Not till the 19th - Foley Catheter stays even longer :(

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Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/8/2010 4:10 PM (GMT -6)   
My uro/surgeon's nurse just called me back.  Originally, was going to have the 2nd catheter removed either tommorow, or at the latest, next Monday.  Now that he knows that I won't consent to have him remove it and replace it with an even larger diameter one, he has decided that I need to keep it in place till I meet him a week from Monday, July 19th.  It was a set back I hadn't anticipated.  Having both caths in for nearly a week now has already kept me in lots of severe pain, and the thought of leaving it in another 11 days is beyond my scope right this second.
 
He feels that the effort to re-open the bladder neck needs a chance to work by allowing the foley to keep it open while it attempts to heal.  I can't say I fully agree, as its my bladder neck that has received the lion's share of radiation damage to start with, and the reason I was in so much pain to start with, even before he did last weeks corrective surgery.  I guess he feels the extra days of leaving it in might serve the same purpose of trying to put another larger one in place.  He had hoped to sedate me in his office, and dialate the opening larger for the the larger cath.  The last 2 times we tried that approach in the past, ended up in very painful and traumatic experiences for me, so there's no way I will consent.
 
Somehow I have to find the strength to tough it out till the 19th, and then get that blasted foley out of me.  Got me pretty depressed at the moment, because in reality, its just going to mean more personal restrictions for me, more pain, more meds, etc.  Sorry, turning into a vent again.
 
If push comes to shove, my wife can safely remove the offending catheter at any time, but she would prefer that we at least try to do what the doctor wants to do.  We have come this far.
 
There are times that I honestly feel that there is never going to be an end to all this.  Last year at this time, I was having an emergency dialation done due to another stricture blockage, and here I am a year later with 2 caths in place.  And a whole lot more hurt.
 
David in SC
 
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6949
   Posted 7/8/2010 4:58 PM (GMT -6)   
Can't say I would begrudge you the vent - sounds like it is needed.
I guess the doc is having to focus on the problem, not the whole patient this time, but then if he takes it out and doesn't get the result he (and you) want, then the circle starts again. I accuse them of treating the disease, not the patient, at times, but not sure what the alternative is.

I feel for you.

Paella
Regular Member


Date Joined May 2010
Total Posts : 52
   Posted 7/8/2010 5:02 PM (GMT -6)   
Purg - I'm so sorry to hear this news - can't blame you for venting.  We'll be thinking of you!
 
Paella

SubicSquid
Regular Member


Date Joined Oct 2009
Total Posts : 252
   Posted 7/8/2010 5:25 PM (GMT -6)   
David, vent away. Your serious problems and pain make my peeing on the floor incident seem trivial. Hang in there. Squid.
*Age 63, PSA July 2009 5.66
*Diagnosed July 2009, Biopsy: 2 of 12 cores positive, Gleason 3 + 5 = 8
*MRI and Bone Scan Negative.
*open Surgery October 22, 2009
*Prostate, both nerve bundles, seminal vessels, and lymph nodes removed during surgery.
*Post surgery Biopsy, Gleason 4 + 3; 2 positive margins
*ED - Yes 
*30 day PSA (ultra-sensitive) .07
*90 day PSA (standard) <0.15
*01/10 - bladder neck stricture. opened during cysto exam. Cath #2 in for 5 days.
*03/01 - bladder neck stricture. Dilated during cysto exam. Cath #3 in place.
*03/11 - Bladder neck surgery. Cath #4 in place.
*03/15 - Cath #4 out. Great urine stream. Unfortunately, incontinence back to post surgery level.
*04/14 - Six month PSA .21.
*05/15 - Incontinence basically under control.  99% dry.  Wear pad daily at work "just in case".
*06/10 - Started IGRT.   39 treatments scheduled.
 


