Hello to all from a warm rather than hot Holland.
I have previously noted (and posted) data about the times that I peed on a day 10 weeks after surgery (October 2009) and on another 7 months after surgery (Feb 2010.)
Since then I had to have 33 sessions of RT between April 2010 and June 2010, so that seems to be a justification to post some more data as an update.
This data, (My P-log as opposed to Blog) by being recorded is a help when it comes to being able to put a figure on the issue of “Frequency and urgency” rather than just having a vague idea that things have got better or worse.
On “measuring day” in October 2009 it was about three weeks after I stopped using pads and I had to pee at the following times
So that was a total of 15 visits. And very few of the visits involved a large quantity of pee.
I also felt like I needed to pee almost the whole time. On three occasions I had also dribbled a little before I made it to the bathroom. And at 11.55 and 16.02 I was obviously having to go back to the bathroom to deal with a bladder that had not emptied properly.
(And that long gap in the afternoon was only because I went to sleep.)
Then on Measuring Day in February 2010 I needed to pee at the following times:
I was thus down to only 11 visits. Almost each visit involved what I would describe as a normal volume of pee and I had no dribbles. Also I did not always need to get up in the night.
Feelings of urgency were almost completely absent so that it was only the last 30 to 15 minutes before I had a pee that I was getting annoying sensations. In fact apart from the annoying sensations it was starting to head towards where I had been before surgery.
By February I was having about 10 or 12 BMs per week instead of 7, but was also eating much more wholegrain bread, fruit, vegetables etc.
By July 2010 I was 5 weeks after RT and one year after Surgery, and on “M” day I noted the following pee times.
08.58 + BM
14.10 + BM
18 bathroom visits in 24 hours looks pretty bad, but I’m treating it as a bench mark from which to aim for improvements, though, in fact, things have already improved from the days at the end of RT (for, although I was too pre-occupied or tired to take notes during RT, I do recall at one point that it was a case of needing to pee every 20-30 minutes almost all day long and that I was getting up as many as 6 times a night And on several days I had to wear pads to avoid accidents when travelling.)
The effect of RT on my BMs was also massive. I was having about 4 BMs a day for several weeks, and they were peculiar BMs to say the least, so being down to two a day seems like a great improvement. However the effect of my BMs on my bladder now seems to be that the muscles/nerves in my pelvic floor take a while to settle down afterwards and so I have to do a very small pee about 5 minutes later. (Something similar happened just before I went to bed and seemed to be the result of running the tap when cleaning my teeth! But I am also very tired in the evenings from the RT.)
The urgency issue is less pleasant, as within about 5 minutes of having had a pee, it starts to feel like I need another one, which translates into feeling like I need a pee for about 90% of my waking hours.
For the record: my fluid intake on all the days concerned, at about 2 litres, was constant: basically for many months I have found it simplest to drink the same drinks at the same times every day.
So what can I conclude? How do I feel about this? Well, given that prior to RT starting I seemed to be getting my bladder and bathroom visits under control, I hope that that is the level to which I will be able to return when the effects of RT settle down.
I hope this data might be helpful to others.
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking of urine
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc. but...
Nov 17th 2009 PSA = 0.1
Can still get erections okay, and almost no leaking of urine, but since December 2009 I don't have orgasms, instead I just have intense pain in place where prostate used to be.
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
April 13th 2010 CT scan.
April 28th 2010 Started Radiation Therapy (66Gy - 33 sessions)
June 11th 2010 finished RT - main side effect tiredness, but also the occasional small leak
June 27th My 50th Birthday - feeling better but still not 100% okay