Prostate Cancer "Observations"

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PCADVOCATE&MENTOR
New Member


Date Joined Jul 2008
Total Posts : 8
   Posted 7/11/2010 8:25 PM (GMT -6)   

John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4188
   Posted 7/12/2010 1:46 AM (GMT -6)   
Chuck,
I'm glad you posted to the site; you will be very welcome and valuable especally in the aeras of diagonostics and Hormone therapy. I have enjoyed your posts and recognize your vast knowledge knowledge on other sites.
JohnT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2211
   Posted 7/12/2010 2:59 AM (GMT -6)   
Chuck
An excellent collection of information and comments from what I've had time to read so far.

Alfred
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking of urine
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc. but...
Nov 17th 2009 PSA = 0.1
Can still get erections okay, and almost no leaking of urine, but since December 2009 I don't have orgasms, instead I just have intense pain in place where prostate used to be.
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
April 13th 2010 CT scan.
April 28th 2010 Started Radiation Therapy (66Gy - 33 sessions)
June 11th 2010 finished RT - main side effect tiredness, but also the occasional small leak
June 27th My 50th Birthday - feeling better but still not 100% okay


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 7/12/2010 5:26 AM (GMT -6)   
Ustoo is a good advocacy group for patients, you can find local chapters and go to meetings, all good. I closely read the info on the estradiol patches, estrogenic useage....exactly what I have been mentioning to some people and my experience with it, refreshing to see it posted on UStoo which is not run by doctors.

At first I thought this was coming from Ralph Valle,(I see it is chas Maack), both of you have been around this dragon longer than most of us and have alot of experience in patients cases and scenarios, an education you cannot buy.  Is Ralph with UsToo in Arizona still?  I know he used to post on forums and such?
 
www.ustoo.org  to checkout their website.


Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 7/12/2010 1:17:49 PM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/12/2010 10:13 AM (GMT -6)   
Thanks for the link, Chuck.
Good to see you again. If you are headed back to PCRI this year, I may see you there again. We can fight over lunch...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/12/2010 10:28 AM (GMT -6)   
Bob,
Ralph is around and kicking in UsTOO is AZ. If interested I have his contact information...He's another PCRI faithful that will likely be in LA in a few months.

Tony


Disease:
Advanced Prostate Cancer at age 44 (I am 47 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino


PCADVOCATE&MENTOR
New Member


Date Joined Jul 2008
Total Posts : 8
   Posted 7/12/2010 10:40 AM (GMT -6)   
Thanks to all of you for your responses to my post. I hope that the many subjects available when opening the URL provided will address issues you may be experiencing. For John T., it appears you are in good hands with Mark Scholz, and I expect the CDU was performed by Duke Bahn. I would recommend dutasteride/Avodart during your coming "time off" from ADT to hopefully prolong that time off. Maintaining with this medication has resulted in my current second "time off" lasting nearing six years. To other friends, sorry, I won't be attending the PCRI conference this year. Not financially able this year. For any invited to the coming next March CDMRP IMPaCT (Innovative Minds in Prostate Cancer Today) conference in Orlando, I'll be there in look forward to meeting or seeing you again.
Chuck
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