Jake T
Regular Member


Date Joined Mar 2009
Total Posts : 44
   Posted 7/8/2010 5:36 PM (GMT -6)   
Hey David, i can't believe what you are going through, take those meds and good luck on the 19th, i am sure everyone is praying for a good report. Stay positive, all the best, Jake

Age 56 > DRE 12/22/08 > PSA 3.4 on Jan 09 > PSA 3.8 on Feb 09 > Biopsy 3/9/09 3 out of 12 positive > Gleason 7 > cat scan neg > divinci robotic surgery 4/23/09 at Mount Sinai NY > Dr. Samadi > Chief Division of Robotics > both nerves spared > margins and nodes clear > catheter out 4/30/09 > 6th week post surgery PSA on 6/09/09 0.01 >  started bio feedback  for incontinence 8/23/09    1-pad a day>1 at night>  recovered from ED about 75% without meds.  PSA on 9/22/09  0.01 >PSA on 12/09 0.01> PSA on 3/2010  0.04  >>>incontinence went from leaking every day for 14 months to 100% dry  

 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/8/2010 6:24 PM (GMT -6)   
Thank you guys. Just another of many setbacks, should be use to them by now. There's never any easy path in my PC journey always has to be an unpleasant twist to deal with. In reality, nothing I can do but tough it out and sit tight (easier said then done).

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19


In This Together Wife
Regular Member


Date Joined Dec 2009
Total Posts : 135
   Posted 7/8/2010 7:05 PM (GMT -6)   
David,
Thankful that you have this forum gentle *hugs*
CareBear
(Bear's stats) Age 49
 8-4-09    Family Practioner for back pain  PSA 4.9
8-20-09  Consult with urologist                PSA 4.89
9-2-09    Biopsy          3 cores positive 7% 3+3 (6) gleason
11-13-09 DaVinci
11-23-09 Cath removed  Path report cancer contained neg. margins
 2-22-10  PSA 0.01 !!!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/8/2010 8:02 PM (GMT -6)   
thanks, carebear. my best to your bear
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19


vam4710
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 7/8/2010 9:57 PM (GMT -6)   
Dave... I'm truly sorry for what your going through. Here I am lamenting about my first day home and the fact that you have all this on your plate, and still have time and strength to answer posts and help others truly speaks volumes of your charactor! I commend you and wish you the very best..... my prayers are with you!

V
Diagnosis June 1, 2010 @ age 50
PSA 2.75 (April 2010)  - 2.14  (Sept. 2009) - 1.7 (Sept 2008)
Biopsy May 25, 2010
1 of 12 cores positive;  Gleason 3+4 = 7  25%;   Stage T1c
June 4, 2010
CT and Bone scan - All Negative
 
Da Vinci Surgery  7-7-2010


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7205
   Posted 7/8/2010 10:48 PM (GMT -6)   
My best to you, David.
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week). As of 6/22/10, I would say I am 100% continent, but I do have (controllable) significant urgency.

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.

Second post-op PSA on 6/21/10--0.02--Not too bad!


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/9/2010 12:48 AM (GMT -6)   
Hang in there, Mr. David.

We're rooting for you!

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
3/'10 <0.04; Latest PSA 6/'10 <0.01


Tudpock18
Forum Moderator


Date Joined Sep 2008
Total Posts : 4156
   Posted 7/9/2010 5:41 AM (GMT -6)   
Dear David:
 
OMG, I can only imagine the suffering you have gone through over the past couple of years and am so sorry for what has happened to you.  Forgive the analogy, but your threads are starting to sound like the movie "Groundhog Day" where events are destined to be repeated over and over for years without end.
 
I'm gonna bring up an old chestnut and hope it doesn't offend you...you jumped on Mel pretty good a couple of weeks ago for a similiar thought.  I know you have a lot of faith in your current doctor who understands your case, has consulted with "experts" and has shown you a lot of compassion.  But when reading your latest post I recall that this was also the man who didn't know whether he spared nerves or not, who has caused you a lot of pain during procedures and whose judgement you are now questioning as you are not following the advice he is recommending.
 
I'm not trying to bash your doctor but for the life of me I can't understand why you don't high tail it to Duke or Atlanta and get a face-to-face opinion on your case from another doc.  I'm sure the expert advice your physician is getting is good but, IMHO, nothing compares to direct examination and interaction where it becomes personal and hands on.  Maybe your situation is above your current doctor's pay grade...
 
