Pain & side effects after prostatectomy

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Igor
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 7/11/2010 4:52 AM (GMT -6)   
I had my prostatecomy on June 14th, about 4 weeks ago.  I went back to work last week for three days.  I am quite tired and have pain in several places.  I wonder if others are experiencing similar results after a robotic prostatectomy.
 
My worst pain is in my foot, ankle calf area.  There is no swelling so the nurse ruled out a blood clot.  I also have some pain when I try to stand in my stomach region.  Pain also continues in my left hand where the IV line was. 
 
My incontinence continues however it has improved the more I do the Kegels.  I had ED before the surgery and used Levitra.  I tried taking a daily dose but stopped it because it may have contributed to an arrythmia I had last week.
 
Any comments would be helpful.
 
Thanks,
 
Igor
 
60 years old
Gleason 3+4=7
PSA 4.3 before surgery,  awaiting blood test on June 26th
 

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 7/11/2010 7:12 AM (GMT -6)   
Igor the tiredness is something that most of us can relate to and most of us also had a certain level of pain, although not everyone. My only pain in the lower extremeties felt like a blot clot but it only lasted a couple of weeks, so not really sure what that was about. Pain in the stomach area for sure and I still have some discomfort there. Your hand problems should clear up if indeed it was caused by the IV line.
 
Sounds like there are some good things going for you as in the incontinence department. Get with your Doc about the ED med to make sure it wont cause any heart problems. Most everything else should pass with  time and keep us posted on your pathology report.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Igor
New Member


Date Joined Jul 2010
Total Posts : 10
   Posted 7/11/2010 11:06 AM (GMT -6)   
Michael:

Thanks for your comments. I received my pathology report recently and the tumor was confined to the prostate. The bladder neck, surgical margins, seminal vesicles and the lymph nodes were free of tumor. I will see the doctor in 2 weeks when I have my 6 week PSA test and will ask about the Levitra and arrythmia connection.

I would be interested to know if the pain you have in your stomach area prevents you from exercising or other activities? When was your surgery?

Sincerely,

Igor

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 7/11/2010 11:27 AM (GMT -6)   
Hi Igor,
 
You are only about 4 weeks out from MAJOR INVASIVE surgery and you went back to work!? I don't know how much physical effort is involved in you job, but you should be taking it very easy for several more weeks and do very little physical activity except for lots of walking and some kegels. I was told by my Dr. not  to lift anything heavier than 5 lbs for several weeks after surgery. The tiredness after surgery seams very common and is the effect of the body trying to heald. I hope you didn't do anything to strenuous and interfered with healing process. Just take it easy and give your body a chance to heal. The initial report of your surgery seams very promising and I hope that your first PSA test will be a big zero.
All the best to you.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


ivyagogo
Regular Member


Date Joined Jul 2010
Total Posts : 21
   Posted 7/11/2010 3:01 PM (GMT -6)   
This sounds a lot like what my husband is going through. He is 7 weeks out now and has been having back/hip/leg pains. His urologist said it was nerve endings, but we might do a cat scan next week just to make sure everything is okay.

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 7/11/2010 5:29 PM (GMT -6)   
Igor,
My surgery was in May of 09. it took me awhile to figure out how to add all that info to my signature, which is below our comments. Stomach problems now are likely problems with nerve damage but shortly after surgery it was probably due to gas build up from everything pumped into me at the time of surgery. Avoid constipation and use stool softeners if you are having problems with bowel movements. Keep us posted on your PSA.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/11/2010 6:19 PM (GMT -6)   
Igor,
I sincerely wish the pains you feel will abate soon, you are still so soon from having major surgery. I was surprised and amazed that you were able to go back to your job so fast. It's real important that you follow your surgeon's post orders to the "T" during the critical first couple of months after surgery. Most of what you describe should improve on its own, over time. Good luck in your recovery.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, 7/2 - Caths #18 & #19


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2215
   Posted 7/12/2010 7:15 AM (GMT -6)   
Igor

Yes, I'm surprised you are back at work so soon. The robot only leaves little scars on the outside, but it is major surgery on the inside.
I was told that after a RALP the earliest an employer in Holland is allowed to expect you back at work is three months after surgery. Not much help for the self-emplyed I know, or for those like me whose work is at home, but then again it depends on how much physical effort the work entails.
The effect of abdominal surgery on abdominal muscles etc should not be underestimated. On the other hand, while work is not exercise as such, there is that delicate balance to be achieved between not doing the wrong type of exercise and doing just the right amount of the right exercise to bring about speedier recovery: the right gentle exercise may help deal with some of the aches one gets after surgery.

Alf
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking of urine
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc. but...
Nov 17th 2009 PSA = 0.1
Can still get erections okay, and almost no leaking of urine, but since December 2009 I don't have orgasms, instead I just have intense pain in place where prostate used to be.
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
April 13th 2010 CT scan.
April 28th 2010 Started Radiation Therapy (66Gy - 33 sessions)
June 11th 2010 finished RT - main side effect tiredness, but also the occasional small leak
June 27th My 50th Birthday - feeling better but still not 100% okay


ivyagogo
Regular Member


Date Joined Jul 2010
Total Posts : 21
   Posted 7/23/2010 10:15 AM (GMT -6)   
Turns out the pain my husband was having was Lyme Disease! On top of everything else. Thankfully, the medications have completely taken away his symptoms and he is on the road back to recovery (again). In fact, he went to the gym for the first time today.

