Thankfully, the rollercoaster slows...

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Bassguy
Regular Member


Date Joined Mar 2010
Total Posts : 25
   Posted 7/21/2010 8:11 PM (GMT -6)   
I've been reading the forum and not posting so much as my "cancer journey" over the past 6 months has taken some interesting and confusing turns.  Some very brave guys here, up against some very tough circumstances.  Sharing your experiences is invaluable to others who are faced with difficult decisions.  I know it has been extremely helpful to me.  Thanks for that.
 
For anyone whose circumstances are similar to mine, I thought I would share a bit.
 
After many formal and informal consultations that recommended I take the sugery route sooner rather than later, I decided to have a consultation with Dr. Peter Scardino head of surgery at Sloan Kettering in NYC, who is a published proponent of Active Surveillance for non-aggressive cancers.  At my first consultation he recommended another biopsy, which turned up more 3+3 than initally detected in 3 of 14 cores.  This was a bit of a blow.
 
Net/net - Dr. Scardino recommended a protocol of AS that includes 6 month exams and if there is no apparent escalation another biopsy in two years.  So I am going to follow that protocol under his care.
 
I may very well end up having an RP in the future and I am preparing myself for that eventuality.  In the meantime, I can enjoy my prostate a bit longer...  even if it does have 38 holes in it.


Age: 49, 49 dx, PSA: 5.65
2nd Biopsy: 1/10 - 1 of 12 cores positive, 5% Cancer, Gleason 2+3=5 by primary care, Upgraded to 3+3=6 by MSKCC and confirmed  by Johns Hopkins.  MRI at MSKCC on 2/10: confirmed very small fully contained tumor.
3rd Biopsy at MSKCC: PSA 6.07 - 3 of 14 cores positive with around 10% 3+3
 
Recommendation from MSKCC - Active Surveillance: exam every 6 months, if things don't escalate, follow up biopsy in 2 years
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 7/21/2010 8:14 PM (GMT -6)   
good to hear from you, bassguy. sounds like a great AS plan under the care of a great doctor. good luck on that. the 38 cores that are missing is that much less prostate to deal with, lol. are you bass guy as in bass the fish, or bass the musical conatation? curious
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19


Bassguy
Regular Member


Date Joined Mar 2010
Total Posts : 25
   Posted 7/21/2010 8:19 PM (GMT -6)   
Purgatory...  BOTH!  I am a musician who regularly menaces smallmouth.  So it kinda fits.
Age: 49, 49 dx, PSA: 5.65
2nd Biopsy: 1/10 - 1 of 12 cores positive, 5% Cancer, Gleason 2+3=5 by primary care, Upgraded to 3+3=6 by MSKCC and confirmed  by Johns Hopkins.  MRI at MSKCC on 2/10: confirmed very small fully contained tumor.
3rd Biopsy at MSKCC: PSA 6.07 - 3 of 14 cores positive with around 10% 3+3
 
Recommendation from MSKCC - Active Surveillance: exam every 6 months, if things don't escalate, follow up biopsy in 2 years
 
 


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/21/2010 8:28 PM (GMT -6)   
Hey Bassguy, I wriite from the deck of my cottage on Lake of The Woods near Kenora in Ontario Canada. Every August they have a big bass tournament here. I don't suppose it's one you come to fish?

On the AS, it sounds like you're in good hands with excellent advice. Thanks for writing and letting us know how you're doing. Don't be a stranger!

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 7/21/2010 8:37 PM (GMT -6)   
cool bass. use to fly fish, but trout only. my 33 year old son is a gifted bass player, self taught from after 13, he does electric and upright equally well. me - no musical talents or ability.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19


Bassguy
Regular Member


Date Joined Mar 2010
Total Posts : 25
   Posted 7/21/2010 9:11 PM (GMT -6)   
Sleepless...
No tournaments for me. I do love going after small mouth when I can find 'em on the St. Lawrence, but fishing to some degree is a good excuse to just enjoy being out on the water. So when I come home with an empty bucket, as long as the boat don't sink, it's still been a good day.