Feel free to tell me to mind my own business and I will...but know that my suggestion is really just out of concern for you.  I know others on this forum feel the same way...remember Sonny wanted to drive you to a specialist at one time.  Anyway, I hope you will accept this thought in the spirit in which it is given.
 
Tudpock (Jim)
Age 62, Gleason 3 + 4 = 7, T1C, PSA 4.2, 2 of 16 cores cancerous, 27cc
Brachytherapy December 9, 2008.  73 Iodine-125 seeds.  Procedure went great, catheter out before I went home, only minor discomfort.  Regular activities resumed, everything continues to function normally as of 4/10/10.  6 month PSA 1.4 and now 1 year PSA at 1.0.  My docs are "delighted"!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/9/2010 10:38 AM (GMT -6)   
Thank you, V and Mel, appreciate your thoughts

Barry, my friend, trust me, am hanging on, to stupid to let go, lol.

Tud,

Nah, you didn't offend me or upset me. There's a difference between "Doctor Bashing" and giving a sound suggestions, big difference. I am human like the rest of you all, there are times that I am on edge and in pain, and other times I am doing ok, so I am sure it reflects on my answers here.

The "nerve spared" store was blown way out of reality. It was originally suppose to be a non-spared surgery from the start, even going into the OR, that was the plan. When they ran into complications on the right side, due to "a very deep and narrow prostate" bed the surgeon had to leave the right bundle alone, as it, and noted on the surgery report that it appeared damage. As it were, all the cancer was on the left side, as suspected. The right side bundle was assumed non-working. When he was first asked (and this guy does dozens and dozens of opers a month, he replied that it was a non sparing, as that what was written going into surgery. While I was still in the hospital, and when I spoke to him in person, the correct answer was told. I don't see any big deal in that, certainly doesn't make him a lesser surgeon.

When you study chronic strictures, and the procedure to cure them or relieve them, its all about painful things. Blocked up bladders, urethra's that are closed or narrowed, a bladder neck that's not working right, etc. The very nature of the problem is pain. The procedures are all painful in that area, no fun on a good day having a scope shoved up your penis. So again, I am not a blame person, its not this doctor or any other doctors fault that I have this over-scarring problem, and that strictures keep happening. They know it hurts, and they work the best they can with me on the pain part.

Right now, its just a minor (guess I should have never mentioned it) diff of opinion with my dr. He wants to force a larger cath up me, to see if it will help stretch the opening a bit more, and if he wanted to do that, should have done it last week when he had me put under. I am just saying, I am not going through all that pain in a radiation damaged area with just a "local". Been there, done that, its not going to work without a lot of pain. So he has changed the plan to just include some existing healing time on this foley catheter, so it was more of a compromise.

I appreciate Sonny's gesture from the past, and assuming that it was a literal offer, was really nice of him. But we each have to make out own choices with our journeys. I listen to all the advice I get here, and filter it like I do any other source of info. Just because I don't follow what someone wants me to do, doesn't make me stupid or non-compliant. There are so many factors in any of our decisions that are not discussed or shared here.

Finally, it was the salvage radiation that has done so much long term damage to me, nothing my doctor did. I knew it was going to be bad going into it, but it has turned out much worse than I ever imagined. Especially since it has been over 8 months since it ended. I don't see the folks at the radiation clinic following up with me, they zapped me, got the big bucks, and sent me off as damaged goods. Its my own uro/surgeon that has stuck by my all these months, trying to help me with these post radiation issues, that he didnt even cause. Credit should be given there.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19


Squirm
Veteran Member


Date Joined Sep 2008
Total Posts : 744
   Posted 7/9/2010 3:44 PM (GMT -6)   
Hi David,
I hope you will be able to someday put this behind you. Once day at a time in the meantime, although I'm sure you're tired of hearing that. I just hope that in the end, whatever surgery or corrective procedure you have that helps, you will be able to look back and say you're glad it's over and life is much much better without all those catheters and pain.

I still don't understand the radiation oncologist treating you on an empty bladder. Would have a full bladder it made a difference? Who knows, but I just hope you get past these ongoing issues.

