fatique after salvage radition

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riverrat35
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/19/2010 3:59 PM (GMT -6)   
 
   I AM NEW TO THIS SITE, BUT WOULD LIKE TO ASK IF ANYONE HAS HAD FATIQUE AFTER SALAVAGE RADITION. HAD RP IN NOV.2009
  PSA OF 5.9. I AM 49 YEARS OLD AND MY PSA WENT DOWN TO .O2 THEN BY THE END OF FEB. IT WAS .05 STARTED RAD. FOR 38
  TREAMENTS ENDING ON APRIL 28. FIRST PSA WAS .039 I AM WATING ON THE SECOND TEST, NOT DUE UNTILL LATE AUG. HAVE BEEN
  OUT OF WORK FOR 4 MONTHS, JUST CAN'T SEEM TO GET ANY ENERGY BACK. HOW LONG DOES IT TAKE TO GET OVER RAD? ALSO MY
  GLEASON SCORE WAS 9 AFTER MY PATLOGHY REPORT FROM SURGERY.

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2215
   Posted 7/19/2010 5:12 PM (GMT -6)   
Most of us, although not all, who have had SRT have had problems with fatigue. I still try to what I need to do ealry in the day, including exercise. For some the fatigue  lasts longer than for others. Lack of energy can be brought on by depression as well and that plays into PCa treatment quite often. Hopefully this will pass soon for you, and if your a river runner I hope you get back out there quickly.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 7/19/2010 5:17 PM (GMT -6)   
Hello and welcome

My SRT ended last Thanksgiving, and I still have to fight chronic fatigue every day. I run into a wall of extreme tireness everyday around 230 to 330 regardless if I am doing something or just sitting around. Really hasn't improved during this time. Each person's radiation tolerance varies so much, so you may hear a lot of varying opinions on this subject. Some people bounce right back like it was nothiing.

I have been through major radiation twice in my life so far, and each time its been the same problem. Though the first time, which ended 10 years ago, the worse fatigue didnt hit me until about 2 months after the radiation ended, and obviously, I was 10 years younger at the time.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19


Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 284
   Posted 7/19/2010 6:28 PM (GMT -6)   
My one persistent side effect was fatigue but even it was not severe. I did as much exercise during and after as possible. Mostly I just lacked energy and went to bed early. Now about 4 months downwind of SRT, I'm pretty much back.

There was over a year between my surgery and SRT so I had recovered from the surgery prior to starting SRT. I think you have more headwind in your recovery due to the short interval between the two. Michael makes a good point too if depression (or just being down) is a factor, that will surely affect you too. Let your doc know.
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4
Post SRT psa at 10 weeks (5/31/2010) down to .2


maltratado45
Regular Member


Date Joined Jun 2010
Total Posts : 84
   Posted 7/19/2010 7:42 PM (GMT -6)   
I also was fatigued for a while and found it took me over 90 days for it to pass.
 
Be patient and watch for depression please.
 
Kind Regards Jim
*Age 60 when presented to GP on 3 Aug. 2004 with elevated PSA of 13.8.
*Referred to Urologist. Biopsy and bone scan in Oct 04.
*Pathology report in Nov 04. Initial Results are T2cNoMo carcinoma of prostate gland.
*Had a RPP on 14 Feb 2005. Boy talk about irony look at that date again.
*Dr. called 3 days after surgery. I want you both in my office tomorrow morning, we must talk now.
*"I wish to apologize because I misdiagnosed your condition. Biopsy of your organ says Staging is T3bNoMo. Please accept my apology."
*At that moment I fell in love with my Dr. and have never changed my mind.
*Followup radiation of the prostate bed started early June 05 and ran 42 sessions.
*All PSA checkups to date, 5 1/2 yrs, are undetectable.


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4188
   Posted 7/19/2010 8:09 PM (GMT -6)   
Never had any fatigue, but excercised daily and think this helped.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4188
   Posted 7/19/2010 8:09 PM (GMT -6)   
Never had any fatigue, but excercised daily and think this helped.
JT

64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6894
   Posted 7/19/2010 9:14 PM (GMT -6)   
I finished IGRT in late June, and still hit a brick wall by 2pm. My Rad. Onc. says that isn't a side effect, but even the Cancer Soc. says it is - my surgeon (I had DaVinci 10/09) says it is, and I should expect it to last 2 months +/- beyond the end of RT, then slowly start to improve over a year or more's time.

I would love to get some exercise, but it is too hot, and a half-mile walk leaves me done for the day.

English Alf
Veteran Member


Date Joined Oct 2009
Total Posts : 2211
   Posted 7/20/2010 1:13 AM (GMT -6)   
Hello Riverrat35 and welcome to the Forum,

My RT finished in June. And Fatigue is definitely a problem after RT, and fatigue is something altogether different from simply feeling tired.

