My post-RT data re frequency of urination

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English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2211
   Posted 7/18/2010 4:26 AM (GMT -6)   
Hello to all from a warm rather than hot Holland.

I have previously noted (and posted) data about the times that I peed on a day 10 weeks after surgery (October 2009) and on another 7 months after surgery (Feb 2010.)
Since then I had to have 33 sessions of RT between April 2010 and June 2010, so that seems to be a justification to post some more data as an update.
This data, (My P-log as opposed to Blog) by being recorded is a help when it comes to being able to put a figure on the issue of “Frequency and urgency” rather than just having a vague idea that things have got better or worse.

To recap:

On “measuring day” in October 2009 it was about three weeks after I stopped using pads and I had to pee at the following times
05.15
08.25
09.15 (+BM)
10.00
11.45
11.55
12.29
14.00
16.00
16.02
18.30
19.59
21.45
22.00
24.00
So that was a total of 15 visits. And very few of the visits involved a large quantity of pee.
I also felt like I needed to pee almost the whole time. On three occasions I had also dribbled a little before I made it to the bathroom. And at 11.55 and 16.02 I was obviously having to go back to the bathroom to deal with a bladder that had not emptied properly.
(And that long gap in the afternoon was only because I went to sleep.)


Then on Measuring Day in February 2010 I needed to pee at the following times:
06.25
08.35 (+BM)
10.22
12.32
14.18
16.55
17.59
19.25 (+BM)
21.02
21.45
23.10

I was thus down to only 11 visits. Almost each visit involved what I would describe as a normal volume of pee and I had no dribbles. Also I did not always need to get up in the night.
Feelings of urgency were almost completely absent so that it was only the last 30 to 15 minutes before I had a pee that I was getting annoying sensations. In fact apart from the annoying sensations it was starting to head towards where I had been before surgery.
By February I was having about 10 or 12 BMs per week instead of 7, but was also eating much more wholegrain bread, fruit, vegetables etc.

By July 2010 I was 5 weeks after RT and one year after Surgery, and on “M” day I noted the following pee times.
01.15
03.40
07.40
08.58 + BM
09.00
10.43
11.50
13.05
14.10 + BM
14.20
16.00
17.15
18.45
19.00
20.35
22.00
22.05
23.10

18 bathroom visits in 24 hours looks pretty bad, but I’m treating it as a bench mark from which to aim for improvements, though, in fact, things have already improved from the days at the end of RT (for, although I was too pre-occupied or tired to take notes during RT, I do recall at one point that it was a case of needing to pee every 20-30 minutes almost all day long and that I was getting up as many as 6 times a night And on several days I had to wear pads to avoid accidents when travelling.)

The effect of RT on my BMs was also massive. I was having about 4 BMs a day for several weeks, and they were peculiar BMs to say the least, so being down to two a day seems like a great improvement. However the effect of my BMs on my bladder now seems to be that the muscles/nerves in my pelvic floor take a while to settle down afterwards and so I have to do a very small pee about 5 minutes later. (Something similar happened just before I went to bed and seemed to be the result of running the tap when cleaning my teeth! But I am also very tired in the evenings from the RT.)
The urgency issue is less pleasant, as within about 5 minutes of having had a pee, it starts to feel like I need another one, which translates into feeling like I need a pee for about 90% of my waking hours.

For the record: my fluid intake on all the days concerned, at about 2 litres, was constant: basically for many months I have found it simplest to drink the same drinks at the same times every day.

So what can I conclude? How do I feel about this? Well, given that prior to RT starting I seemed to be getting my bladder and bathroom visits under control, I hope that that is the level to which I will be able to return when the effects of RT settle down.

I hope this data might be helpful to others.

Alfred
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking of urine
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc. but...
Nov 17th 2009 PSA = 0.1
Can still get erections okay, and almost no leaking of urine, but since December 2009 I don't have orgasms, instead I just have intense pain in place where prostate used to be.
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
April 13th 2010 CT scan.
April 28th 2010 Started Radiation Therapy (66Gy - 33 sessions)
June 11th 2010 finished RT - main side effect tiredness, but also the occasional small leak
June 27th My 50th Birthday - feeling better but still not 100% okay


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 7/18/2010 9:46 AM (GMT -6)   
You are a precise kind of guy, that is interesting that you shared this for some others and took diligence to another level in so doing this. Hopefully your side effects will and they should diminish over some more time. How do I find your link again for 'what to expect with surgery' I need to print that off for some other people to read that should know this up front?
Youth is wasted on the Young-(W.C. Fields)


English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2211
   Posted 7/18/2010 10:00 AM (GMT -6)   
Zufus

I don't know about precise, but without writing it down it's just really difficult to notice how much does or does not change. (I'm also planning a bit of a vacation and need to have a better idea of how far I can go between stops)

The list is the sticky thread at the top of the first page or:
www.healingwell.com/community/default.aspx?f=35&m=1717641

Alf

Post Edited (English Alf) : 7/19/2010 12:33:16 AM (GMT-6)


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 7/18/2010 3:03 PM (GMT -6)   
Thanks again and with that kind of homework you had done, should having timing down like nobody else probably even thought about, I guess you can never be over prepared for things. Others might chart similarly to get a better idea on such.
Youth is wasted on the Young-(W.C. Fields)

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