2010 8:55 AM (GMT -6)   
I'm a little less than a year out from SRT.  I have to take a nap now for about an hour after I eat lunch.  Feel really fatigued after that meal.  Never had to do that before. I guess the radiation works on you for a long time after treatment.  I just accept it as part of PC.  Other than that, things are okay.
Age 65
Diagnosed 10/12/07
PSA 6.3
Biopsy 18 core samples, 2 positive <5%
Stage T1a Gleason 6 (3+3)
LRP  1/29/08
Post-op
Gleason 7 (3+4)
1 positive margin (.3cm)
T2C
4/16/08- Started Bi-mix injections 
5/15/08- 1st Post-Op PSA 0.07 Undetectable
8/11/08 -2nd Post-OP PSA 0.02 Undetectable
8/15/08- No more pads as of today  Whoopee!!!
11/13/08- 3rd post-op PSA 0.02 Undetectable
03/02/09- 1 yr. post-op PSA .09 Undetectable
05/13/09   PSA .18 (ouch)
Started IMRT June 13, 2009
Completed 37 treatments July 31, 2009 (66.6gy)
11/23/09 Post IMRT PSA .18
2/12/10   Post IMRT PSA 0.00


JoeFL
Regular Member


Date Joined Oct 2009
Total Posts : 420
   Posted 6/30/2010 11:20 AM (GMT -6)   
Sport83,
 
First, some needed qualifiers:
  • Everyone reacts to radiation to different degrees
  • My radiation was combined with seed implants was not salvage RT after surgery

That said, I did hit a fatigue wall after the third week of treatments. In my case, it started to get better about 7-10 days after the last treatment. At that point I started walking every day again (which I had stopped during the treatments). Like StevenDallas, I walk in my neighborhood for 30 minutes every morning. I am convinced that it helped me to build back and maintain my stamina. I still find that a power nap also helps but I was doing that before radiation. Try the walking....start easy and build up over time. I also recommend walking outside rather than the treadmill....too boring otherwise. If you do this for a while, I bet you are back to 36 holes of golf pretty soon....with maybe a few yards extra in the driver.

Joe

 


Age -67 PSA - 4.5

Biopsy  (9/4/09) - Positive in 5 of 8 cores. In those 5 cores, 5 of 11 samples were positive. Gleason 3+3=6. Stage – T1C  Ct and Bone scans negative.

 

BT performed on 12/11/09. 84 seeds of Palladium 103. Surgery at 7:30 - Home at 12:30 same day with no catheter. Blood in urine for a week. Side effects as expected -  some burning, frequency, urgency.   Resumed daily  1 ½ mile walk after 3 days. 

 

BT followed with 25 IGRT treatments beginning Feb 15 (4500 Gy's). After third week, experienced some fatigue. Now 2 months from last rad treatment - energy level has returned. Burning gone and urgency is much improved.

 

First post treatment PSA (6/1/10) - 0.1

 


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 6/30/2010 12:27 PM (GMT -6)   
I was fatigued, now I'd say I'm just tired, or that I tire easily. (RT finished for me 19 days ago.)

I find that exercise seems to help, but there is a wall to break through. I'd be quite happy to sit in an arm chair reading. So I try to dictate to my body that it takes exercise, but not too much. (steady regular bouts of walking really heloped after surgery.
So, regardless of how little sleep I get, or how many times I had to get up in the night, I don't lie around in bed in the morning, but make myself get up at around 7.30 and I get dressed before breakfast rather than slouch about in boxers and T shirt.
I go out about an hour after breakfast for about half an hours walk or cycle ride. I leave it till then as by 9 I have had a BM and my bladder has got rid of a lot of the fluid I drank at breakfast so I can stay out without needing a WC. Then mid afternoon, again when my tank is empty I go out usually for a bicycle ride and can manage 10km with no bother.
If I feel tired before I go out then somehow I feel less tired when i get back. However, I have to ration it, as if I try and do anything else strenuous in the hour or so immedaitely after these to excursions then I feel twice as tired.
It's a strange fatigue, as I have not had a single day time nap since BEFORE I started RT. I haven't even been and had a lie down.

I am also not about to let myself get caught out though by thinking I've got it sorted and can soon get ready to shift the furniture from my living room to lay new flooring as I have heard all sorts of tales about the time it really takes to sort itself out. (A friend who finisghed RT one year before me reckons it took him a year till he was fireding on all cylinders again.

