Spontaneous - a word I haven't used for over 2 years

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 665
   Posted 6/29/2010 11:53 PM (GMT -6)   
Much like another poster recently, I have encouraging news. I was told that however you are at the 2 year mark after surgery is pretty much where you will end up. I have reason to believe that this is not necessarily true. I have been waking up noticing that my erection is definitely enough to get the job done, albeit only for about 30 seconds or so. I let my wife know that things seemed encouraging for a possible encounter without the injections. I had planned on including cialis in the plan, but the other night, she was staying awake in bed reading while I was falling asleep, and again, there was the erection. So I rolled over and said, "how about it?" I'm happy to say, no drugs, no injections, it worked! Only for about the 30 seconds I warned about, and I didn't get a chance for an orgasm, but hey, it was progress, and the best thing was, it was spontaneous. I think I forgot how to spell (or say) that word.

I'm looking forward to next time. I think progress is still happening, in spite of what I was told. With the SRT coming up, I'm thankful for some encouragement.
Cheers, Jeff
Gleason, 3+4; PSA, 7.9
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
pT2c, prostate 60.2g, margins: negative; perineural invasion: present; lymphatic invasion: present; 3 lymph nodes removed, clear; seminal vesicle invasion: absent; Gleason 4 comprises 5-10% of carcinoma
PSA consistently <0.1 since surgery until Oct 09: 0.1; retested Oct 09, <0.1,
Jan 10, 0.2
retest Feb 1 confirmed 0.2
CT scan, bone scan Feb 10 both clear
PSA after, 2010: March, 0.17; April, 0.17; May, 0.24; June, 0.31
Starting salvage IGRT on August 4


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4835
   Posted 6/30/2010 7:54 AM (GMT -6)   
Congrats...Keep up the good work.
 
I actually have some hopes of spontaneous reaction to the stimuli one gets when pairing up with the female persuation....But I haven't had a date in years shocked
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/30/2010 8:13 AM (GMT -6)   
Good going, Jeff. That still a good improvement, and I hope you can keep building on it.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 6/30/2010 8:14 AM (GMT -6)   
"Spontaneous"- to happen without notice, on the spot, when shes hot, ready or not, up and down like a clown, for a male a special crown! Is that a limerick or just stupid fun!

Source- Bob's Unabridged Dicksionary (fictional and only found in the Twlight Zone)-LOL!!!

Great News for you btw.
Youth is wasted on the Young-(W.C. Fields)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 6/30/2010 8:23 AM (GMT -6)   
P.S. Jeff, since when wasnt a 30 second quicky not a good thing, when you can get away with it? lol. Next you can build up to becoming a "Minute Man"
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest: 7/9 met 2 rad. oncl, 7/9 cath #6 - blockage, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, 9/9 - met 3rd rad. oncl., mapped  9/9, 10/1 - 3rd corr. surgery - SP cath/hard dialation, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, 12/7 - Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12  same time, 2/8-Cath #11 out - 21 days, 3/2- Cath #12 out - 41 days, 3/2- Corr Surgery #5, 3/6 Cath #13 out - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 6/30/2010 9:43 AM (GMT -6)   
Up, up and away!

Good on you!

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  


bsjoplin
Regular Member


Date Joined Feb 2010
Total Posts : 308
   Posted 6/30/2010 10:39 AM (GMT -6)   
Great to hear, Jeff!
and just to add my experience: when i started SRT, i was told that whatever progress was occurring on ED might be put on hold during the RT process, and then it could continue after the treatment sequence was done.  that was NOT the case, as i saw definite improvement during the 2 months of radiation...[i'm at about 17 months post-surgery]...hopefully, you can too!
all the best!
bob

Age@dx: 55

5/05             PSA test 1.8  --12/19/07  PSA test 3.7  --7/25/08    PSA test: 4.7

8/26/08        1st Prostate Biopsy: 3 samples out of 6 have irregular cells

11/25/08      PSA test: 6.5

12/11/08      2nd Prostate Biopsy :  of 12 samples, 3 are cancer, and all other 9 are irregular.  original NJ lab sent samples to Johns Hopkins for special reading.  Gleason 3+3=6.  now:read book, and think about options: radiation, surgery, etc

1/22/09        Radical Retropubic Prostatectomy.  main issue was use of BOTH pre-donated units of blood during surgery, and then required 2 additional units in recovery, before going to room

1/25/09        Released from hospital. No drive, no lift >5 lb

1/28/09        Pathology results from removed tissue:  Cancer was seen on 10% of gland, lymph nodes & SV were benign, nothing seen outside of the prostate.  One area of cancer extended right up to edge, but not beyond.  Gleason was re-typed as 3+4=7, staged T2c

2/13/09        PSA=0.1

3/6/09          6week appt, start back to work Monday, 3/9.  script for Cialis

6/8/09          PSA=0.1

10/9/09        PSA=0.1

2/10/10        PSA=0.3 discussed possibility of radiotherapy and/or hormone.

