Pain Question...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

gibson00
Regular Member


Date Joined Nov 2009
Total Posts : 212
   Posted 7/7/2010 1:06 PM (GMT -6)   
Hi all,
My father completed his radiation/chemo treatments a little over a month ago. Been going through various side effects and a lot of pain. Hard to say if his pain is increasingly bad due to progression, or if he is building a tolerance to narcotics in general. Most of his pain was in the penis and rectum. He was on as much as 30mg dilaudid -shots- every 4 hours, and 10mg breakthrough shots on the hour...
At the moment, they seem to be controlling it better with fentanyl patches. 200mg total worth of patches. With that, he has only taken one 10mg dilaudid breakthru a day...
No idea if this will all let up eventually, or if it will continue to get worse. He isn't scheduled to have his PSA checked for the first time since treatment until August...

Anyway.....question......for those of you who didn't have your prostate removed, and instead had radiation, did you get the bad penis pain? Is it nerve damage. or the prostate pressing out on the nerves?? Did it eventually let up?

Oh, still need to update my signature. He is now foley-free, but has a superpubic catheter. His doctor has told him he could clamp it off if he wanted to try to pee through his penis, but he is afraid if he tries that, it might make the pain much worse...

Thanks
Father 65 y/o at diagnosis November 2009
Gleason 9 & 10, stage 3 - seminal vesicle involvement
Two TURPs mid Nov. 2009
Foley Catheter
Casodex for last two weeks of November '09, then Lupron.
Suprapubic Catheter March 18th, but blocked right away, back to Foley...
Started IMRT March 25th, Chemo on hold due to catheter bleeding issues, etc.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/7/2010 1:14 PM (GMT -6)   
My situation is very similar to your dad's. I currently have both a suprapubic and a foley catheter in place. Been on the SP cath since October 1. When we have blocked off the cath in the past, and I tried to pee normally, it hurts way too much in my bladder neck. Most of my pain has been associated with post radiation damage, even though the radiation ended this past November, I still have a lot of penile, rectal, and bladder neck pain. I have been on daily pain meds during this entire time, but not as strong as meds as some of your father's currents ones.

I hope he starts to heal and mend soon, so that he can become pain free, it is terrible how for some men, that it can linger on for weeks and months after the treatment ends. Good luck to the both of you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19


gibson00
Regular Member


Date Joined Nov 2009
Total Posts : 212
   Posted 7/7/2010 1:20 PM (GMT -6)   
Thanks David. Yes, it is very frustrating, especially not knowing really what is going on, if it will get better, if it is a sign things are getting worse. And we get very differing opinions from different docs.
He hasn't had any bleeding for a while which is a welcome change, and the lymphidema he was getting in his legs seemed to clear up after a course of Lasix. For the most part he is dealing with pain bouts, doesn't like not peeing, and he is depressed, but refuses to take the anti-depressant his doctor offered him......<sigh>...
He is also on gabapentin, but hard to say if it is helping or not...
Father 65 y/o at diagnosis November 2009
Gleason 9 & 10, stage 3 - seminal vesicle involvement
Two TURPs mid Nov. 2009
Foley Catheter
Casodex for last two weeks of November '09, then Lupron.
Suprapubic Catheter March 18th, but blocked right away, back to Foley...
Started IMRT March 25th, Chemo on hold due to catheter bleeding issues, etc.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/7/2010 1:24 PM (GMT -6)   
gibson, the antidepressent would probably help his overall attitude and recovery, but unless he was willing to submit to the meds, it wouldnt do him any good. hopefully he will have a change of heart on the subject at some point. What is frustrating is being in a situation like his, and there is no black/white ruling on when things will get better, or even if they will get better. We all want answers, but they are not always available, which leads to more frustration and eventually more depression. It can be an endless loop, if one is not monitoring it all the time. Hope things improve.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, June 23, 2018 7:45 AM (GMT -6)
There are a total of 2,974,463 posts in 326,177 threads.
View Active Threads


Who's Online
This forum has 161279 registered members. Please welcome our newest member, Jason402.
360 Guest(s), 6 Registered Member(s) are currently online.  Details
LifeCointosses, rocketphd, Sept 13, GuitarGERD, C_G_K, MacroMan