Hi An.. I hope and choice you makes ends up being the right one for you. My Grandfather died of prostate cancer. We only became aware of the potential implications of that after I was diagnosed. We will be sure to be sure that our son doesn't find out the same way. Being about
your husband's age, I can relate to the emotions and concerns that you must be dealing with.
I had Davinci RP 2 months ago. I went to the Rad Onc yesterday as they know there was some cells that had indeed escaped the prostate. This, the 3rd Rad Onc that i've had the benefit of advising me, said the same thing the other two had - Based on pre-op information, RP was the correct decision, and based on post-op pathology (4+3 Gleason insetad of 3+4, pos margins, bladder neck involvement, etc) IF THEY KNEW THEN WHAT WE CAN ONLY KNOW NOW - they would have advised going with radiation instead. That was a surprised to me since the prostate ended up being 75% involved.
As doctor explained to us yesterday, because the dose of radiation they will now suggest I recieve is so similar to the amount they would have given if I still had a prostate, it is like making me go through the whole thing twice - significant surgery AND radiation and the effects that can cause (even if 4-5 years down the road). So to a certain degree, it left me with a touch of "you mean I didn't have to go through all that, all THIS... I didn't have to mess with that erection and leakage issues?".
Dont get me wrong AN, I am not trying to disuade you from your decision.. I simply want to offer my perspective as another 51/52 year old guy in the direct aftermath of what you too have chosen to persue as a the best solution.
Let me throw in a few factors you may want to consider.. some good, some not so:
* My Gleason 7, 3+4 ended up being more aggressive 4+3. I think you will see many sigs here showing gleason higher after full pathology.
* In my case they too thought it was contained.. I had a 4.0 PSA.. yet it wasn't.
* All 3 Radiation Oncologists, none of which even knows the other, basically made it sound like based on MY specifics, that I had a very good chance of living a long long life.. Easy for them to say, no doubt, but certainly each of them didn't see this as a dealth sentence by any measure. Which surprised me based on some things we read in news or in chatrooms like this.
An, it sounds like your husband's status is MUCH better than it could have been.... and while I know it's crazy to suggest that you dont be afraid, I want you to know that, most likely, your doctors will end up explaining to you that you need not be thinking about
how many "years" your husband has to live, but decades.
There are no promises, one size cancer does not fit all, every case is different, but this IS generally a very slow growing cancer. I wish this had been better explained to me right from the start. For what it's worth, I would make the same choice again. I wish you and your family all the best.
First ever PSA test Jan 2010 @ 51 years old. 4.0.
Digital exam in March 2010 showed 1 side hard, other soft.
Biopsy, positive in 3 of 12.
Davinci @ Boston Medical Center, May 17, 2010.
Was suggested prior to it was likely contained.
June 1 advised 3+-4 was really 4+3 per pathology. Pos margins.
Catheter removed June 1.. 1 pad/day, doing ok. ED, but not in rush.
Sore as heck down there, but doing much walking with my wife.
To meet with my Uri (1st meeting since) June 17 - 1 mo point, to discuss.
BMC already has me setup to meet with radiology.
Felling a little better each day. Cant tell if my expectancy just went from 10-15 down to 5-7, the information out there appears to be all over the place. I WILL NOT radiate my insides to the point of being a veg for the sake of a few years. QOL is primary to me. Selfish I guess. I pray for all of you as I do for myself, but must remember that i've had a pretty good 50+ years, and know others who have lost their children to disease.. so I dont have the nerve to complain!