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Patches
Regular Member


Date Joined Jul 2010
Total Posts : 33
   Posted 7/17/2010 11:11 AM (GMT -6)   
This is my first post and I want to thank all the members for their advice.  I am scheduled for surgery on Wednesday and am at ease with my decision.  Hopefully I can share my experience and offer advice with others.
Age 49 years old with no family history of PCa. but had testicular cancer in 1985.                                                                                                                                                                                                   PSA  on 3-8-10 was a  5.6
PSA re-take on 3-17-2010 was a 4.4
Biopsy collected on 4-17-2010 showed 2 of 12 cores malignant with Gleason scores of 3+3  Stage T1C.
RALP surgery scheduled 7-21-2010 at Hopkins.


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6946
   Posted 7/17/2010 12:22 PM (GMT -6)   
Welcome, and be sure to let us know how things are going. We will be waiting on the "other side" for news.

Again, hate it that you have to be here, but welcome to the crew.
 
(DaVinci 10/09, IGRT 4/10)

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 7/17/2010 12:41 PM (GMT -6)   
Hi Patches and welcome to our little corner of the world. No one wants to be here, but...............
Your initial numbers look very promising for a good outcome. Please visit us often and share your journey with us.
Wishing you all the best and many, many years zero PSA tests.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 days - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09 <0.04; JAN 10 <0.04; Jul 10 <.04


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 7/17/2010 2:34 PM (GMT -6)   
Welcome Patches,
We will look forward to hearing from you after surgery. Glad you posted as we like new blood coming into our world to help freshen it up and to keep us sharp.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


freinds
Regular Member


Date Joined Jun 2010
Total Posts : 76
   Posted 7/17/2010 2:48 PM (GMT -6)   
Patches, Hope all goes will with you. I must say, after is was over and I got the path results is was assuring to think that that gland was out and had been on a table somewhere being disected and analyzed by a set of human eyes. Surgery is the only method that will offer you this.
age 50, diagnosed April 2010
pre-op PSA 3.7
Gleason 6
post op. surgical margins clear
 


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 7/17/2010 3:51 PM (GMT -6)   
Hey Patches
Welcome to HW. While you've got the time, make sure you read the top post : http://www.healingwell.com/community/default.aspx?f=35&m=1717641

It is a compilation of import information gleaned from our collective experiences. They are all well thought out nuggets of gold. (The one about never tucking your shirt in when wearing pee pads came from me.)

Good luck,
Jeff

Oh, almost forgot... Empty that prostate!
Married 34 years, DX Age 56. First routine PSA test on April 8, 09: 17.8. Start 2 weeks of Cipro to rule out protatitis. May '09 PSA: 22.6, 3 weeks later: PSA: 23.2.
Biopsy 6/10/09: 7/12 scores positive, 20%-70%, Gleason 3+4=7, 3+3=6. Bone and C/T scans neg.
RP DaVinci -7/21/2009 @ Univ of Roch Medical Center
Left nerve gone, right partial spared.
Catheter removed - 7/31/2009 Pathology report received:
Gleason 3+4=7, Tumor size: 2.5 x 1.8 cm, location: both lobes and apex.
Extraprostatic extension present; Perineural invasion: present, extensive.
No Malignancy in Seminal Vesicle, vasa deferentia, lymph nodes 0/13
Prostate mass 56 grams. Pathologic Stage: pT3aN0MX
Post Surgery Status:
Potency - 12/11 5 months, Still no activity, zip. Using pump daily since 11/11. No effect with 20 mg of Cialis or 100 mg of Viagra. Shots next See Uro 1/22/10 Trimix #1. Try 0.08- 25%, 0.12-25%, 2/26/10 try 0.16 First Success! 90%.
Incontinence - 8/20 4 full pads per day
.. 9/7 3-4 full pads per day. Try controlling fluids.
12/11/09 5 months: 3 pads per day, 400-450ml/day
02/26/10 7 months: 3 pads but leak is now 320 ml (5 day avg.)
03/22/10 8 months: 3 pads per day, 280 ml/day (5 day avg.) PT says all muscles are tight and working properly. "There must be another issue."
5/22/10 10 months: 2 pads per day, 190 ml/day Scope on June 15 "Short sphincter"
7/15/2010 one year: 2 pads per day. 140 ml/day, dry in bed.
Post Surgery PSA - 9/3 6 weeks - 0.05; 10/13 3 months - 0.04, 1/14 6 months - 0.05,
4/14 9 months - 0.04 (Siemens Centaur) and <0.01 (Roche ECLIA).
7/12 1 year - 0.03 (Siemens Centaur, direct chemilum); <0.01 (Roche Cobas 601 ECLIA)


