New development since my last post on incontinence after 14 months

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Jake T
Regular Member


Date Joined Mar 2009
Total Posts : 44
   Posted 7/3/2010 8:06 PM (GMT -6)   
This is to let everyone with an incontinence issue know there is hope, i was dealing with a leak or drip every day for 14 months and 3 days, last Sunday i went the whole day without 1 drip and could not believe it, i never thought i would remain dry the next day,  but i did. The true test was when i returned to work on Tuesday, and not 1 drip all day or the rest of the week. Went for dinner last night , had a drink and a glass of champagne and thought for sure i would leak and nothing. So for everyone out there dealing with this keep doing your kegels, hang in there, there is hope, regards, Jake

Age 56 > DRE 12/22/08 > PSA 3.4 on Jan 09 > PSA 3.8 on Feb 09 > Biopsy 3/9/09 3 out of 12 positive > Gleason 7 > cat scan neg > divinci robotic surgery 4/23/09 at Mount Sinai NY > Dr. Samadi > Chief Division of Robotics > both nerves spared > margins and nodes clear > catheter out 4/30/09 > 6th week post surgery PSA on 6/09/09 0.01 >  started bio feedback  for incontinence 8/23/09    1-pad a day>1 at night>  recovered from ED about 70% without meds.  PSA on 9/22/09  0.01 >PSA on 12/09 0.01> PSA on 3/2010  0.04    Dry for the first 6 hours a day > then some minor leaking

 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/3/2010 8:09 PM (GMT -6)   
Jake that is very good news, congratulations. This should give hope to any of the brothers with lingering incontinence issues. Hope you stay dry!
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 out 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, 5/24 put in Cath #17


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7082
   Posted 7/3/2010 9:57 PM (GMT -6)   
Jake,
Good news - great to hear!
Gives me some more hope that my 8 months out is still in "healing" territory.

Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 288
   Posted 7/3/2010 10:14 PM (GMT -6)   
From one Jake to another.... that's just Great....Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4
Post SRT psa at 10 weeks (5/31/2010) down to .2


twash
New Member


Date Joined Jun 2010
Total Posts : 14
   Posted 7/3/2010 11:29 PM (GMT -6)   
Jake, I am only 4 weeks n and wondering if I will ever stop leaking. I know I need to be patient but your news has given me new resolve to keep up with the exercises and know that some day, I will be able to stay dry. Thank you.

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 7/4/2010 7:42 AM (GMT -6)   
Jake, what great news, I know this news gives others some hope!

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%

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