Today Begins My Next Step on the PCa Journey

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Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 7/22/2010 11:56 AM (GMT -6)   
Hello and good morning to all,

Haven't been here for a little while and haven't done much posting. Really haven't had anything to update on my situation. But, in a couple of hours I have my next appointment with the RO to set up my treatment for the MET they found on my leg at the hip joint. My Oncologist had said in our last meeting that he would wait three months before my next PSA test but I decided I didn't want to wait that long. The way my PSA was jumping around and with the new found MET I wanted to know now. So yesterday while I was at MDA with my wife, I had them draw blood and run the ultra-sensitive test so the results would be there for my meeting with the doc.

I am just a little nervous about the MET. It may be my imagination but lately it seems as though I am feeling some discomfort in the area of the met. Sure hope it hasn't taken off and gone crazy in the last month. I remember in my last meeting with the RO when he asked me if I was feeling pain and at that time I wasn't.

I will update after the meeting.

BTW, need to get this stuff taken care of so Lynn and I can go on our next big RV adventure. This next one will be about 7-8 weeks. We are planning a Sept-Oct trip to and through the NE.

We are starting off the trip with a stop at Niagra Falls on our way to WorriedGuy's place for the GFMPH Annual Weekend Extravaganza. Sure don't want anything to interfere with this trip.

I hope that many of you are thinking about accepting Jeff's invitation to join us.

More later today after the doc visit,

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 7/22/2010 12:19 PM (GMT -6)   
Sonny, best of luck on the PSA test. I resently had a false postive on a body scan and MRI. It took two weeks before the determined that the lesion was not PCa. I could swear that I was starting to feel irritation/pain in that area until the false positive was confirmed.

Regarding your trip. If you are going to get as far as Maine, I highly recommend a visit to Acadia National Park. I spent 3 days there in June. The place is fabulous. It should be really nice in late September/ early October. BB
Dx with PC Dec 2008 at 56, PSA 3.4


Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
psa May 10  .50

Aril 10 MRI and Bone Scan show lesion on lower spine, false positive. 
 
Started HT 5/25/10 with 3 month shot of Trelstar. SRT scheduled for late July


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 7/22/2010 1:11 PM (GMT -6)   
Good to hear from you Sonny as we all keep you and Lynn in our thoughts and hearts. Hope the visit with the Dr leads to some good news, but keep us posted. New England would be a great place to visit and Maine is wonderful from Kennabunkport, Portland and on up the coast. Never have been to Acadia but hear great things about it. Take Lynn to the outlet Mall in Freeport and I will send you my wish list from LL Bean and Patagonia. Take care my friend and hope to hear from you soon.
Michael
PS. I dont think I spelled Kennabunkport right, but I am to lazy to look it up right now.
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/22/2010 1:13 PM (GMT -6)   
Sonny --- wonderful to see your name next to a thread!

It's beginning to look to me like your RV will roll through here next summer, not this. I don't suppose you want to get caught in an early October snow storm, although it can still be quite nice here.

On the PCa I'll be watching for an update on your meeting. An update on Lynn, our honorary member, would be nice too.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 7/22/2010 1:19 PM (GMT -6)   
Mid-Michigan still awaits your arrival.
 
Good luck on your results/meeting.
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week). As of 6/22/10, I would say I am 100% continent, but I do have (controllable) significant urgency.

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.

Second post-op PSA on 6/21/10--0.02--Not too bad!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/22/2010 2:25 PM (GMT -6)   
Sonny,

Sorry for the phone tag. Will be waiting your next report. Acadia is nice, when lived in NH, went there bunches, Kittery Point also nice beach in ME, more private, Strawberry Banke in Portsmouth NH wonderful place. Of course, if you are close to I-85 heading northbound, bring that rig here, got room to park you

david
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 7/22/2010 4:13 PM (GMT -6)   
Sonny,
Good to see you posting again. It look like you are really enjoying your RV. I wish you the best for you PSA test. Your next RV trip north sounds great especially to those of us in Texas where temperatures are in the mid o high 90s. Good luck.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 7/22/2010 5:18 PM (GMT -6)   
Thanks to all of you for the well wishes and great trip tips.

Just got back from seeing the RO. First it's great to be treated at a facility that houses it's own labs. Took my blood yesterday and the results were back for the meeting. My current PSA is 1.30. Now before you go off the cliff you have to understand that this was 2 months since my last test that was 1.20. The doc and I talked about this and what it says it that my PSA doubling time is lengthening out and the change is within the realm of numbers that I have established. He as much as said that we won't worry about it for now and it may turn out to be a number that I will live with for a while just because it is my number. We'll check it again after the radiation for the MET.

