Hello all, first post here.
Although I'm not a prostate cancer patient, I am here to report how this place helped me to get some great information about
the AMS 800. I'm going to have mine implanted next Wednesday...
I'm 47 years old, I live in Brazil, and I have spina bifida, and I've been dealing with incontinence since... day 1. I never tried any radical procedures like these external deviations, etc., and I've never did catheterization either. The incontinence is severe. Infections are kind of recurrent, but under control. Fortunately, my kidneys are safe. Until the age of 10, I used diapers only, then I started using one of these bag systems, not actually with a condom/catheter but very similar, a different model but with the same concept. Tried a Cunningham clamp as well, it failed and I really don't recommend it to anyone.
I have this urologist that was my doctor for about
35 years, and he never told me about
the AMS in details. Some 10-15 years ago, he said that there was something that could help me but it was still "being developed" and never went into further details, and he briefly talked about
it again around 8 years ago, and he also talked about
the sling. As I'm currently healthy in the urinary aspect, I don't visit him that often anymore so I never bothered to ask him again about
it and as my incontinence is kind of "manageable" the way it is now (hopefully I can say the way it WAS very soon!), I didn't care much either. Around a year or so ago, I decided to make some research on incontinence and found about
the AMS, and saw that not only it seems to be very effective, but it existed since 30 years ago... again I went to this same doctor and now with the idea of have it implanted (the company that made my leg bags is out of business so I'm a bit lost with options), but he was again not very interested and even said that I'm "very close to a normal person".. but I'm NOT normal!...
With the help of another doctor, I found this specialist that was really interested in my case and he will do it. It's an expensive procedure, but from all I've read in here, it's the ultimate solution.
I'm very confident and calm (I've been through a lot of more complicated procedures than this), although a little anxious, kind of a teen waiting to be 18 years old so she can have her breast implants
... for me the worst of this will be this 4-6 weeks waiting (but I've waited for this for 47 years anyway), and hopefully it will really change my life. The way I think about
its success rate is like... if you all that were once completely normal and continent, after implanting the device feel that you are almost like normal again (or like normal for some), I can be very pleased and happy with the results, even if not exactly 100%. I used to think that if I get something around 60% continence I'd be quite happy (at night for example I could use diapers, no problem) but the success rates I've been reading here are extremely higher than that, and I'm very confident. My doctor also said that he never had a failure episode before (even with a very few erosion episodes he was able to fix it, adding another cuff or something), so this gave me even more confidence. It's not a very cheap procedure (I don't have insurance...), so I was afraid to spend a lot on this only to have it removed a couple months later, but it won't happen, it seems...
Enough talking, now onto the waiting... I'll keep you informed.