UsToo Symposium, Chicago, August 20-21

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Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 7/22/2010 10:47 AM (GMT -6)   

Hello Friends,

 

Chicago (actually Rosemont/O’Hare) will host the UsToo International Summit, Symposium, and Celebration for men and their families battling Prostate Cancer on August 20-21 (Friday & Saturday).  The “Celebration” is for the 20th year anniversary of UsToo.

 

The educational symposium portion (on Saturday) includes names which will be familiar to many of you, and names mentioned repeatedly on this forum, including:

·         Charles “Snuffy” Myers, MD

·         Mark Moyad, MD

·         Michael J. Dattoli

·         John Mulhall, MD

·         Paul Schellhammer, MD

·         Others

 

Here’s the link to the UsToo site with more information:  http://www.ustooevents.org/site/PageNavigator/20th_Anniversary_Home

 

I am tentatively planning to attend the educational symposium on Saturday.  (I live about 15 miles from O’Hare.)  I thought there might be others among this group who would also have an interest in attending, and so I wanted to let you know about the event.  If you are interested in attending, and might also interested in meeting in the lobby during the morning, please post a response here.  I will check back in a couple of days for responses.

 

best regards…

 

 

 


lewvino
Regular Member


Date Joined Jul 2009
Total Posts : 384
   Posted 7/22/2010 2:17 PM (GMT -6)   
Thanks for posting. Sounds interesting. My dad lives in Northern Indiana and is a 13 year prostate cancer survivor and I'm coming up on my 1 year anniversary of being a survivor. Going to talk to my dad about the possibility of us both going.
 
Larry
Age 55 / age at diagnosis 54, PSA 5.1
Robotic surgery 08/12/09 at Vanderbilt, Nashville TN. 
Final Path report:
20% of the prostate Involved
Tumor graded at T2C
Overall Gleason 3+4 (7)
Lymph Glands Clear, Positive Margin Noted in Right Apex
 
First post Surgery PSA - 0
Six month PSA - 0
Ten month PSA - 0


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/22/2010 2:53 PM (GMT -6)   
I'm 50/50 right now.

As a UsTOO chapter leader I feel the need to go, just that is not a good week for me.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/22/2010 4:19 PM (GMT -6)   
Sounds like a gathering well worth going to, if someone is able.
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19


Herophilus
Veteran Member


Date Joined Sep 2009
Total Posts : 662
   Posted 7/22/2010 7:39 PM (GMT -6)   
Casey,
Great to see you post, I’d love to come to Chicago, however I’ll be on a 6 day backpack in the Bob Marshall wilderness in north west Montana.
Hero

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/22/2010 10:24 PM (GMT -6)   
Ah Ha Hero! The old 6 day backpacking in the wilderness excuse!

You obviously are not a follower of Sheldon's Rule Of Travel which is: "Never sleep away from home where, at night, your credit card won't get you room service at three in the morning." This not only keeps you out of tents, it saves you from bunking in with relatives which invariably leads to their coming to bunk in with you --- and bringing the dogs to boot.

But, if you must go to Montana, enjoy. Big Sky county is fabulous.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  


Casey59
Veteran Member


Date Joined Sep 2009
Total Posts : 3172
   Posted 7/26/2010 1:16 PM (GMT -6)   

The topics planned for presentation at the UsToo Summit Educational Symposium (on Saturday, August 21) closely match the topics of greatest interest posted here at HealingWell/Prostate Cancer.  

 

I informally sampled a number of pages on this site (8 pages; 200 threads).  I could either tell the topic by the thread title, or I opened the first posting to gather the subject gist.  A fraction over 50% of all threads were…well, let’s just classify them collectively as “all other” topics, but the other half of threads were all directly related to topics which are on the Symposium agenda.

 

Here’s a horizontal bar chart pareto diagram (presented as a visual aide) of the HealingWell threads which match closely to Symposium topics, with the percentage frequency of occurrence among all threads sampled:

 

            PARETO CHART (horizontal bar):

 

**********************      Erectile Function & Continence   (21.5%)
****************      Treatment modes (curative; primary or secondary)   (16%)

*******      Advanced PC / Hormone Therapy   (7%)

*****      Diet & Supplements   (5%)

 

 

 

Topics of interest at HealingWell, and the corresponding topics to be presented at the Symposium (and a brief bio on the presenters):

 

Erectile Function & Continence  The most frequently posted topic on HW/PC.  Dr John Mulhall is Director of the Sexual & Reproductive Medicine, Division of Urology, Memorial Sloan-Kettering Cancer Center.  Dr Mulhall is author of the book “Saving Your Sex Life: A Guide for Men with Prostate Cancer” and has more than 100 papers published in peer-reviewed journals.  Dr Mulhall will lead a panel discussion at the UsToo Symposium titled:  Meeting the Challenges of Intimacy and Incontinence.”  If you haven’t already watched this free online video (75 minutes) of Dr Mulhall titled “Sexual Problems in the Male Cancer Patient”, I highly recommend it:  http://www.mskcc.org/mskcc/html/94910.cfm

 

Treatment modes (curative; primary or secondary)Dr Paul Schellhammer is past president of the American Urological Association and medical director of the Virginia Prostate Center, and has published numerous papers which directly address PC treatment choices, including these titles in which Dr Shellhammer was senior author: 

·         “Feasibility of using guidelines to choose treatment for prostate cancer”,

·         “Development of a scale to assess patient misperceptions about treatment choices for localized prostate cancer”,

·         “Patients' survival expectations before localized prostate cancer treatment by treatment status”

Dr Schellhammer, who is also a PC survivor, will present the topic titled:  The Changing Landscape of Prostate Cancer Treatment.” 

 

In addition, Dr. Michael Dattoll, Founder and Physician in Chief, Dattoll Cancer Center & Brachytherapy Research Institute will present the topic titled:  Radiation Therapy for Prostate Cancer:  It’s Evolutionary, It’s Revolutionary.”

 

Advanced PC / Hormone Therapy – Some men wait passively to monitor for PC recurrence, others take action.  Dr Charles “Snuffy” Myers is an eminent medical oncologist who specializes in prostate cancer; he is considered by many to be one of only a handful of true experts in hormonal blockage therapy, as well as diet for PC.  He is author of the book “Beating Prostate Cancer:  Hormonal Therapy & Diet”, and publishes the “Prostate Forum” subscription newsletter.  Dr Myers established the American Institute for Diseases of the Prostate, focused on comprehensive management of PC.  He is also a PC survivor.  Taking Action Against Recurrence and Advanced Disease with Second Line Hormonal Therapy” will be Dr Myers’ presentation topic.

 

Diet & SupplementsDr Mark Moyad is primary author of over 100 medical articles, author or co-author of seven books, and occupies the endowed position of Director of Preventative & Alternative Medicine at the University of Michigan Medical Center (Dept of Urology).  He is also editor-in-chief of the soon to be released medical journal “Seminars in Preventative & Alternative Medicine.”  Dr Moyad will present the topic:  Fad Diets, Dietary Supplements and Rx for Your Health:  What Works and What Is Worthless, From A to Z.”

 

 

These presenters are among the “big hitters” specializing in prostate cancer care.  Among the key lessons we have (hopefully) learned is that (a) our local doctors might be friendly caregivers, but they are not typically experts in everything related to PC and that (b) we must educate and empower ourselves beyond the advice of our local doctors to maximize our PC treatment outcomes. 

 

Hope to see you in Chicago…

 

 

-Larry, post again if you & your dad plan to attend.

-Tony, let me know if your schedule works out to attend.

-Hero, I’d probably rather be backpacking with you…

 

 

 

 

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