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Patches
Regular Member


Date Joined Jul 2010
Total Posts : 33
   Posted 7/24/2010 1:18 PM (GMT -6)   
I am sore but glad to be home.  Some of the lessons I learned was to follow all the Drs. orders and do not be afraid to ask your loved ones for help.  For example,  if the medical team says take sort walks, do it.   I am a stubborn old man but am slowly comming around.
Age 49 years old with no family history of PCa. but had testicular cancer in 1985.                                                                                                                                                                                                  
PSA on 3-8-2010 was a 5.6
PSA re-take on 3-17-2010 was a 4.4
Biopsy collected on 4-17-2010 showed 2 of 12 cores malignant with Gleason scores of 3+3  Stage T1C.
RALP surgery scheduled 7-21-2010 at Hopkins.


Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4848
   Posted 7/24/2010 1:28 PM (GMT -6)   
Welcome to the other side...Glad you made it ok blush
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


reachout
Veteran Member


Date Joined May 2009
Total Posts : 739
   Posted 7/24/2010 1:35 PM (GMT -6)   
Congratulations and welcome to the other side. Yes those walks are really important. They make you heal faster and lowers the risk of getting blood clots.
Age 64 yrs
DX 5/2009
8 out of 12 cores positive
PSA 5.6
Gleason Score 3+4=7
Stage T2a
Da Vinci Surgery 08/07/2009
Upgrade Gleanson Score 4+3=7
Stage pT2c
Neg Margins and Nodes
Extracapsular extension noted but neg Extraprostatic Extention (??)
Dry immediately
Daily Cialis 5mg slow recovery
First PSA 3 Nov 09 <0.1
Second PSA 2 Feb 10 0.01
Third PSA 1 Apr 10 <.014
Fourth PSA 19 May 10 <0.1
Starting trimix July 10


Meryle
New Member


Date Joined Jun 2010
Total Posts : 9
   Posted 7/24/2010 2:25 PM (GMT -6)   
Congratulations Patches !!!
I'm with ya - surgery on 07/16 - Home 07/18.


-----------------------------------------------
Age: 50 in good health other than PC
weight 170
height 5' 10''
No symptoms to speak of
PSA 10.4
Prostate not enlarged

Samples taken mid-April
6 out of 12 samples cancer
1) gleason score 3+4 involving 30% Right Base
2) gleason score 3+4 involving 40% Right _
3) gleason score 4+4 involving 50% Right Apex

Bone scan clean except a 1 mm spot on left scapula
CT scan clean

Biopcy of Scapula was negative, Doctor says good/bad news, we want to watch it.

07/16/2010 - Laparoscopic Radical Prostatectomy (LRP) @ MCR, Loveland, CO
07/18/2010 - Home
07/20/2010 - JP Drain removed

07/26/2010 - Scheduled X-Ray/Catheter removal
-----------------------------------------------


Feeling better every day. Two Grand kids (1 & 3yrs) running around here every day - They've never wore me out like this before, hehe, yep, baby steps, slow and easy.

Surgery - Friday, Went well, removed two lymph nodes, came back from lab negative, continued with operation.
Hospital - Two nights, wanted to ensure system flowing properly
- Blood pressure up and down, 83, 125, 97, 103...
- JP drain still draining.
- Solid food Sunday - breakfast/dunch/dinner
Home - Sunday, Yes!! - Little sleep at home better than any sleep at hospital. Slow-Tired-Sore
- JP drain increased to 100cc every 2-3 hours. Removed Tuesday, continued to drain most of evening, healed shut over night.
- system slow to flow, all liquids Monday/stool softeners/herbal Lax tea - Midnight relief!
- Feeling better each day! System still slow but working/gas pains, ...
- taking it easy, snacks every 2-3 hrs, walk, sit, rest, repeat


Meryle

April6th
Regular Member


Date Joined May 2010
Total Posts : 264
   Posted 7/24/2010 2:32 PM (GMT -6)   
Congratulations!

Good luck on your recovery!

