Home from Corrective Surgery #6, Hello Catheters #18 & #19

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/2/2010 5:51 PM (GMT -6)   
Geez, boys and girls, what a day.  Was at hospital 2 hrs prep, 1 hour in OR, and 2 1/2 hours recovery.  Due to dehydration, it took 2 nurses 4 attempts to get in an IV.  Usually they can get it on the first attempt.  2 were very painful, but last 2, they used liberal amount of pain killers to accomplish. 
 
Of all 6 of these surgeries, this was the most painful in recovery, thus the extra time spent there.  They couldn't get me to keep from shaking so bad, with 4 heated blankets, they still had to put a heating unit through a hose to stabilize that.  Did wake up to two new caths, the new SP didn't really hurt, but the foley was a killer.  It had to pass through the heavily enflamed urethra and bladder neck.  Took 3 doses of morphine to even begin to cut the pain.  The SP is the active cath, and the foley is there to keep the bladder neck open so that it can heal, and it is plugged off.
 
My dr. told my wife, that the scarring wasn't as bad as he thought, but he did clear it back open best he could, but reported, even 7 full months after radiation has ended, that there is severe swelling and inflamation from the radiaton, and saw very little if any improvement there.  That is the bad news. He discussed for the 1st time with my wife, the possibility of advance urinary bypass or reconstructive surgery, and still may set up a meeting the expert from Duke in a couple of months.  He feels that a natural healing solution is growing unlikely at this point in time.
 
Put me on a strong antibiotic, re-newed my normal pain meds, and wrote a script for a much stronger pain med, to be used as needed for the next 36-48 hours.  He wants the foley left in as long as I can stand it, 10 days if possible, but realizes that the spasms will be more severe with both in place, and may have to be removed in 3-5 days.  Since my wife is a nurse, gave her the ok to remove it if needed.
 
Wants to see me Tuesday in person, and see how I am doing at this point.  Had excellent care once again at St. Francis, scary how many of the staff knew me from prior surgeries, a certain comfort in a twisted way.
 
Glad to be home.  Wife was a real trooper for me, again. The doctor and all nurses treated me like royalty, it was just a rough OP this time, further convincing me that this is definitely the last of the corrective ones like this.
 
On meds, resting, need to stay off my feet the rest of the weekend, need to heal from this.  Will still be getting my next post radiation PSA test within the next 2 weeks, but thats a whole other worry.
 
Thanks for all you guys prayers and supports.  Who would have ever dreamed of being on cath nineteen?
 
David, very sore, in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 7/2/2010 6:12 PM (GMT -6)   

Hi David,

Glad you are out of surgery and feeling OK. Sounds like you had a bit of a time with it. I hope that your follow up next Tuesday recieves good news. I had a catheter in once years ago after a hernia repair and I cannot even begin to imagine what it is like to have used one as long as you have. I hope you get a break and soon.

Best to you and your wife.

Don


Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Two years on Lupron completed 01/2010.
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 were full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones
PSA 06/09 .36 or .30 depending on who did the test
PSA 09/09 .33 one year after IMRT and 16 months into hormone
PSA 03/10 .32 18 months after IMRT Still on hormones
PSA 05/10 .42 Rising a little as the lupron wears off. Last lupron shot 01/10.
PSA 06/10 .322 Maybe the .42 reported in May was in error?


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/2/2010 6:18 PM (GMT -6)   
Thank you much, Don. Despite all this, I must still be a tough old bast*** inside, lol.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 6085
   Posted 7/2/2010 6:37 PM (GMT -6)   
Its been said and rightfully so that its not what happens to us but how we deal with what happens to us that shows our character. I for one do not get tired of your posts. They are real, this is really happening to you and I grieve for you. I do not sense any self pity in your posts ,just a this is what's happening to me and I am handling it in the way I do. I like that about you!!!!
age 67 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of Washington Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci, extensive PNI, That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
Dec 14,2009 psa 0.0 May 10 2010, psa 0.0

" Hypocrisy is vice's homage to Virtue " read it in Bartlet's book of quotation years ago stuck with me, can't remember who said it.


