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Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 7/12/2010 2:48 PM (GMT -6)   
Came back as undetectable-----grateful for hitting another checkpoint. Have discovered that my zinc, Vitamin D (which is a hormone and not a vitamin--who knew?) and ferritin/iron are all low. Working with my doctor and a compounding pharmicist to address these. Also saw my local uro today who has relaxed his stance on testosterone supplementation, but would like to see where I get with enhanced numbers on the other stuff and how it affects T before we enter the T supplementation zone---------I'll be reporting on my progress on this, because I think a lot of us don't know that these things can have an impact on how we feel in several areas; I didn't anyway until lately. ---but for today, I'm raising my glass!
 
Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 7/12/2010 3:07 PM (GMT -6)   
Hi Arnie,
 
Congratulations on your good PSA test result. May you have many more of those good results. Hopefully you will be able to restore all those low levels with diet adjustments and some supplements.
All the best to you.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 sessions - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09=<0.04; JAN 10=<0.04


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 7/12/2010 3:11 PM (GMT -6)   
Thanks, Mags.......I'm hopeful. My iron was rediculously low, for a man. I don't eat red meat, and when I looked at my multi-vitamin, there was no iron in it. So I really don't have a big source. I'll be letting everybody know, since I can't help much on some of the other fronts.
 
Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1
18 month PSA--<0.1


LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 7/12/2010 4:02 PM (GMT -6)   
Congrats Arnie...I will tip the glass with ya

Didn't know about the Vitamin D either...although I will admit it reminded me of the old I Love Lucy with the "Vitameatavegamin girl" episode.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009     .06
                   6 month Apr 2009     .06
                   9 month Jul  2009     .08
                 12 month Oct 2009     .09 
                 18 month April 2010   .19


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 345
   Posted 7/12/2010 5:25 PM (GMT -6)   
Well done mate, and many more of them.
Cheers
Mike
Age 52
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report gleason 3+4 = 7 (yukk)
clear margins

post op psa 22/12/09   0.04
                    09/04/10 <0.03
                    09/07/10 <0.03

no incontinence after 7 days
total ed, good erection using the pump

 


jacknoon
Regular Member


Date Joined Sep 2009
Total Posts : 27
   Posted 7/12/2010 5:52 PM (GMT -6)   
YOUR iron levels can be fixed with a daily low dose Iron pill....

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6945
   Posted 7/12/2010 7:06 PM (GMT -6)   
Undetectable is great! My best wishes to you - do that again!

Burlcodad
Regular Member


Date Joined Nov 2009
Total Posts : 254
   Posted 7/13/2010 11:27 AM (GMT -6)   

Great news-

 

Ray


Diagnosed 9/09 at age 54  
PSA 6/09 1.3 
Stage 2b (biopsy done because of firmness felt on right side) 3 positive cores out of 12 (all less than 25%) Gleason 6
 
Surgery  1/13/10 at UP- Penn Presbyterian - Dr David Lee. Home 1/14/10 Nerves spared on both sides -Catheter removed 1/19/10  Path report scheduled for 2/11/10
 
Post OP Pathology Report Gleason score was upgraded to 7 (3+4)
no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, gland involvement 2-10%
 
Since report was good and recovery going well next appt is now  the first psa test appt scheduled for 4/22
 
POST OP PSA   4/10 <0.1,
 
Incontinence - Initial 6 pads a day, 3 Weeks - 3 pads a day relatively dry at night , 3 Months mostly dry 0-1 pad per day
 
ED - yes but seeing some improvements - levitra 10 mg 2x week 3 months  100 mg almost daily
 
 
 


vam4710
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 7/13/2010 11:36 AM (GMT -6)   
Congrat Arnie!!! And many more!
Diagnosis June 1, 2010 @ age 50
PSA  1.7-  Sept 2008
PSA  2.14 Sept. 2009
PSA  2.75 April 2010
Biopsy - May 25, 2010
1 of 12 cores positive;  Gleason 3+4 = 7  25%;   Stage T1c
June 4, 2010
CT and Bone scan - All Negative
Da Vinci Surgery  7-7-2010
PATHOLOGY TBA
 
Northern NJ


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 7/13/2010 7:53 PM (GMT -6)   
Congrats. Great news!
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue


