Wheeeewwwww! This PSA thing has to get easier !

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goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 7/23/2010 9:00 PM (GMT -6)   
Just got my 15 month PSA.  <.01 !  As a Gleason 9'r, I could not be any happier, well, unless maybe if I had spontaneous capabilities.
 
But honestly, the knot in the stomach seems as bad as the 3 month PSA.  Last PSA I had a .01, or so the lab reported, so I imagined this one would be a .02 or something, the start of the climb.  Oh well, wait til the next 3 months.  I have come to think this is the way it will be forever.
 
Note to new guys.  Be directive on your PSA testing.  Make sure the doctor or nurse prescribes the correct test.  There is PSA screen, PSA diagnostic, and PSA ultrasensitive .  There are several other names used to describe these tests as well.  The lab doesn't always know what test the doctor has ordered, so you may not get the correct sensitivity.  I have become hooked on the ultrasensitive which uses electrochemicalluminescecne technology, and usually reads to the .01.  There are some that go to 3 decimal places. 
 
Meanwhile, I will continue living the good life.
 
 
 
 
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/23/2010 9:13 PM (GMT -6)   
Great number there, goodlife, congrats
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5825
   Posted 7/23/2010 9:20 PM (GMT -6)   
Congratulations, sounds like you had a good surgeon. I just expect to get a 0 and have the test every 6 mos to reduce the anxiety. Surgeon is ok with that. But then I have had only 2 , talk to me in November. Faith is tough!!!
age 67 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of Washington Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci, extensive PNI, That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
Dec 14,2009 psa 0.0 May 10 2010, psa 0.0

" Hypocrisy is vice's homage to Virtue " Francois de la Rochefoucauld, source courtesy of Tatt2


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/23/2010 9:23 PM (GMT -6)   
Good on you, Goodlife. Nice numbers. Very nice indeed.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 7/23/2010 11:41 PM (GMT -6)   
Hi Goodlife. Congratulations on your great PSA test score. Hoping for many, many more of those for you and all of us. I too favor the Ultra sensitive test (mine only goes down to .04) because that is the only way that a recurrence can be detected early. SRT, after early detection of a recurrence, has apparently the best chance of success.
All the best to you.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 days - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09 <0.04; JAN 10 <0.04; Jul 10 <.04


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 7/24/2010 12:56 AM (GMT -6)   
Hey Goodlife,
Congratulations. That ''<0.01" is sure good to see. Who knew that such a small number could make such a big difference.

May you have many more!

Thanks for the reminder to ask for a Diagnostic PSA not just the Screening PSA. It's important.
Jeff

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 7/24/2010 4:18 AM (GMT -6)   
congrats on the continuing zero club status - wishing you a goodlifetime of stress free zero's!!

BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs...
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/24/2010 5:41 AM (GMT -6)   
That is great news and what a wonderful stress reliever. Now celebrate your membership in the elite zero club.

peace to you
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
I was on Lupron, Casodex, and Avodart for two years with my last shot March 2009. I am currently (7-22-2010) not on any medication.
My Oncology hospital is The Cancer Treatment Center of America in Zion IL
PSA July of 2007 was 16.4
PSA May of 2008 was.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13
PSA April 16th of 2010 is .16
PSA July 22nd of 2010 is .71
Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 7/24/2010 5:47 AM (GMT -6)   
Goodlife, Wheeewww is right. Congrats on the low number. Hope to report the same on Monday.


Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 7/24/2010 6:22 AM (GMT -6)   

Great to hear about the big Zero Goodlife. Hope to join you again someday as my stint in the club lasted 3 months. Keep them coming in and just maybe in the future the knot in the stomach will just be from eating at Taco Bell and not about the PSA test.

Michael


Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 7/24/2010 6:29 AM (GMT -6)   
Good news and yes it is always stressful for me. It is like putting your hand in the fire and it and feels good pulling it out when you receive the results you want.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2691
   Posted 7/24/2010 7:39 AM (GMT -6)   
Jeff,
 
I actually am not recommending the diagnostic PSA, at least at my lab.  They told it was good to two decimal places.  So when I got the results, it was <.10.  I called the lab and said, just because you put a zero after the 1, doesn't make it 2 decimals.  It should be somewhere between .01 and .09.
 
They agreed and ran the ultrasensitive which returned <.01.  That is why I am preaching about knowing exactly what is ordered , and what results to expect.  The gal at the lab window is probably a phlebotimist.  Even the person I talked to at the lab couldn't really explain the PSA test differences in detail.  I knew ( after multiple PSA's) more than they did about the deatils.
 
We have to assume some control and persistence in these matters for our own psychogical if not physical health.

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 7/24/2010 7:59 AM (GMT -6)   
CONGRATS on the stellar number. Guys like you that maintain their membership in zero club are my idols and it is my hope that someday I will be able to join you in this Elite Club.

Keep the good numbers rolling in for many years to come, stress or not.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.
7/22/10 PSA test 1.3 - Begin radiation for MET on leg


mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 7/24/2010 9:59 AM (GMT -6)   
 
Hi Goodlife,
 
Great news on the numbers! Wish you many, many more.
 
I know about the PSA anxiety, too. I have my 18 month in about 8 weeks and already it comes up in my thoughts too often.
 
Mike
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds didn't do much initially. TRIMIX was working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Doses recently after 50% dilution by Uro about 0.025 mL or less. Don't use Trimix anymore...I'm too sensitive to it, even at very low doses and the Alprostadil is pretty consistent in causing erection pain...had a few episodes of 3+ hour wood with pain.
-Levitra now starting to work at low doses of 5 mG to 10 mG. Sometimes the side effects like stuffy nose aren't fun...sometimes OK.
-Was supposed to see ED doc last week, but due to his schedule, will now be late August. Will discuss bimix with him.
 


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 7/24/2010 1:31 PM (GMT -6)   
Goodlife,
That is a great result for any Gleason especially a 9. Keep up the good work.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


vam4710
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 7/25/2010 7:47 AM (GMT -6)   
Congrats and many more Goodlife!..   Don't get my first till Oct and hoping to follow in your footsteps for the <.01
Thanks for the heads up on the ultrasensitive testing! 
Diagnosis June 1, 2010 @ age 50
PSA  1.7    Sept. 2008
PSA  2.14  Sept. 2009
PSA  2.75  April  2010
 
May  25, 2010  - Biopsy  1 of 12 cores positive;  Gleason 3+4 = 7  25%;   Stage T1c
June 04, 2010  - CT and Bone scan - All Negative
July  07, 2010  - Da Vinci Robotic Lap. Surgery
 
PATHOLOGY
Tumor involvement - 15% both right and left halves
Gleason Down graded to 3+3=6
Seminal Vesicles - Negative
Lymphnode - Negative
Subcapsular perineural Invasion - Present
Bladder Neck Margin Positive (right posterior) - 1mm Focal protrusion
pT3a-N0-MX
 
Incontinence - Dry at night, 2 or 3 pads during the day (looks like the Kegels before surgery paid off)
 
ED  - Total flat tire.... no spare, not even a donut
 
First PSA scheduled for 10/14
 
 
Northern NJ


creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 7/25/2010 3:44 PM (GMT -6)   
Great news Goodlife! So glad to hear and wishing you continued good health. cheers
Creed_three (Lana) - with husband "CJ" now aged 52.5 yrs (49 years at diagnosis).
PSA (2002) 2.1. (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007 Sydney, Australia. Gleeson 3 + 4 = 7. 2 x small multifocal lesions. Contained. Undetectable <.1 PSA since: June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03, April 2010 - 0.03. 

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