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 7/2/2010 7:11 PM (GMT -6)   
David,
Hope that you get some rest this weekend and also hope is that your days with a catheter are numbered. Looks like the Dr. has a plan if needed. My cath # 1 was enough for me. Take care.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 7/2/2010 7:28 PM (GMT -6)   
Well David yours is probably for the record books, I might have to call Guiness World Book or somebody. I doubt many guys have had similar experience in total to what yours has been, it is suprizing that you haven't dropped the 'F' bomb or other superlatives when discussing such.
I think you got 'Duracell' stuff in you! Or running like a 'Timex' -takes a lickin and keeps on tickin! I hope you get this issue resolved in due time.
Youth is wasted on the Young-(W.C. Fields)


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 7/2/2010 7:40 PM (GMT -6)   
David
- so sorry to hear of the latest ordeal, but glad you are through it ..
... very disturbing to reflect on how far they had to push the envelop to get the job done - convulsions (shaking) are not a simple matter and sadden me that you had to go through that emotional and physical trauma..... ( I had that happen due to reaction to medicine (1980's) - and it still haunts me to this day)...
-am pleased you mentioned the doctor talking to your wife about urinary bypass and such ... from your previous cancer history and lack of healing from radiation burns.. it may be you next option ..
-you deserve a better quality of life....
-and as always, whatever you decide, you have my support.

-wishing you and your family a very happy 4th of July - may this be the start of your independence day !

healing hugs,
Bronson and Steve
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs...
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


maldugs
Veteran Member


Date Joined Jun 2007
Total Posts : 789
   Posted 7/2/2010 8:04 PM (GMT -6)   
Hi David, hang in there mate!! yeah

Regards Mal.
age 67 PSA 5.8 DRE slightly firm Rt
Biopsy 2nd July 07 5 out of 12 positive
Gleason 3+4=7 right side tumour adenocarcinoma stage T2a
RP on 30th July,

Post op Pathology, tumour stage T3a 4+3=7, microcsopic evidence of capsular penetration, seminal vessels, bladder neck,are free of tumour, lymph nodes clear, no evidence of metastatic malignancy, tumour does not extend to the apical margins.

Post op PSA 0.5 26th Sept. Totally dry since catheter removed
PSA 23rd Oct.0.5 seeing Radiation Onocologist 31st Oct.
Started radiation treatment on 5th Dec, to continue until 24 Jan. 08.
Finished treatment, next PSA on 30th April.
PSA 30th April 0.4
PSA 30th July 0.5
PSA 27th Oct 0.4 (I am now 68)
PSA 11th March 09 0.5
PSA 3rd August 09 0.6
PSA 25th November 09 0.6 (I am now 69)
PSA 18th Jan 10 0.6


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/2/2010 8:58 PM (GMT -6)   
logo - thank you, that was a great reply, feel you understand where i am coming from :)

michael - when i think back to my original 63 days post open surgery on caths, it seems like nothing, thanks.

zufus - no denying, today was a rough one start to finish, but it had to be done. when i got home, got to eat after a forced fast of almost 24 hours, that six-dollar burger from hardess hit the spot, healthy - no way, but was dying for a protien fix. thanks for your encouragement too

bronson and steve, as always thanks for your kindness and friendship, if i ever make it to canada, would love to meet you guys. you have been a great asset here at HW

mal, my mate, always appreciate you and your remarks too, my best to you, brother
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 7/2/2010 9:08 PM (GMT -6)   
David: words escape me! You know that Pat and I are thinking of the two of you. At some point things just must get better.