Im_Patient
Veteran Member


Date Joined Aug 2009
Total Posts : 665
   Posted 7/13/2010 10:14 PM (GMT -6)   
Arnie, just a comment from someone who has been there... I had low T and was supplementing to get to normal. Stopped all of that when my recurrence set in. I have come across one study that found that the mean time to recurrence for a fair sized population of post-prostatectomy patients was 23 months. You might want to wait at least to the 2-year mark before considering supplementing (I did say might). Not trying to psyche you out, just cautioning you based on my sample size of one.
Congrats on being in the zero club! May you stay a member always!
Jeff
Gleason, 3+4; PSA, 7.9
Robotic Prostatectomy, March 2008 (Age 48 then), nerves both sides spared, post surgery analysis confirmed 3+4 Gleason,
pT2c, prostate 60.2g, margins: negative; perineural invasion: present; lymphatic invasion: present; 3 lymph nodes removed, clear; seminal vesicle invasion: absent; Gleason 4 comprises 5-10% of carcinoma
PSA consistently <0.1 since surgery until Oct 09: 0.1; retested Oct 09, <0.1,
Jan 10, 0.2
retest Feb 1 confirmed 0.2
CT scan, bone scan Feb 10 both clear
PSA after, 2010: March, 0.17; April, 0.17; May, 0.24; June, 0.31; July, 0.29
Starting salvage IGRT on August 4, plan 72Gy


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 7/14/2010 6:13 AM (GMT -6)   
Hey Jeff......Your point/advice is well-taken, believe me. Since my levels of iron (12---look that value up for a man), zinc and Vit. D-3 are all low, the plan is to bring those 3 up to snuff and see where and what that begets. That won't happen overnight, and should take me to the 2-year mark. At that point, we'll reassess and decide on "to T or not to T"..........I don't think my uro would be willing to even entertain if my path results weren't as good as they are. That said, there is still a risk, and we will factor into the decision. My serum T is in the low 300's and my free % is way low (1.24%)-----my argument is that there is enough T for a PCa cell to latch onto, given that cell saturation of the stuff occurs around 150. I'm in that twilight zone range where I'm not experiencing hot flashes and night sweats, but my other symptoms of no libido, muscle wasting, fatigue are all evident. The hope is that the vit/mineral supplementation will have enough positive effect, systemically, that perhaps we won't have to cross the T bridge----------time will tell.
 
Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1
18 month PSA--<0.1


Opa N
Regular Member


Date Joined Sep 2009
Total Posts : 150
   Posted 7/14/2010 7:08 AM (GMT -6)   
Congratulations on the zero. Very meaningful. I met with my medical oncologist/hematologist on Monday. She is testing me for Vitamin D levels as well. She says that a healthy D level is helpful in preventing metastasis especially in the glands. Who knew? Also, supplementing for 1000-4000 IU of D3 is the way to go.
Roger
Age 67 at diagnosis. Treated for coronary artery disease (CAD) since 1998, and under control with medications.
2/6/09 Routine physical, with DRE and PSA Test. PSA 4.02. Referred to Uro
4/20/09 TRUS w/needle biopsy
4/23/09 Diagnosis PCa with Gleason 4+3 in 2/2 cores, Gleason 3+3 in 5/10 cores.
CT scan and Bone Scan both negative. Stage T2C.
8/27/09 DaVinci RP at WakeMed Cary NC with Dr. Tortora. Discharged 8/28.
9/8/09 Catheder removed. Path post-surgery confirms PCa, with Gleason 3+3 with scattering of 4. Positive margins in L & R posterior, R and L seminal vesicles, with perineural invasion. Stage T3b.
9/30/09 PSA Post-Op <0.01. Met w/Uro/Surgeon to review surgery and path report. Referred to Medical Oncologist and Radiation Oncologist. Appointments set for 10/8.
10/8/09 Met w/ both oncologists. Adjuvant Combination Therapy to begin ASAP.
10/21/09 First Lupron injection. 30 mg dose (4 month)
11/2/09 PSA 2-month <0.01. Cystoscope w/calibration and dilation to remove scar tissue from urethra. Big relief.
12/18/09 psa 4-Month <0.01 undetectable. MRI/CT scan set for 1/5/10 for IMRT planning. RT to begin week of 1/11/10. Anticipate 64-66 grays over 32-33 treatments.
1/14/10 Start RT with 32 treatments # 2 gys per.
2/26/10 IMRT completed.
3/1/10 Second Lupron injection, 30 mg dose (4 month)
5/10/10 PSA 8 month and 2 month post RT <0.01 undetectable

Initial incontinence pretty bad, starting w/6 Depends pants/day. Gradual improvement, with dramatic reduction in leakage around 9/20/09, to 1 pad during the day and 1 at night (for security). Actually totally dry at night. After 1/16/10 down to a female regular pad. Barely felt. 4/30/10 threw pads away. Dry at last.


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 7/14/2010 7:40 AM (GMT -6)   

Thanks, Ralph.........the more I read about Vit. D-3, the more I'm amazed how vital it is, and how the medical community is just waking up to it's far-reaching benefits. Mine was checked about 6 months ago when is was 25----range is 30-100. One 1000 IU supplement per day brought it up to 35. Most studies now indicate that the level should be brought up to the 50-70 range for optimal benefit. I'm about to up my supplementation to bring the level up. I'll keep everybody posted.

Arnie in DE

 


Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1
18 month PSA--<0.1

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