I went through the simulation and the tatooing process and am set up to begin rad treatment next Tuesday. We are set up for 10 treatments. He also said that I may be feeling a little something at the site, but that it does not mean that there have been any major changes since the test were done. On a pain scale of 1-10 it would be less than 0 anyway. Just a little something that I feel and that I know something is there.

So I would consider today a very good day. I am not bummed by the PSA numbers. Hey they are just my numbers. And as we all know and have said many times, we all react differently to PCa treatments and all of our cancers are different. This one is just MY cancer and for now my cancer numbers.

The Rad should be no problem and there should be NO side effects or discomforts.

You know me; EVERY DAY IS A BONUS. So I consider today a bonus day. We'll get the rad done and it will not interfere with my travel plans.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/22/2010 11:16 PM (GMT -6)   
Thanks for the update, Sonny.

Sounds like you've got a great doc, and a great facility to look after you. And the PSA looks to be essentially flat. All in all, it's not only a bonus day, it sounds like a good one.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 7/22/2010 11:45 PM (GMT -6)   
Thank you Sheldon. Yea I consider it a pretty good day. Like the doc and he has a really good reputation. Hope things are going well for you too.

I see you are one year and the PSA is LOOKING GOOD. Way to go brother, stay in that zero club as long as you can. I hear it's real nice in there. Sorry I haven't had a chance to visit it yet.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.
7/22/10 PSA test 1.3 - Begin radiation for MET on leg


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/23/2010 12:56 AM (GMT -6)   
Yeah Sonny, I wish you were a zero too. Big time. I look at your stats and realize that they're just a hair width tip away from mine and I'm keenly aware, as my friend Sonny would say, each day in the zero club is a bonus. I know if could slide away at any time, and may very well. In the meantime I'm thrilled to have made the year.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 7/23/2010 6:43 AM (GMT -6)   
Sonny, good to hear from you. So, you have an upcoming RV trip through the Northeast...plan on being in New York? If you're anywhere around The City (New York City, that is) we'd love to hook up with you and Lynn.

Hugs and kisses to you and Lynn from Sephie & John
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 7/23/2010 7:36 AM (GMT -6)   
Sonny, Every Day is a Bonus for sure. I was very pleased with your report. Looking foward to seeing you at the GFMPH Annual Weekend Extravaganza. Talking to Paul today to book my ticket.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 7/23/2010 8:10 AM (GMT -6)   
Sephie, so good to hear from you again as well. I hope all is well with John. Yes we are planning the Great Northeast Trip for September-October. You know the usual, Niagra Falls, Boston, Bar Harbor, etc. Sadly I know that I will not be passing anywhere near NYC. I would surely love for Lynn and I to get a chance to meet you and John in person. It's not because of our route but rather the fact that the route I am planning insures that I will not pass through NYC. There is a lot of things that we want to see on our trip, but trying to negotiate a 40 foot RV towing a car through NYC is not something I am prepared to take on. LOL

Jeff, it looks like the GFMPH gathering is going to be a good one. See you there.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.
7/22/10 PSA test 1.3 - Begin radiation for MET on leg


compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 7/23/2010 8:50 AM (GMT -6)   
Is Michigan on your radar at all for future trips?
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week). As of 6/22/10, I would say I am 100% continent, but I do have (controllable) significant urgency.

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.

Second post-op PSA on 6/21/10--0.02--Not too bad!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/23/2010 9:20 AM (GMT -6)   
Sonny, it was good to have a long talk with you last evening. You know how I feel about you, your plans, your situation and Lynn. If you have time in this New England area trip to pass through the town of Tamworth, NH on Highway 25 (could be on your way to Maine, i.e., there is something I would love for someone to take a few pictures for us, our old colonial house.

Good luck on the radiation, you have been there done that much longer and much worse, this should be an easy phase for you.

david in sc
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 7/23/2010 1:10 PM (GMT -6)   
David, I'll look up the town and if there is any way possible I will stop by and take the shots for you.

Not too worried about the rad this time around. The doc says that where it is being delivered I should not experience any side effects. Probably not even any fatigue.

The only thing I worry about is weight gain. When I go in for radiation, my habit is to stop by Dunkin Donuts every couple of days and take a few dozen in for the techs working there. Of course I have to have coffee and my fair share just to be sociable. This way they are always willing to schedule me for first thing (8am) in the morning and I have the rest of my day left.

I did put on a few pounds during the 7 weeks I was going through IMRT.

You gotta make the most of every situation. Can't let this stuff drag u down if you can help it. You should have seen the smiles and glad tidings when I stopped by yesterday to set up my schedule. I have been tabbed as "The Donut Dude".

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.
7/22/10 PSA test 1.3 - Begin radiation for MET on leg

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