Here's to hoping for another drop in your PSA at your next test, if I don't write before then.

Take care!!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/9/2010 4:52 PM (GMT -6)   
Thank you Squirm, the empty vs the full bladder will always be a point of contention now with me. I trusted the radiation oncologist on that subject. Perhaps I will never know.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19


Ziggy9
Veteran Member


Date Joined Jul 2008
Total Posts : 981
   Posted 7/9/2010 4:57 PM (GMT -6)   
You just can't catch a break, can ya? Hopefully this will turn around soon. I admire your temperament I'd be after blood by now with your doctors, for you have more patience than I do. Good luck.

Gleason7
Regular Member


Date Joined Feb 2010
Total Posts : 111
   Posted 7/9/2010 5:42 PM (GMT -6)   
Hang in there Purg as you have a couple things going for you others do not (incontinence and ED not a problem) plus ounce you get the urethra bladder connection fixed your numbers look pretty darn good!

74 - Gleason 3+4=7 -- 2 0f 12 positive @ 30% and 70% -- 106 gram whopper -- Vatikutti DiVinci @ Henry Ford 2/10/10 Dr. Peabody -- Two month PSA undetectable -- Five month PSA undetectable -- pads for two months -- dribbles with heavy lifting, sneezes etc. but I have time to make it to restrooms without leaks.

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 7/9/2010 6:02 PM (GMT -6)   
David,
You have every right to vent and be mad at all that you are going through. I hope that you will have good news on the 19th that will make it all worth while.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/9/2010 6:40 PM (GMT -6)   
Thank you, Gleason and EdC. I am thankful for the good parts, trust me.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19


Franchot
Regular Member


Date Joined Jun 2009
Total Posts : 130
   Posted 7/10/2010 1:22 AM (GMT -6)   
It's disheartening reading everything that you've gone through up to this point. I've followed your journey as you posted it and as soon as you're over one hurdle another one crops up. You are WAY over due for some positives to come your way. I'm hoping that this is the last hurdle you have to face. No. I'm POSITIVE it will be!
Age: 54 6' 0" Weight: 176 Caucasian

Rising PSA over the last six years (from when I started being tested) from 3.9 to 5.2 to 4.6 to 4.5 to 4.9 to 3.9.

Free PSA: .71 % Free PSA: 18.2%

DX with PC in January 2009 after biopsy. Bone scan--negative

Consulted Cedars-Sinai Beverly Hills urologist--recommended surgery
Consulted Cedars-Sinai Beverly Hills radiologist--recommended IMRT
Consulted San Diego Cyber-Blade doctor--recommended treatments
Consulted Long Beach radiologist--recommended IGRT
Consulted Loma Linda radiologist--recommended Hypo-fractionated Proton treatments

Insurance approved any treatment I wanted.

Consulted Marnia del Rey urologist Dr. Scholz.
Dr. Scholz referred me to Dr. Bahn for a Color Doppler test.
Scholz and Bahn recommended Active Surveillance, some diet changes, and steady exercise.

I am currently on Active Surveillance.


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/10/2010 9:31 AM (GMT -6)   
Franchot, thanks you, you have ordered it to get better, so it must :)

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Saturday Morning Update

Yesterday I did too much, I guess. My youngest chauffered me around in my car. Even a week later, I still don't feel comfortable driving, and the hard leather seats in my car do little to help that sore feeling. He helped me run some overdue errands and a visit to my Mother's house, where my son did some handywork for his Grandmother. We were gone about 3 1/2 , and I purposely wasn't on pain meds. By the time we go me home, I was just edgy aching old man, and had to take a full load of meds.

The past 3 nights, I go through a period of hurt around 1-3 in the morning. Not sure why, as usually I am asleep then. But I will lie there, medicated fully, and just have so much penile, rectal, and even hip pains. Eventually it fades and I get to sleep late.

Wish I was seeing my dr this Monday, but instead, have to endure this horrible 2nd cath over another full week. Going to be a long 12 days. It will be a miracle that I dont have this cath removed long before that time. We will see.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19

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