Wishing you favorable pathology report

Dan
Here are some of my stats:
Age:54
Father diagnosed with PC at age 72 - wasn't contained to prostate when found in 1992.
My PSA rose from 3.2 to 5.1 over the course of 1.5 years with Free PSA at 25% for the last two tests.
DRE showed no evidence of tumor but Uro thought my prostate was a little large for someone my age
PCa diagnosed 4/6/10 after biopsy on 4/1/10
1 out of 12 biopsy samples was positive with 5% of biopsy sample cancerous
Gleason 3+4
Da Vinci surgery on 6/1/10
Pathology report shows cancer confined to prostate and all other tissue clean
PSA 7/15/10 Zero Club membership card issued (trial membership with 90 day renewal)


Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2460
   Posted 7/24/2010 2:41 PM (GMT -6)   
Welcome to the other side. I hope your recovery is painless and quick.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 7/24/2010 3:29 PM (GMT -6)   
Meryle and Patches - the worst is over! It's all just recovery from now on.
 
Things to do during recovery:
Count the Weird things coming out of your penis - take pictures.
Enjoy the cath...you can drink as much as you want and never have to pee. See how much you can drink to fill the bag.
See how full you can get your cath bag before your family gets grossed out.
If you leave the cath bag in the middle of the room, how many things can you still reach?
How many reruns of Family Guy can you watch in one day?
There are many more. Be creative.
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/24/2010 4:24 PM (GMT -6)   
Great Going, welcome to the other side, the recovery side. Yes, it pays to be compliant to your surgeons order's after such a complex and invasive surgery. Hope you continue to do well
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2243
   Posted 7/24/2010 5:03 PM (GMT -6)   
Patches,
Welcome to this side of surgery and onto the road to recovery. You have learned a lot, and you might be stubborn, but at age 49 your not old!!! Keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


freinds
Regular Member


Date Joined Jun 2010
Total Posts : 76
   Posted 7/24/2010 5:13 PM (GMT -6)   
congrats on  the completion of surgery! Take good care of that cathetor, the week will go by quickly.
age 50, diagnosed April 2010
pre-op PSA 3.7
Gleason 6 uppud to 7 post surgery
post op. surgical margins clear
Bone scan clear
 


Patches
Regular Member


Date Joined Jul 2010
Total Posts : 33
   Posted 7/24/2010 6:00 PM (GMT -6)   
Thanks everyone.
Paul that reply was a classic and could be part of a future top 10 list.
Age 49 years old with no family history of PCa. but had testicular cancer in 1985.                                                                                                                                                                                                  
PSA on 3-8-2010 was a 5.6
PSA re-take on 3-17-2010 was a 4.4
Biopsy collected on 4-17-2010 showed 2 of 12 cores malignant with Gleason scores of 3+3  Stage T1C.
RALP surgery 7-21-2010 at Hopkins.


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 7/24/2010 7:47 PM (GMT -6)   
Meryle and Patches , Welcome to the other side. Now on to the new normal. Paul you are too funny for words. LOL


Walk guys,, Walk.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7080
   Posted 7/24/2010 8:15 PM (GMT -6)   
Welcome both of you kids to this side (I'm 57) -
Take it easy, walk if/when you can, and speak up if you need to vent or ask questions, or just let us know how you're doing - I for one have been there, experienced that -

(DaVinci 10/09, IGRT finished 06/10)

Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 7/24/2010 8:37 PM (GMT -6)   
Quick thought. Don't leave the cath bag on the floor if you have a pet. Bad things will certainly follow...trust me. It only happened once until the dog taught me obedience. Ouch! I never taught her how to " Leave it." until it was too late. Now when I tell her she obeys immediately. We had a lot of time to work on it.

Bob
 AGE:58
 Dx: October,27, 2008(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T2c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive
 Confined to prostate.
 DaVinci Jan. 19th, 2009. No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 6 month Psa , 0.1 
 9 month Psa,  0.2  Doubled! Criminy!
 Started RT 10/28...one year since diagnosis.  RT over 12/22.
 3 month post RT Psa 0.1. 6month post RT Psa 0.1


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 7/24/2010 8:59 PM (GMT -6)   
Patches - wishing you a boring steady recovery - you've got a wealth of information to draw on re: post-recovery -
-all the best.
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs...
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


vam4710
Regular Member


Date Joined May 2010
Total Posts : 89
   Posted 7/25/2010 8:37 AM (GMT -6)   
Welcome to the otherside Patches.... I'm just under 2 weeks ahead of you on the recovery... wishing a great path report for you.
Hope all goes well.... DRINK LIKE A FISH! Keep those fluids going!