Your Cajun Friend
jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/2/2010 9:11 PM (GMT -6)   
Thank you Jeff and Pat. When will you be home from your extended trip? Would love a phone call from you this weekend if you wish. Keep safe, brother of Cajunland
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 7/2/2010 9:42 PM (GMT -6)   
Hi David,

Your catheter record is going to be impossible to beat. So sorry that you had to endure another painful operation, but glad that it is over and that you seem to recover nicely. I'm a little surprised that the rad damage has not healed more than it has. I would have expected substantial healing by now. Sure hope that your next PSA test will be a big, fat zero. I'm sure that that would make tolerating the pain a bit easier.
All the best my friend.

Magaboo
Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 7/2/2010 10:16 PM (GMT -6)   
David, get some rest and don't be shy about taking the stronger pain meds the doc gave you. You've had enough pain already. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*ED - Yes 
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream. Unfortunately, incontinence back to post surgery level.
*04/14 - Six month PSA .21.
*05/15 - Incontinence basically under control.  99% dry.  Wear pad daily at work "just in case".
*06/10 - Started IGRT.   39 treatments scheduled.
 


t-dog
Regular Member


Date Joined Dec 2009
Total Posts : 154
   Posted 7/2/2010 10:30 PM (GMT -6)   
Way to hang in there dude. It does sound like some sort of advanced proceedure may be what you need to get your life back. All the best to ya brother, Tim
Dx at 50 in 12/09 Merry Christmas its cancer....
3 of 12 positive, right side only, psa at dx 2.6 free%14
gleason 3+3=6
routine physical, no symptoms
Da Vinci performed Feb 2k10 by Dr Marc Milsten [hes got mad skills]
99% continent from cath out, mr happy fully functional at 2 weeks out!
path showed same gleeson with no other blips other than one slight margin, organ confined 20% right, 5%left, 34grams
Hernia repair Mar 2k10, hernia was side effect of the surgery
30 day psa 0.03- 90 day psa 0.01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/2/2010 10:56 PM (GMT -6)   
magabo, thanks a heap. the question now, was the radiation clinic correct subjecting me to so much radiation with a catheter in place. they said i was the first one to be done that way. all the other men here that underwent SRT, I believe, had to drink and hold various quantities of water prior to each zap treatment, in order to protect the bladder and rectum areas. In my case, no water, as it would have passed through the bladder via the cath without stopping. they told me it was safe and that they compensated for that, but even my uro/surgeon is question that call.

subic, took one of the a couple of hours ago, with my wife keeping a close eye on me. i get spooked real easy on meds i am not use to, this is the infamous hydromorphone, according to info, one of the drugs that killed michael jackson, and is the same drug that the state of ohio uses to execute prisoners with lethal injections, kind of a scary thought. it is 10x stronger than morphine. trust me, it will only be used sparingly to get me through the worse of the pain, then back to loratabs for the normal daily pain.

tim, thank you much for your kind thoughts too.

what i really need is some solid sleep, since i got home from the hospital, havent even had a small nap, almost like i am totally wired out, hoping some deep sleep will come later. thanks one and all.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/2/2010 11:00 PM (GMT -6)   
David,

I hope you get some rest and start the healing process from the latest ordeal. 'Looks like your doctor is formulating plans for the next steps.

Good thoughts and prayers for you and your wife.

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
3/'10 <0.04; Latest PSA 6/'10 <0.01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/2/2010 11:06 PM (GMT -6)   
Thanks Barry, for your kindness too.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


vam4710
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 7/2/2010 11:40 PM (GMT -6)   
Dave... I'm speechless.... you really been through the mill bud.... hopefully your next steps will give you relief. Keep your chin up... we're all pulling for you!
Diagnosis June 1, 2010 @ age 50
PSA 2.75 (April 2010)  - 2.14  (Sept. 2009) - 1.7 (Sept 2008)
Biopsy May 25, 2010
1 of 12 cores positive;  Gleason 3+4 = 7  25%;   Stage T1c
June 4, 2010
CT and Bone scan - All Negative
 