Alf
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking of urine
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc. but...
Nov 17th 2009 PSA = 0.1
Can still get erections okay, and almost no leaking of urine, but since December 2009 I don't have orgasms, instead I just have intense pain in place where prostate used to be.
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
April 13th 2010 CT scan.
April 28th 2010 Started Radiation Therapy (66Gy - 33 sessions)
June 11th 2010 finished RT - main side effect tiredness, but also the occasional small leak


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 6/30/2010 3:31 PM (GMT -6)   
Alf, a year's recovery is not considered unreasonable by any of the radiation oncologists I have spoken with, more or less, depending on the patient
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Sport83
New Member


Date Joined Jun 2010
Total Posts : 5
   Posted 6/30/2010 8:44 PM (GMT -6)   
I am really enjoying and getting a boost from you fellahs input. I just got back from my doc's. He gave me satisfactory input for all of my questions and I left feeling better and more informed. All of my other ailments and the accompanying meds contribute somewhat to the fatigue. 4 for the BP alone. He echoed what many of you (and my wife) have said: exercise, slow at first and increasing. I have never done slow very well. If I walk it has always been to get there, a forced march so to speak. So if the dog and I get out for a few minutes in the morning at a reasonable pace and see what we can smell, I think I can pace myself. The doc had good words and assessment and bottom line told me "Your PSA is great. It will flatline and you will drop dead some day."
Thanks for all of the input. Great.

pasayten
Regular Member


Date Joined Mar 2007
Total Posts : 448
   Posted 6/30/2010 9:06 PM (GMT -6)   
Well, I had most of the daily fatigue ease after 6 weeks... But every once in awhile, I will take a long 2hr afternoon snooze at time... and this is at the 4 month mark... On the positive side, I got back on the ol' mountain bike this last weekend... Only went an easy 10 miles on logging roads, but it was the desire that came back... That is a good sign. Although not so much direct fatigue related, my desire to do things was down somewhat... Good to see that turning around...

I figure that as long as those dang PCa cells are in die mode, I am a happy camper...

pasayten
After 3-4 years of annual PSA 4-6, biopsy recommended
59 y/o
3/13/2007 - 12 point biopsy - Left 0/6  Right 1/6 Gleason 3+3 T1c
4/24/2007 - DaVinci performed at Virginia Mason hospital in Seattle
5/2/2007 - Catheter Out! Final pathology of Gleason 6  T2c Nx Mx, approx 20% of prostate involved, positive margin, but only at 2 focal points.  
6/28/2007 9 weeks incontinance... Overnite, went from 4-6 soaked pads a day from prev 8 weeks to 2 barely wet pads a day.
7/12/2007 11 weeks post-op  Minimal leakage...  one small pad a day
7/18/2007 First Post-Op PSA...  0.01 !!! 
9/10/2007 Pad free and ED at 75% with 100mg Viagra generic
6/26/2008 2nd Post-OP PSA at 14 months...  0.02 
12/2/2008 3rd Post-OP PSA at 20 months...   0.03
10/30/2009 4th Post-OP PSA at 31 months...   0.13 (moved and diff lab)
11/3/2009 Retest at my original lab...  0.11  (followup with Doc sched 11/10)
11/10/2009 Discussion indicated biochemical reccurrence and need for salvage radiation treatment. 
1/21/2010 Another PSA test at 34 months...  0.14
1/26/2010 IMRT Salvage Radiation Treatment started
                  32 sessions for 64 gys total.
3/12/2010 Finished 32 sessions...  No side effects to date except a little
tiredness.  Slight changes in bowel movements the last week...  
4/8/2010  Some rectal prostitis, but no change in urgency.  No urinary effects at all.  Now just waiting for the upcoming PSA test in June.
6/7/2010 First 3 month PSA result after SRT = 0.02   WAHOO!  as good as could ever be expected at the 3 month mark!  Thank You Jesus!
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 5:50 AM (GMT -6)
There are a total of 3,005,639 posts in 329,245 threads.
View Active Threads


Who's Online
This forum has 161791 registered members. Please welcome our newest member, Manuel de Leon.
208 Guest(s), 0 Registered Member(s) are currently online.  Details