Information Overload and Prostate Cancer

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maltratado45
Regular Member


Date Joined Jun 2010
Total Posts : 84
   Posted 7/5/2010 8:44 AM (GMT -6)   
A nice members response recently reminded me of a situation I ran into after I found out I had Prostate Cancer in 2004.
 
During the initial consult when the Dr. delivered my bad news and I went deaf at the words "You have Cancer."  We went home.  We talked some and I started browsing the WEB looking for additional information.
 
I began to find it.  I started saving places to our Favorites and as we use Explorer that folder started to get pretty junked up with all the stuff I was finding.  We started to suffer INFORMATION OVERLOAD.
 
 I joined a few web sites and lurked for a long time reading because I was to scared to speak up.  I did not know anything.  I did not like being in that position.  I did not like having Cancer.  I felt guilty lurking.  I did not like being there but there I was none the less. This was all done often late at night because I could not sleep.
 
This forum is not the proper place for any technical discussion.  But I do think a few simple comments about how to get organized might be appropriate.
 
My recommendations for getting organized are simple.
 
1.  0pen the HELP file for your browser and learn how to make Folders and Subfolders so well that you can do it blind folded.  Plus, learn how to Name or Rename them.
 
2.  Learn to Drag and Drop resources into the folders.
 
3.  Learn to prune to reduce clutter.
 
4.  Lurk and Learn about Cancer, Treatment Options, Doctors, Possible Results or After Effects, Building your Treatment Team, Affect on Families..................to infinity.
 
5.  Join a site when you can see good being done by mostly volunteers and comment is mostly positive and helpful.
 
6.   Realize that many have your same fears and it is OK to be afraid.  Cancer is mean stuff and we know that. 
 
7.  Go harvest and prune all you want and good luck on your journey.  We want you to be healthy and for this Site to go away as "No Longer Needed."  Great strides are being made daily in the fight to defeat Cancer.  But this fight is very much needed at this time.
 
You are the patient with Cancer.  You have a direct respondsibility to take care of yourself and the sooner you face that, the better off you will be.  Cancer will drag you kicking and screaming into the rest of your life.  Cancer will change your life.
 
All of these things are OK because it is your life now after Cancer was found in you.  What was normal is no longer.  You must find your New Normal.
 
I wish you well on your journey and safe passage.
 
Jim 
 
P.S.  Study my signature block and you will see there is life after Cancer.  That is our combined wish for you as members of this board and as people who care.
 
 
 
 
 
 
 

Age 60 when presented to GP on 3 Aug. 2004 with elevated PSA of 13.8.
Referred to Urologist. Biopsy and bone scan in Oct 04.
Pathology report in Nov 04.  Initial Results are T2cNoMo carcinoma of prostate gland.
Had a RRP on 14 Feb 2005. Boy talk about irony look at that date again.
Dr. called 3 days after surgery. I want you both in my office tomorrow morning, we must talk now.
"I wish to apologize because I misdiagnosed your condition.
Biopsy of your organ says Staging is T3bNoMo. Please accept my apology."
At that moment I fell in love with my Dr. and have never changed my mind.
Followup radiation of the prostate bed started early June 05 and ran 42 sessions.
All PSA checkups to date, 5 1/2 yrs, are undetectable.


rhb47
Regular Member


Date Joined Mar 2010
Total Posts : 208
   Posted 7/5/2010 2:01 PM (GMT -6)   
Hi Jim,

Some great advice-thanks! I think we all suffer from INFO OVERLOAD and some times I find I just have to step back for a few days and forget about my husband's pc-he's better at it than I am. Happy to see someone who's nearly 6 years out with undetectable psa-may it always be 0's for you.

Renee
Husband diagnosed 3/10
Age 56, PSA 4.7, free 7.6%
Biopsy 5 of 10 cores positve-all right side-25% to 57%
Gleason 6
DaVinci surgery with Dr. Vip Patel scheduled 8/9/10
 


maltratado45
Regular Member


Date Joined Jun 2010
Total Posts : 84
   Posted 7/5/2010 2:15 PM (GMT -6)   
Thank you rhb47 and BOY do I understand the need to back away once in a while as we walk along.

Here's wishing you ZERO'S forever

My Best Jim
Age 60 when presented to GP on 3 Aug. 2004 with elevated PSA of 13.8.
Referred to Urologist. Biopsy and bone scan in Oct 04.
Pathology report in Nov 04.  Initial Results are T2cNoMo carcinoma of prostate gland.
Had a RRP on 14 Feb 2005. Boy talk about irony look at that date again.
Dr. called 3 days after surgery. I want you both in my office tomorrow morning, we must talk now.
"I wish to apologize because I misdiagnosed your condition.
Biopsy of your organ says Staging is T3bNoMo. Please accept my apology."
At that moment I fell in love with my Dr. and have never changed my mind.
Followup radiation of the prostate bed started early June 05 and ran 42 sessions.
All PSA checkups to date, 5 1/2 yrs, are undetectable.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/5/2010 2:37 PM (GMT -6)   
Thanks, Jim. I'm enjoying your being here and the interesting and helpful information you are posting to the group.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23 test again less than 0.02
PSA on Jan 8 less than 0.02
PSA on April 9 less than 0.02 
 
  

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