Da Vinci Surgery  7-7-2010


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2218
   Posted 7/3/2010 4:40 AM (GMT -6)   
David.
I've no advice to give, as you really are a special case here, but hope all is bearable and offer you and your wife all the best.
I also agree with the comment that your posts never indulge in self pity. They almost go to the other extreme and make it sound like you uro visits and ops are just the most routine of excursions like going to the barbers.
If I was wearing a hat I'd take it off to you!
Alf
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking of urine
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc. but...
Nov 17th 2009 PSA = 0.1
Can still get erections okay, and almost no leaking of urine, but since December 2009 I don't have orgasms, instead I just have intense pain in place where prostate used to be.
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
April 13th 2010 CT scan.
April 28th 2010 Started Radiation Therapy (66Gy - 33 sessions)
June 11th 2010 finished RT - main side effect tiredness, but also the occasional small leak


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3743
   Posted 7/3/2010 5:38 AM (GMT -6)   
David,
That sounds awful. I'm glad you're back safe and sound.
One question: Dehydration? Why were you dehydrated? Have you been avoiding or limiting fluids? Jeez, and you guys yell at me for not drinking enough. ;-)
Relax and try to enjoy the fireworks this weekend. I'll set off something big for you.
Jeff

Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1406
   Posted 7/3/2010 5:52 AM (GMT -6)   

Oh, David it saddens me to read of your latest ordeal.  It sounds like your wife is doing a good job of taking care of you.  Rest and do whatever you have to do to ease the pain.

Aimzee


Husband Ron, age 63
Had Progesterone shots for 6 months.  January PSA was .05. 
4/1/10 PSA 5.5  Prostate size = 50 cc.
On Cipro (antibiotic) for 16 days
Bone Scan/CT Negative
Biopsy 4/20/10  12 samples... Adenocarcinoma:  3 positive on right side,
one core left base (5% ` 0.5 mm) -  two cores of left lateral mid
(20% ~ 2mm, 10%, 10% ~ 1mm) - No Perineural Invasion
Gleason 6 (3+3)
July 29, 2010 - da Vinci Prostatectomy
 
(I do the posting for both of us.)


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 7/3/2010 6:00 AM (GMT -6)   
David, just chiming in with all our friends here to wish you a quick and uneventful recovery. There's no doubt about it: you are definitely one tough ba*****!

I am sorry to hear that there hasn't been much healing since the doctor's last look-see. How long would you have to wait for the reconstructive surgery if that's the road you need to take?

Love Zufus' post...but now I can't get the image of the Everready bunny hoping around with two catheters!!

Be well, my friend...law low this weekend and let those who love you pamper you.

xxoo

Sephie & John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 7/3/2010 6:36 AM (GMT -6)   
I hope you had a good night and hope there is some relief soon for you. I never had a bladder spasm but remember my doctor telling me why he didn't want to take the catheter out too early. He said they were very painful. You have definitely had way too many but you keep plugging away. Appreciate the update.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/3/2010 9:30 AM (GMT -6)   
Hi David,

I was away from internet much of yesterday and unable until now to check for a "David Report."

As I read through the messages above I wished I could bundle them all up and use Legoslidat"s post as a bow to be my reply.

You have so many friends here, David. And they all care for you so. It is turely awesome to read the ourpouring of concern and affection that is rolling your way.

I join that ensemble with pride.

As far as I'm concerned all July 4th fireworks this year are in your honor.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  


cocrgolfer
Regular Member


Date Joined Oct 2009
Total Posts : 171
   Posted 7/3/2010 10:43 AM (GMT -6)   
David,
 
Whenever I start to feel grumpy or sorry for myself with my piddlin' little problem I remember you and others here who have suffered your misery with class and grace. 
 
You are going to catch a break one of these days so hang in there.
 
Steve
Age-66
PSA-6.5
8/09-14 core biopsy
4/14 cores pos. GS-(3+4)7
10/13/09-robotic RRP Moffitt Cancer Center Tampa
Post-surg path-two nerves spared, capsule, margins, seminal vesicles neg.
GS-(3+4)7, tumor <5% in 83gm sample.
1/5/10-first PSA-<0.1
IC and ED.

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