Purgatory...
Upright is awesome. I don't have the chops for that... my axe is a Fender Precision.
Age: 49, 49 dx, PSA: 5.65
2nd Biopsy: 1/10 - 1 of 12 cores positive, 5% Cancer, Gleason 2+3=5 by primary care, Upgraded to 3+3=6 by MSKCC and confirmed  by Johns Hopkins.  MRI at MSKCC on 2/10: confirmed very small fully contained tumor.
3rd Biopsy at MSKCC: PSA 6.07 - 3 of 14 cores positive with around 10% 3+3
 
Recommendation from MSKCC - Active Surveillance: exam every 6 months, if things don't escalate, follow up biopsy in 2 years
 
 


jacketch
Regular Member


Date Joined Apr 2009
Total Posts : 179
   Posted 7/22/2010 1:45 PM (GMT -6)   
Bassguy said...
Purgatory...  BOTH!  I am a musician who regularly menaces smallmouth.  So it kinda fits.

I thought it was Bass as in the ale. smilewinkgrin
63 yo
V10.46 Dx Feb-09

RRP 5-5-09

No adverse SE

PSA 6-19-09  -0-

PSA 9-21-09  -0-

1 year PSA 5-3-10  -0-



Thriving, not just surviving!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 7/22/2010 1:51 PM (GMT -6)   
bass,

when he started high school, 9th grade, he had never held or touched an upright, he auditioned for school symphony on upright was accepted immediately. In senior year, they put him in the SC Goverenor's High School of Art for music. Amazing as he never had a day of lessons and is all self taught. He is in a Jazz Combo two Sundays a month, plus bass player for the rock group Din of Thieves (facebook/myspace), writes his own stuff, teaches bass, and operates his own recording studio while being a father of two, doing woodworking/cabinet making and going to college full time working on an engineering degree. bored? never. lol

at age 33, he has promised to have his first baseline psa by age 35 for my sakes
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19


Bassguy
Regular Member


Date Joined Mar 2010
Total Posts : 25
   Posted 7/22/2010 3:59 PM (GMT -6)   

Awesome!

I will check out The Thieves on Facebook!   It's great that he has been able to parlay his love for music into part of his livelyhood.  If he's doing wood working, he REALLY needs to be careful around that circular saw.


Age: 49, 49 dx, PSA: 5.65
2nd Biopsy: 1/10 - 1 of 12 cores positive, 5% Cancer, Gleason 2+3=5 by primary care, Upgraded to 3+3=6 by MSKCC and confirmed  by Johns Hopkins.  MRI at MSKCC on 2/10: confirmed very small fully contained tumor.
3rd Biopsy at MSKCC: PSA 6.07 - 3 of 14 cores positive with around 10% 3+3
 
Recommendation from MSKCC - Active Surveillance: exam every 6 months, if things don't escalate, follow up biopsy in 2 years
 
 


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 7/22/2010 4:12 PM (GMT -6)   
For sure, nows that he back in school, less of the wood working, more of the music.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19


stevmac1
Regular Member


Date Joined May 2010
Total Posts : 129
   Posted 7/23/2010 9:40 AM (GMT -6)   
Bassguy,
   Purg actually beat me to the punch on that question. I play bass in a rock band called The Remedy. Actually played a show 18 days post-op, with the blessing of my doc. A little more subdued than usual, but I made it.
steve
'98 Fender J (usa)
50 Yrs. old.  DX Feb, 2010 w/6.6 PSA.
Biopsy 04-24-10, Gleason 3+3=6
4 of 5 cores left side inv. 4 of 6 rt side
RRP 06-07-10....
16 days post-op, catheter out.
Gleason upgraded to 3+4
No involvement of lymph nodes & seminal vesicle.
 

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