I occasionally felt like there was also wall to get through. I found I was sometimes sitting reading a book and felt like I couldn't even get up to answer the door or phone and I definitely felt like I couldn't manage a walk round the block when I knew I was meant to be taking exercise. But I did try and make myself move and then surprise: when I was half way round the block I felt like I could manage to walk round two blocks instead of just one, or may be more. Even though I still found I was walking very slowly. Then about a month on from RT, instead of getting worse each day, I started to feel better. So yesterday, for instance, my wife and I managed a 25km cycle ride.

We are all different though, A friend in a similar position felt like it took him a year to get back to "normal". And I still have bad days when I don't do much more than watch golf on TV for 6 hours. But to prove the point I must stop typing and go out.

Alf
Age at Dx 48 No Family history of Prostate Cancer
Married 25 years, and I cannot thank my wife enough for her support.
April 2009: PSA 8.6 DRE: negative. Tumour in 2 out of 12 cores. Gleason 3+3.
RALP (nerve-sparing) at AVL-NKI Hospital Amsterdam on 29th July 2009. Stay 1 night.
Partial erections on while catheter still in. Catheter out on 6th Aug 2009.
Dry at night after catheter came out
Post-op Gleason 3+4. Tumour mainly in left near neck of bladder.
Left Seminal Vesicle invaded, (=T3b!)
no perineraul invasion, no vascular invasion. clear margins,
Erection 100% on 15th Aug 2009, but lots of leaking of urine
Stopped wearing pads on 21st Sept 2009
Pre-op style intercourse on 24th Oct 2009 !! No use of tablets, jabs, VED etc. but...
Nov 17th 2009 PSA = 0.1
Can still get erections okay, and almost no leaking of urine, but since December 2009 I don't have orgasms, instead I just have intense pain in place where prostate used to be.
Mar 17th 2010 PSA = 0.4!!! referred to radiation therapist
April 13th 2010 CT scan.
April 28th 2010 Started Radiation Therapy (66Gy - 33 sessions)
June 11th 2010 finished RT - main side effect tiredness, but also the occasional small leak
June 27th My 50th Birthday - feeling better but still not 100% okay


bsjoplin
Regular Member


Date Joined Feb 2010
Total Posts : 308
   Posted 7/20/2010 10:10 AM (GMT -6)   
hi Riverrat, keep coming back and you'll pick up a lot of information from a lot of friendly people...main thing you'll keep hearing is that everyone is different: you'll see a wide variation in experience, but that's why it's good to get lots of sampling...
i also finished RT just this last June, and for me, fatigue definitely hit harder AFTER the radiation sequence was completed, but another way to think of it, that's also when Missouri started a big sequence of 95 degree days, and that will sap you even WITHOUT radiation.
most days i can get through work okay til 5:00, but sometimes, it's all i can do to get home and take a nap through the evening news, and then i'll be in pretty good shape if we have stuff we want to try to accomplish during the evening.  most days i don't need the nap, and some days, i'm not worth much from about 3:30 on.. oh well, i know it doesn't last forever, and the wife is really understanding, so all things considered, i'm DOING OKAY!
HANG IN THERE !
bob
 

Age@dx: 55

5/05             PSA test 1.8  --12/19/07  PSA test 3.7  --7/25/08    PSA test: 4.7

8/26/08        1st Prostate Biopsy: 3 samples out of 6 have irregular cells

11/25/08      PSA test: 6.5

12/11/08      2nd Prostate Biopsy :  of 12 samples, 3 are cancer, and all other 9 are irregular.  original NJ lab sent samples to Johns Hopkins for special reading.  Gleason 3+3=6.  now:read book, and think about options: radiation, surgery, etc

1/22/09        Radical Retropubic Prostatectomy.  main issue was use of BOTH pre-donated units of blood during surgery, and then required 2 additional units in recovery, before going to room

1/25/09        Released from hospital. No drive, no lift >5 lb

1/28/09        Pathology results from removed tissue:  Cancer was seen on 10% of gland, lymph nodes & SV were benign, nothing seen outside of the prostate.  One area of cancer extended right up to edge, but not beyond.  Gleason was re-typed as 3+4=7, staged T2c

2/13/09        PSA=0.1

3/6/09          6week appt, start back to work Monday, 3/9.  script for Cialis

6/8/09          PSA=0.1

10/9/09        PSA=0.1

2/10/10        PSA=0.3 discussed possibility of radiotherapy and/or hormone.

4/7/10          PSA= 0.4  Recurrence of the cancer is probable. Referred me to RO

5/4/10                   First RT.  RO is recommending 37 treatments x 1.8Gy=66.6 Gy

6/25/10       Final RT. ended up w/ 36 treatments, 64.8 Gy

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