Diagnosis June 1, 2010 @ age 50
PSA  1.7    Sept. 2008
PSA  2.14  Sept. 2009
PSA  2.75  April  2010
 
May  25, 2010  - Biopsy  1 of 12 cores positive;  Gleason 3+4 = 7  25%;   Stage T1c
June 04, 2010  - CT and Bone scan - All Negative
July  07, 2010  - Da Vinci Robotic Lap. Surgery
 
PATHOLOGY
Tumor involvement - 15% both right and left halves
Gleason Down graded to 3+3=6
Seminal Vesicles - Negative
Lymphnode - Negative
Subcapsular perineural Invasion - Present
Bladder Neck Margin Positive (right posterior) - 1mm Focal protrusion
pT3a-N0-MX
 
Incontinence - Dry at night, 2 or 3 pads during the day (looks like the Kegels before surgery paid off)
 
ED  - Total flat tire.... no spare, not even a donut
 
First PSA scheduled for 10/14
 
 
Northern NJ


Aimzee
Veteran Member


Date Joined May 2010
Total Posts : 1406
   Posted 7/26/2010 2:32 AM (GMT -6)   
Good luck on your recovery Patches, Meryle,  and vam4710!!  Wishing you the best!
 
Aimzee

Husband Ron, age 63
Had Progesterone shots for 6 months.  January PSA was .05. 
4/1/10 PSA 5.5  Prostate size = 50 cc.
On Cipro (antibiotic) for 16 days
Bone Scan/CT Negative
Biopsy 4/20/10  12 samples... Adenocarcinoma:  3 positive on right side,
one core left base (5% ` 0.5 mm) -  two cores of left lateral mid
(20% ~ 2mm, 10%, 10% ~ 1mm) - No Perineural Invasion
Gleason 6 (3+3)
The surgery has been postponed twice.
August 18, 2010 - da Vinci Prostatectomy
 
(I do the posting for both of us.)


Meryle
New Member


Date Joined Jun 2010
Total Posts : 9
   Posted 7/27/2010 11:48 AM (GMT -6)   
Thanks Everyone,

Update - x-rays and cath out on Monday, 07/26/2010, Ok Paul, I appreaciate the cath much more now! it didn't leak as much. The original pumbing has a ways to go it appears, plumbers putty ?, maybe one of those clips they used before they scoped my bladder!

Path report !! - Yes!
Gleason - 4+3=7
Extent of invasion: Both lobes, predominantly Right, pT2c
Seminal Vesicle: Not Identified
Extraprostetic Extension: Not Identified
Lymphatic (small vessel) Invasion: Not Identified
Venous (large vessel) Invasion: Not Identified
Perineural Invasion: Present
High-Grade Pin: Present
Surgical Margins: Negative

First post-Op PSA test scheduled: 08/26/2010.

Meryle
Lovelend, Co.


-----------------------------------------------
Age: 50 in good health other than PC
weight 170
height 5' 10''
No symptoms to speak of
PSA 10.4
Prostate not enlarged

Samples taken mid-April
6 out of 12 samples cancer
1) gleason score 3+4 involving 30% Right Base
2) gleason score 3+4 involving 40% Right _
3) gleason score 4+4 involving 50% Right Apex

Bone scan clean except a 1 mm spot on left scapula
CT scan clean

Biopcy of Scapula was negative, Doctor says good/bad news, we want to watch it.

07/16/2010 - Laparoscopic Radical Prostatectomy (LRP) @ MCR, Loveland, CO
07/18/2010 - Home
07/20/2010 - JP Drain removed
07/26/2010 - X-Ray/Catheter removal
-----------------------------------------------
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