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 7/17/2010 4:17 PM (GMT -6)   
Patches - wishing you all the best for your upcoming surgery - and here's to a boring recovery - and a long lifetime of zero-PSA readings !!
hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs...
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 7/17/2010 5:09 PM (GMT -6)   
Patches, good luck with your surgery this week. We'll be waiting for you on the other side.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/17/2010 5:24 PM (GMT -6)   
Welcome here, glad you found us, and will be looking for you on the recovery side. Hope all goes well for you.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one:  July
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 still in place


Drums
Regular Member


Date Joined Mar 2010
Total Posts : 134
   Posted 7/18/2010 11:03 AM (GMT -6)   
Best of luck with the surgery. See you on the other side!
Bill
Age 52 at diagnosis, father died of PCa
 
PSA: 10/16/09 - 2.8; 1/11/10 - 3.8
Biopsy 11/25/09, 11 core samples - HG PIN on right side
Biopsy 2/17/10, 11 core samples - left side, adenocarcinoma, Gleason 6, one core at 5%
Notified of dx on 3/12/10 (27th wedding anniversary) via phone by the nurse! (dropped this Uro!)
MRI 3/17/10 and bone scan, 3/23/10, indicate: gland volume is 27mL, PCa is confined to prostate, seminal vesicles and vas deferens are unremarkable.
 
RALP conducted 19 May 2010 by Dr. Lee at U. Penn Presbyterian
Pathology report on 10 Jun 2010: Gleason 6; gland involvement by carcinoma < 2%; tumor in peripheral zone on BOTH sides; no capsular, extracapsular extension, lymph node, or seminal vesical involvement; and no positive margins.
 
Incontinence: first four days after catheter removal - only1-3 pads/day (but urethra was inflammed); 2d week (after inflammation) - 8-10 pads/day (sometimes more!); 3d week - 4-6 pads; 4th and 5th weeks - 3-4 pads; 6th week down to 2 pads. Of course, all this depends on how much I stand and it gets worse later in the day.
 
ED: started the pump the 4th week after the catheter removal. Four sets, twice a day per instructions. Not as fun as it sounded.


tallguy
Regular Member


Date Joined Oct 2009
Total Posts : 417
   Posted 7/18/2010 4:57 PM (GMT -6)   
Patches,
All the best! Already said but read that first post and report back often so others can learn from you and vice versa. May you come out dry and potent.
64  year old male in excellent physical condition.
PSA jumped  3 to 8 in one year
pt2b NO Mx with a Gleason score 3+3=6.
DaVinci RP,  7/23/08. Tumor type: Acinar
size 5.5 cm x 5.7 cm weight: 77 gm.
Incontinence & ED. Dry nights , no control during day.
FUDS and cystourethroscopy testing 10/09.
24 hr pad wt. 219gm. AUA sympton index 13/35=moderate
Virtue sling surgery 2/3/10 NYU med center
Appeared to help but gradually returned to pre surgery condition.
Back to 3-4 pads/day.
Latest PSA 4/1/10 negative.
AMS 800 artificial urinary sphincter implanted 7/8/10 at U of MI.
 


Patches
Regular Member


Date Joined Jul 2010
Total Posts : 33
   Posted 7/18/2010 5:49 PM (GMT -6)   
Thanks everyone for your wishes.  Yes,  I will share my experinces so others maybe encourged and learn from my experiences as I have learned from yours.
Age 49 years old with no family history of PCa. but had testicular cancer in 1985.                                                                                                                                                                                                  
PSA on 3-8-2010 was a 5.6
PSA re-take on 3-17-2010 was a 4.4
Biopsy collected on 4-17-2010 showed 2 of 12 cores malignant with Gleason scores of 3+3  Stage T1C.
RALP surgery scheduled 7-21-2010 at Hopkins.

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