Woodworker
Regular Member


Date Joined Apr 2010
Total Posts : 90
   Posted 7/23/2010 2:10 PM (GMT -6)   
I think the pain after surgery is a very individual thing. I did have some abdominal pain, however it was minimal. The worse part of the whole experience for me was the gas that they pump into you. The next worse part was the catheter. It caused me a lot of pain for the last three days I had it.

The typical routine for me my first week after surgery was to:

Get up and have breakfast and watch about 30 minutes news.
Take a nap
Get up and have a cup of coffee and watch about 20-30 minutes of tv.
Take a nap
Get up and have lunch
Take a nap
Get up have something to drink talk with wife or watch tv for about 30 minutes
Take a nap
Get up for about an hour for dinner
Take a nap
Get up for about 30 minutes
Take my meds and go to bed for the night.

The second week a I stayed up longer between naps.

I went back to work begining of the third week. The first two days were 6 hour days, the third one was a 7 hour day and after that I am back to full 8 hour days.
The most strenous thing I do is pick up a coffee cup and a telephone hand set.

Seriously, I did nothing but sleep for two weeks, I think that is one of the reasons my recovery has gone so well. My wife claims I look better now than I did before the surgery.

I would not push anything faster than what the body can handle. That is one lesson I have learned the hard way a long time ago.
_________________________________________
Age : 56
Diagnosed 3/29/2010
Pre-Surgery
Placed on 5mg Cialis daily on 6/2/2010
Started pre-operative physical therapy on 6/2/2010
PSA 2.7; Gleasen (3+4) Biopsy 2 cores of 12 25% positive
 
DaVinci surgery 6/25/2010
 
Post Surgery
    Final Biopsy report
   5 slides of 35 showed 2% positive for cancer
   Clear Margins
   Final Gleason (3+4)
Incontinence:  None
ED:  Still dead as a door knob
        Still taking 5mg Cialis Daily


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 7/23/2010 6:49 PM (GMT -6)   
Good to hear your husbands on the mend Ivy and back at the gym.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1404
   Posted 7/24/2010 7:08 AM (GMT -6)   

Oh my goodness, Ivy!  Good to hear that your husband is on the mend and starting back in the gym.

Woodworker, I looked at your schedule and didn't see any walking times on it.  Isn't walking suggested?  I am taking notes here!

Aimzee

 


Husband Ron, age 63
Had Progesterone shots for 6 months.  January PSA was .05. 
4/1/10 PSA 5.5  Prostate size = 50 cc.
On Cipro (antibiotic) for 16 days
Bone Scan/CT Negative
Biopsy 4/20/10  12 samples... Adenocarcinoma:  3 positive on right side,
one core left base (5% ` 0.5 mm) -  two cores of left lateral mid
(20% ~ 2mm, 10%, 10% ~ 1mm) - No Perineural Invasion
Gleason 6 (3+3)
The surgery has been postponed twice.
August 18, 2010 - da Vinci Prostatectomy
 
(I do the posting for both of us.)


Woodworker
Regular Member


Date Joined Apr 2010
Total Posts : 90
   Posted 7/26/2010 1:29 PM (GMT -6)   
Aimzee

I have been walking. Actually, I enjoy it. I have also been working in our vegetable garden quite a bit and helping the wife can vegetables. Just no lifting over 10 lbs.
_________________________________________
Age : 56
Diagnosed 3/29/2010
Pre-Surgery
Placed on 5mg Cialis daily on 6/2/2010
Started pre-operative physical therapy on 6/2/2010
PSA 2.7; Gleasen (3+4) Biopsy 2 cores of 12 25% positive
 
DaVinci surgery 6/25/2010
 
Returned to work: 7/12/2010
 
Post Surgery
    Final Biopsy report
   5 slides of 35 showed 2% positive for cancer
   Clear Margins
   Final Gleason (3+4)
Incontinence:  None
ED:  Still dead as a door knob
        Still taking 5mg Cialis Daily
 
 


Woodworker
Regular Member


Date Joined Apr 2010
Total Posts : 90
   Posted 7/26/2010 1:31 PM (GMT -6)   
Aimzee


I didn't clarify very well in my last posting. My schedule did include mostly sleep with a little walking the first week. The second week the walking was kicked up quite a bit. The third week, I walk about 30 minutes a day as well as the gardening 2-3 times a week.
_________________________________________
Age : 56
Diagnosed 3/29/2010
Pre-Surgery
Placed on 5mg Cialis daily on 6/2/2010
Started pre-operative physical therapy on 6/2/2010
PSA 2.7; Gleasen (3+4) Biopsy 2 cores of 12 25% positive
 
DaVinci surgery 6/25/2010
 
Returned to work: 7/12/2010
 
Post Surgery
    Final Biopsy report
   5 slides of 35 showed 2% positive for cancer
   Clear Margins
   Final Gleason (3+4)
Incontinence:  None
ED:  Still dead as a door knob
        Still taking 5mg Cialis Daily
 
 


Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1404
   Posted 7/29/2010 2:33 AM (GMT -6)   
May you continue to improve with each passing day!

Husband Ron, age 63
Had Progesterone shots for 6 months.  January PSA was .05. 
4/1/10 PSA 5.5  Prostate size = 50 cc.
On Cipro (antibiotic) for 16 days
Bone Scan/CT Negative
Biopsy 4/20/10  12 samples... Adenocarcinoma:  3 positive on right side,
one core left base (5% ` 0.5 mm) -  two cores of left lateral mid
(20% ~ 2mm, 10%, 10% ~ 1mm) - No Perineural Invasion
Gleason 6 (3+3)
The surgery has been postponed twice.
August 18, 2010 - da Vinci Prostatectomy
 
(I do the posting for both of us.)

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