New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/14/2010 6:43 PM (GMT -6)   
I am considering adding a new twist to my UsTOO group. The use of a webinar. For those familiar with WebEx, I have been granted use of the Cal-Berkely webinar system for my group. II can have up to 25 participants at no charge. The "no charge" part comes with one exception ~ The audio has to be done with teleconferencing. Again it's free for me to use it, but it isn't a toll-free number. The good news is that most cellphones can call for free. I would like to experiment with an educated class. I will be presenting UsTOO to an oncology group in August. But I'd like to try it sooner. Your privacy is still protected so if you are interested let me know here. I will set one up for next week or so.

Stay tuned...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
LARP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6946
   Posted 7/14/2010 8:18 PM (GMT -6)   
I visit a local USToo group - I'm in.

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7203
   Posted 7/14/2010 10:46 PM (GMT -6)   
I'm interested, depending on specific date/time.
 
Do you have a topic in mind?
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week). As of 6/22/10, I would say I am 100% continent, but I do have (controllable) significant urgency.

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.

Second post-op PSA on 6/21/10--0.02--Not too bad!


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 7/15/2010 9:22 AM (GMT -6)   
Tony
I use Webex quite a bit and have a Verizon phone. If I don't have a meeting I can join in and help exercise the system for you. Ask questions, etc.
Jeff
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 3+4=7, 3+3=6. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day. Try controlling fluids.
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. There must be another issue. Uro mtg 4/23.
5/22/10 10 months: 2 pads per day, 190 ml/day Scope on June 15 Short sphincter
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05, 4/14 9 months - 0.04 and <0.01 with ECLIA.


FLHW(David E)
Regular Member


Date Joined Nov 2007
Total Posts : 201
   Posted 7/18/2010 11:55 AM (GMT -6)   
I'd be interested based on date/time and subject.

Also, based on experience make sure you have a real good speaker phone on your end.
Like a Polycom etc.
Dx'd 2/11/05
PSA 271, bone mets, lymph node involvement
Gleason Score: 7
Been on Lupron since beginning
Was on Casodex, then HDK, the Nilandron
Finished 12 rounds of Taxotere on January 26th
14 radiation treatments in June 2010 for leg/hip pain

Current (6-21-10)
PSA: 108
Treatment: Lupron, Zometa, DES+Cumadin
~~~~~~~~~~~~
Personal Blog:
prostatecancerat42.blogspot.com
Facebook Profile:
www.facebook.com/david.e.emerson


IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/18/2010 9:58 PM (GMT -6)   
Hi Tony,

I know it would take a lot of coordination, but it would be interesting for other USToo groups to call in at the same time. With one computer and an LCD projector serving each USToo in a WebEx session in different cities, we could have a lot of groups join you and watch your webinar at the same time.

Is that something like what you had in mind?

I could contact our group here in Boise.

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
3/'10 <0.04; Latest PSA 6/'10 <0.01

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 18, 2018 7:29 PM (GMT -6)
There are a total of 2,973,021 posts in 326,055 threads.
View Active Threads


Who's Online
This forum has 160879 registered members. Please welcome our newest member, carolynecarolyne.
400 Guest(s), 12 Registered Member(s) are currently online.  Details
Froggy88, SmilingDaisies, SickSalamander, Donjr, opugirl, The Dude Abides, Mercy&Grace, Pratoman, IllinoisMom, Old Mike, CAdogsRus, WV Mike