4/7/10          PSA= 0.4  Recurrence of the cancer is probable. Referred me to RO

5/4/10                   First RT.  RO is recommending 37 treatments x 1.8Gy=66.6 Gy

6/25/10       Final RT. ended up w/ 36 treatments, 64.8 Gy


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 665
   Posted 6/30/2010 11:33 PM (GMT -6)   
Never thought I'd be aspiring to be a minuteman!
But progress is progress...

Bob, it just goes to show us that we can continue to progress regardless of what the expectations are. What I've noticed is that I've made more progress since I gave up and decided it wasn't going to get any better (or at least stopped having any expectations) than I did before.
Thanks for the encouragement, all
Jeff
Gleason, 3+4; PSA, 7.9
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
pT2c, prostate 60.2g, margins: negative; perineural invasion: present; lymphatic invasion: present; 3 lymph nodes removed, clear; seminal vesicle invasion: absent; Gleason 4 comprises 5-10% of carcinoma
PSA consistently <0.1 since surgery until Oct 09: 0.1; retested Oct 09, <0.1,
Jan 10, 0.2
retest Feb 1 confirmed 0.2
CT scan, bone scan Feb 10 both clear
PSA after, 2010: March, 0.17; April, 0.17; May, 0.24; June, 0.31
Starting salvage IGRT on August 4


Hope and Prayer
Regular Member


Date Joined May 2010
Total Posts : 59
   Posted 7/6/2010 12:07 AM (GMT -6)   
Congratulations!!! and thank you for sharing. This is so encouraging! May you be blessed with many 30 second and more time going forward! We are only at the 7 month mark but I have always been optomistic that it will happen! You gave us reason to believe.
Boyfriend dx at age 44 with Stage 4 PC on 11/09. Gleason 4+5, 11 of 12 cores +; PSA 51.34
DaVinci surgery on 12/09

Gleason 4+5 confirmed. Lymph and vesicle invasion, right nerves spared.
pT3c N1 Mx
HT: Casedox and Lupron started 1/10

PSA 1/13/10 23.15 2/8/10 .37 3/18/10 <.05 5/14/10 <.02

Bone metastasis

Radiation: 42 sessions ending 6/10


justus1292
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 7/6/2010 7:52 PM (GMT -6)   
smilewinkgrin  That might have been my post you read.  Just 3 weeks before my scheduled implant surgery, things started looking better in  the mornings and several times through out the day.  As I said back then, I can now get it up just using the needle and periodically without.  Used to be Viagra and the needle.
 
Since I've tried the suppositories.....too painful.
 
Keep it UP tongue

Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 665
   Posted 7/6/2010 8:15 PM (GMT -6)   
Justus, good that you didn't have to go through that! I've been wondering whether those of us that are at the partial erection stage are candidates for the implant surgery or not. Figured I would give it more time before I considered that, and it seems to be the right choice so far - sounds like the same for you.

Hope and Prayer - love your name! Sounds like a battle you two are fighting there, I'll add my prayers to yours, for your recovery.
Jeff
Gleason, 3+4; PSA, 7.9
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
pT2c, prostate 60.2g, margins: negative; perineural invasion: present; lymphatic invasion: present; 3 lymph nodes removed, clear; seminal vesicle invasion: absent; Gleason 4 comprises 5-10% of carcinoma
PSA consistently <0.1 since surgery until Oct 09: 0.1; retested Oct 09, <0.1,
Jan 10, 0.2
retest Feb 1 confirmed 0.2
CT scan, bone scan Feb 10 both clear
PSA after, 2010: March, 0.17; April, 0.17; May, 0.24; June, 0.31
Starting salvage IGRT on August 4

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, July 20, 2018 1:16 PM (GMT -6)
There are a total of 2,983,657 posts in 327,139 threads.
View Active Threads


Who's Online
This forum has 161933 registered members. Please welcome our newest member, Abdirahim2001.
373 Guest(s), 10 Registered Member(s) are currently online.  Details
taylymy, 81GyGuy, Kent M., Kct, torontolyme, sebreg, Scaredy Cat, sierraDon, Fairwind, LostBay2020