Thank you, V and Mel, appreciate your thoughts
Barry, my friend, trust me, am hanging on, to stupid to let go, lol.
Nah, you didn't offend me or upset me. There's a difference between "Doctor Bashing" and giving a sound suggestions, big difference. I am human like the rest of you all, there are times that I am on edge and in pain, and other times I am doing ok, so I am sure it reflects on my answers here.
The "nerve spared" store was blown way out of reality. It was originally suppose to be a non-spared surgery from the start, even going into the OR, that was the plan. When they ran into complications on the right side, due to "a very deep and narrow prostate" bed the surgeon had to leave the right bundle alone, as it, and noted on the surgery report that it appeared damage. As it were, all the cancer was on the left side, as suspected. The right side bundle was assumed non-working. When he was first asked (and this guy does dozens and dozens of opers a month, he replied that it was a non sparing, as that what was written going into surgery. While I was still in the hospital, and when I spoke to him in person, the correct answer was told. I don't see any big deal in that, certainly doesn't make him a lesser surgeon.
When you study chronic strictures, and the procedure to cure them or relieve them, its all about
painful things. Blocked up bladders, urethra's that are closed or narrowed, a bladder neck that's not working right, etc. The very nature of the problem is pain. The procedures are all painful in that area, no fun on a good day having a scope shoved up your penis. So again, I am not a blame person, its not this doctor or any other doctors fault that I have this over-scarring problem, and that strictures keep happening. They know it hurts, and they work the best they can with me on the pain part.
Right now, its just a minor (guess I should have never mentioned it) diff of opinion with my dr. He wants to force a larger cath up me, to see if it will help stretch the
opening a bit more, and if he wanted to do that, should have done it last week when he had me put under. I am just saying, I am not going through all that pain in a radiation damaged area with just a "local". Been there, done that, its not going to work without a lot of pain. So he has changed the plan to just include some existing healing time on this foley catheter, so it was more of a compromise.
I appreciate Sonny's gesture from the past, and assuming that it was a literal offer, was really nice of him. But we each have to make out own choices with our journeys. I listen to all the advice I get here, and filter it like I do any other source of info. Just because I don't follow what someone wants me to do, doesn't make me stupid or non-compliant. There are so many factors in any of our decisions that are not discussed or shared here.
Finally, it was the salvage radiation that has done so much long term damage to me, nothing my doctor did. I knew it was going to be bad going into it, but it has turned out much worse than I ever imagined. Especially since it has been over 8 months since it ended. I don't see the folks at the radiation clinic following up with me, they zapped me, got the big bucks, and sent me off as damaged goods. Its my own uro/surgeon that has stuck by my all these months, trying to help me with these post radiation issues, that he didnt even cause. Credit should be given there.
David in SC
57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.33rd Biopsy
: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3Open RP:
11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09Path Rpt
: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: July
Latest: 7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped 9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 ,Cath #11 - 21 days, Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19