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ivyagogo
Regular Member


Date Joined Jul 2010
Total Posts : 21
   Posted 7/5/2010 9:19 PM (GMT -6)   
My husband (52) is six weeks post op from DaVinci surgery. His doctor was very pleased with the surgery and said it was one of the best nerve sparing surgeries he's seen. He is still having some leaking, but not too much and nothing in the erection department at all. What is concerning me right now though is some very severe side/hip pain he's been having for the past week. He describes it as feeling like a)a sunburn or b)being scraped down the side. Is this something that anybody has experience with? He went to his regular Urologist and was told it's just some nerve trauma and it will get better, but it seems to just be getting worse. I don't know if it's related to the surgery or if it happened while doing some minor yard work that he probably shouldn't have been doing anyway. Anybody have any ideas?

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/5/2010 9:32 PM (GMT -6)   
hello ivy

we welcome you and your husband to HW Prostate Cancer. Glad you found us. Pains like you describe can be very typical this close to surgery, and can manifest themselves in many different areas of his body. He has been through a major, complex, and invasive surgery. Six weeks out really isn't that far so far, so it may take time to heal and sort itself out. His doctor is probably right, just too soon yet, same as with the leaking and especially the ED department. Even with nerve sparing ops, 6 weeks is way too soon for most men to have any indication of what is going on in that department.

good luck to the both of you, and i sincerely hope that he continues to heal well. has he had his post surgery pathology report back yet? if so, did it read well for him? Next major event will be his first post surgery PSA test. please keep us posted of his condition and his recovery.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2217
   Posted 7/6/2010 1:54 AM (GMT -6)   
Welcome to HW.
Yes definitely had odd aches and pains like you describe. I put some of it down to sleeping/sitting in different positions etc

It is also the case that the position you have to lie in for 4 hours or so for the surgery can put pressure on various parts of the skeleton which in turn can press against nerves. So once again it's an area where exercise/walking can help. And why not try a gentle back massage.

But, as ever, it's something to mention to the doc again if it doesn't go away.

Alfred
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking of urine
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc. but...
Nov 17th 2009 PSA = 0.1
Can still get erections okay, and almost no leaking of urine, but since December 2009 I don't have orgasms, instead I just have intense pain in place where prostate used to be.
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
April 13th 2010 CT scan.
April 28th 2010 Started Radiation Therapy (66Gy - 33 sessions)
June 11th 2010 finished RT - main side effect tiredness, but also the occasional small leak


ivyagogo
Regular Member


Date Joined Jul 2010
Total Posts : 21
   Posted 7/6/2010 2:50 AM (GMT -6)   
Thank you so much for putting my mind at ease. I don't know all the numbers, but they said that his post surgery pathology report couldn't have been any better. He goes back for a follow up in September.

stevmac1
Regular Member


Date Joined May 2010
Total Posts : 129
   Posted 7/6/2010 7:58 AM (GMT -6)   
Those pains are all too familiar. Mine were slightly forward of the hips. Felt external rather than internal. The only relief I got was medicated powder twice daily. Went away for good just recently.
steve
50 Yrs. old.  DX Feb, 2010 w/6.6 PSA.
Biopsy 04-24-10, Gleason 3+3=6
4 of 5 cores left side inv. 4 of 6 rt side
RRP 06-07-10....
16 days post-op, catheter out.
Gleason upgraded to 3+4
No involvement of lymph nodes & seminal vesicle.
 


ivyagogo
Regular Member


Date Joined Jul 2010
Total Posts : 21
   Posted 7/10/2010 6:35 AM (GMT -6)   
It's been getting worse. My husband called his regular Urologist (not the surgeon) and he wants him to come in for a cat scan. They are afraid something might be wrong. I'm afraid he started doing too much too soon and the stitches putting the urethra back together tore. I hope he's not leaking internally. If he has to have surgery again and a catheter again it will not be pleasant around here.

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 7/10/2010 7:34 AM (GMT -6)   
Lets hope that it is not that serious, but by all means have it checked. I have had two CT Scans since surgery that showed nothing, so all I have to show for that is all the radiation from 2 CT's. Yuk. Hope this heals soon for your husband.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/10/2010 10:18 AM (GMT -6)   
The weight limits that most surgeons give their patients are critically important to follow, so "doing" to much after such a major, complex surgery could be problematic. I hope that he hasn't hurt himself. I had open surgery, and I wasn't allowed to lift more than 5 lbs for the first 6 weeks, wasn't allowed to drive for over a month, etc.

Hopefully the scan won't show anything too drastic, please let us know.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7078
   Posted 7/10/2010 10:45 AM (GMT -6)   
I was on a 5 pound lift limit for two months, then 10 for another month.
Driving was out for a month, then when he said I could, it was with caution - went with a friend to a big parking lot to be sure I could actually do it without pulling something. I drove to friends (40 mile round trip) for Thanksgiving (1 month out), and wasn't sure I was going to get home. Longest, most painful drive since colon surgery.

Then I packed off for a 5 hour drive at Christmas (2 months out), that took the prize for the worst drive in history.
 
(age 56 at DaVinci)

ivyagogo
Regular Member


Date Joined Jul 2010
Total Posts : 21
   Posted 7/10/2010 12:34 PM (GMT -6)   
He was allowed to drive after two weeks. A few days after getting the catheter out, he was doing yard work while I went out to the store. I gave him hell afterward. He has been somewhat achy ever since that. Some days he's fine and other days he is in a lot of pain. I'll keep you posted.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 7/10/2010 12:47 PM (GMT -6)   
Ivyagogo,

I think for your sake, you should ask the doctor for a copy of the biopsy, the pathology report and the surgical report. These are handy to have. It would also help us if you put them in a signature on yoiur profile.

Then when you say what is going on, we can look at your biopsy and post surgery biopsy to see if we see any thing that could be problematic.

The sunburn or scrape decription certainly sounds like nerve related issues. You would certainly know by know if you were leaking urine.

Take a deep breath, have him take some mild pain relievers like tylenol, and wait to see what the doctor says.

Welcome to HW, and good luck on your recovery.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01


ivyagogo
Regular Member


Date Joined Jul 2010
Total Posts : 21
   Posted 7/10/2010 2:34 PM (GMT -6)   
We have all the reports. The doctor said that his results couldn't have been any better. I'll figure out all the details and add to my signature when I have a chance. I'm going through my own medical issues right now. I have a torn ACL and surgery scheduled for Friday. When it rains, it pours!
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