Just tooting my horn

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brainsurgeon
Regular Member


Date Joined Jul 2009
Total Posts : 137
   Posted 7/8/2010 12:08 PM (GMT -6)   
One year ago today, I was in the recovery room after a long day of dancing with the robot in Luzern, Switzerland. Since then, all systems have done nothing but get better. I have been continent since day one after catheter removal, my PSAs have remained below 0.001, and my wife and I can still enjoy each other. I know this is a short history, and I hope to keep it going life-long. I think that I am in the majority. I do empathize with the people here who have been less fortunate. yeah
70 years old (1939) USA citizen
Prostatic carcinoma dxed June 2009 by PSA (7.0) and then Bx
PSAs yearly since 2001 ranged 1.52 to 7.0. Doubled from 3.5 to 7.0 in one year.
Neg. CT and Bone Scan
4 of 8 biopsies positive (all right side) Gleason Score 3+4=7
Robotic assisted total prostatectomy and node excision July 2009 in Luzern, Switzerland by Dr. A. Mattei in the Kantonsspital. New Gleason was 4+4=8
pT2c G3 pN0 (0/14 nodes +, Margins, etc. clear
Catheter out in 5 days (home in 3 days). No incontinence
Positional neurpraxia in hip and knee resolved 90+% in 5 months.
Potency: beginning tumescence??? at 3 weeks post-op. Still happens at 3 months PO. Nearly usable one month later. At 5 mo. with 100 mg Vitamin V, pretty good. Now beginning 5 mg Cialis daily. 11 months post-op had first usable erection.
3month PSA less than 0.01, 6 month PSA less than 0.01, 11 month PSA remains less than 0.01


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 374
   Posted 7/8/2010 12:17 PM (GMT -6)   
Hey Brain..Happy Anniversary and congrats on the stats. I, too share your outlook, and empathy for other brethren on this site.
 
Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 7/8/2010 1:17 PM (GMT -6)   
Congrats.
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 7/8/2010 1:43 PM (GMT -6)   
Congrats on the one year mark. I remember reading your early posts last year when I found out about my cancer. My one year date is coming up Aug. 15th. I'm sure you Enjoy living in Switzerland. I've visited there twice and love Lucern. We Did the boat ride across the lake and then up Mt. Pilatus and down the Cable car on one visit. That was a beautiful day. Also have walked the city wall, visited the Lion carving and of course the bridges and the old town area.
 
Larry


Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Involved
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0
Six month PSA - 0
Ten month PSA - 0


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 7/8/2010 2:14 PM (GMT -6)   
That is great to hear Brainsurgeon. Those are the kind of reports that we like. Think my son is in Swizterland right now touring with a band, so he will Facebook it and I can look at the pictures, but I have never been there. Take care.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/8/2010 2:16 PM (GMT -6)   
Doctor,

That is a welcomed and good report to hear. Hard to believe its been a year already, I still remember when you first posted. I wish you and your wife only the best in the years ahead. So glad that your personal recovery went so well, and that you are pulling "zeros" on the PSA.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/9/2010 1:56 AM (GMT -6)   
Great report, brainsurgeon !

You made my day !

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
3/'10 <0.04; Latest PSA 6/'10 <0.01


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 7/9/2010 7:50 AM (GMT -6)   
Great news.
63 yo
V10.46 Dx Feb-09

RRP 5-5-09

No adverse SE

PSA 6-19-09  -0-

PSA 9-21-09  -0-

1 year PSA 5-3-10  -0-



Thriving, not just surviving!


brainsurgeon
Regular Member


Date Joined Jul 2009
Total Posts : 137
   Posted 7/9/2010 8:12 AM (GMT -6)   
Thanks to all for the good wishes. David, I especially think of you each day.
70 years old (1939) USA citizen
Prostatic carcinoma dxed June 2009 by PSA (7.0) and then Bx
PSAs yearly since 2001 ranged 1.52 to 7.0. Doubled from 3.5 to 7.0 in one year.
Neg. CT and Bone Scan
4 of 8 biopsies positive (all right side) Gleason Score 3+4=7
Robotic assisted total prostatectomy and node excision July 2009 in Luzern, Switzerland by Dr. A. Mattei in the Kantonsspital. New Gleason was 4+4=8
pT2c G3 pN0 (0/14 nodes +, Margins, etc. clear
Catheter out in 5 days (home in 3 days). No incontinence
Positional neurpraxia in hip and knee resolved 90+% in 5 months.
Potency: beginning tumescence??? at 3 weeks post-op. Still happens at 3 months PO. Nearly usable one month later. At 5 mo. with 100 mg Vitamin V, pretty good. Now beginning 5 mg Cialis daily. 11 months post-op had first usable erection.
3month PSA less than 0.01, 6 month PSA less than 0.01, 11 month PSA remains less than 0.01


maltratado45
Regular Member


Date Joined Jun 2010
Total Posts : 84
   Posted 7/9/2010 12:52 PM (GMT -6)   
turn  Welcome to the ZERO Club and we expect you to attend all meetings and be on time. turn
 
tongue  Jim


Age 60 when presented to GP on 3 Aug. 2004 with elevated PSA of 13.8.
Referred to Urologist. Biopsy and bone scan in Oct 04.
Pathology report in Nov 04.  Initial Results are T2cNoMo carcinoma of prostate gland.
Had a RRP on 14 Feb 2005. Boy talk about irony look at that date again.
Dr. called 3 days after surgery. I want you both in my office tomorrow morning, we must talk now.
"I wish to apologize because I misdiagnosed your condition.
Biopsy of your organ says Staging is T3bNoMo. Please accept my apology."
At that moment I fell in love with my Dr. and have never changed my mind.
Followup radiation of the prostate bed started early June 05 and ran 42 sessions.
All PSA checkups to date, 5 1/2 yrs, are undetectable.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/9/2010 1:37 PM (GMT -6)   
Thanks, back, Doctor. Glad you are checking back with us, your posts are most welcomed at any time.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 7/9/2010 1:42 PM (GMT -6)   
Hey Brainsurgeon,
Congrats on the great scores. Someone has to get the good results (you lucky SOB).
I will be at 1 year in two weeks and was looking back at some of my early posts. I saw your responses there and they made me smile.
Thanks,
Jeff

Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 7/9/2010 7:09 PM (GMT -6)   
 Yodel-ay-yee-hoo.  Toot away on that horn.  Just glad it's not a vuvuzela...heard enough of that.
 
Congrats, Bob
 AGE:58
 Dx: October,27, 2008(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T1c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive
 Confined to prostate.
 DaVinci Jan. 19th, 2009. No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 6 month Psa , 0.1 
 9 month Psa,  0.2  Doubled! Criminy!
 Started RT 10/28...one year since diagnosis.  RT over 12/22.
 3 month post RT Psa 0.1. 6month post RT Psa 0.1

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