1st I like your signature but it is missing one thing? What stage were you given after surgery? I'll assume pT3a for future reference.
Yes IMRT, and to an extent any radiation than will extend to areas of pelvic bone exposure. Since the study is primarily focussed oh RBRT, I will say for now that I don't know the effects from Brachytherapy and Proton, Cyberknie or Calypso (Sterostatic) radiation. While precise as these methods are, there is still potential bone exposure to radiation. I think this is the key thing to remember...
I seriously doubt any of these RO's have extensive experience with Legg Perthes. I admit to just learning a small bit about
it from your post.
I have no regrets about
my decision to move forward with ADT and IMRT. But then I still have no lingering SE's. I do have a couple men in my UsTOO group that have had just a terrible go of things with ADT and/or EBRT. While rare, incontinence caused by radiation tends to be permanent with no corrective procedures available. These men had been treated oner a decade ago with radiation and I do know that radiation delivery has improved immensely.
Don't expect your RO's to say it, but you should keep researching it. I would ask the specific questions given your history.
1> Does radiation exposure in the bones weaken the bones? (this answer has to be yes, this is a proven fact)
2> Does the damage to bones exposed to radiation have the potential to manifest itself into a more serious condition?
You can mention the Elliott study that was reviewed by Harvard. I am curious if they hesitate to do their own research on it. I had a conversation with my RO about
it, but i really didn't completely understand it. But he did make me feel at ease when he commented about
the rareness of it. The problem was that I was still 44 at the time. i have to live 40 years post radiation. He didn't have that chart, I'm certain...
You've been out of Vegas quite a while. I sold the phone system for the Paris in 1999 while construction was still early...
Peace to you!
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas
Blog : www.caringbridge.org/visit/tonycrispino