Just Joined Group

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Old Dad
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/24/2010 10:30 PM (GMT -6)   
I have had rather sever hip pain following my Da Vinci RALP in March 2010. I came across this site as I researched the possible linkage to spread of the PCa. I found the posts helpful in relieving my anxiety that this might be some metastisis. So, this post is just to say hello and let you know I'm here.

Dx Prostate Cancer 01/29/10
Age 56
Gleason 7 (3+4)
PSA 7.4
RALP 03/15/10


Paul1959
Veteran Member


Date Joined Nov 2007
Total Posts : 598
   Posted 7/24/2010 10:47 PM (GMT -6)   
Welcome Old Dad, though you are not old...except to a twenty something! This is a great bunch of guys. Thanks for posting. You are in good company. Keep coming back. You'll get used to some of us...others, you'll never get used to.
Paul
www.franktalk.org ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC www.roboticoncology.com
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7082
   Posted 7/24/2010 10:55 PM (GMT -6)   
Another welcome from a really old guy - have a year on you!
Hope we can be of help along the way.

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 7/24/2010 11:02 PM (GMT -6)   
Hey Old Dad ----- nice to have you say hello. I join with the others in welcoming you and saying we're here to support you, but beyond that I invite you to keep dropping in and give the gift of your "Old Dad" wisdom to those who are arriving with concerns, or Old Farts, such as myself, who have been here for awhile but sometimes just need a sympathetic ear to moan in.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 7/25/2010 5:32 AM (GMT -6)   
Good to hear from you OD. Glad this site offered you some help. Stick around. There is a lot to learn.
Dx with PC Dec 2008 at 56, PSA 3.4


Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
psa May 10  .50

Aril 10 MRI and Bone Scan show lesion on lower spine, false positive. 
 
Started HT 5/25/10 with 3 month shot of Trelstar. SRT scheduled for late July


tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 7/25/2010 5:48 AM (GMT -6)   
Old Dad - wishing you all the best - and here's to relieving your hip pain and your fears.
this is a great site for information - links to other sources and great support from others on similar journeys.
hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs...
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 7/25/2010 6:30 AM (GMT -6)   
Old Dad, welcome to our little corner of the world.

Hope you'll come often and visit with us and will share more of your story with us. I'm curious about the results of your surgery so when and if you are so inclined, please share your final path results with us.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 7/25/2010 6:58 AM (GMT -6)   
Welcome Old Dad. Heck Im older than you and I dont feel old at all. I hope you enjoy Healing Well as much as most of us. We are a society of our own where we can be comfortable discussing Prostate Cancer. One Wed evening we have the chat room and talk about just about anything and sometimes PCa.

Do keep visiting.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


MrsGFM
Regular Member


Date Joined Feb 2010
Total Posts : 115
   Posted 7/25/2010 7:07 AM (GMT -6)   
Old Dad - Puuuleease! You are not OLD! In my job I often help people with their mail. I tell them to toss out those AARP brochures and membership letters because we aren't OLD!

Sending you positive vibes for good health!
Mr GFM's statistics:
Age 50 at diagnosis
PSA History: 10-05 1.3, 01-07 2.09
8-07 - PSA at Biopsy: 2.26
2 of 12 positive
Gleason Score 3+3 6
11-07 - Robotic surgery hospitalized overnight.
Path Report:
Prostatic adenocardinoma, Gleasons 3+3+6, moderately differentiated
Percent of Prostate involved by tumor 5%
Staging pT2c pNx pMx
Margins free of tumor - no further invasion or extension
Catheter out in about 9 days. No incontinence.
Back to work in 2 weeks
ED - resolved. No meds needed at this time.
Post Op PSA: 03-08 0.01, 10-08 0.02, 7-09 0.04, 1-10 0.04


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/25/2010 8:48 AM (GMT -6)   
Welcome to our world. Sorry you need to be here. You are hardly old here, probably on the low side of "middle". If you can, please post your post surgery pathology stats, would help us to understand your journey, and if there is any reason to think if your pains are associated with your PC.

Keep on posting regardless.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19


Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3887
   Posted 7/25/2010 10:51 AM (GMT -6)   
A bone scan will spot any mets..How is your PSA doing?

I have a pain in my hip too sometimes. Sciatica..
Age today: 68. Married, 6', 215 pounds, active, no health issues.
PSA at age 55: 3.5, DRE negative. Advice, "Keep an eye on it".
PSA at age 58: 4.5
PSA at age 61: 5.2
PSA at age 64: 7.5, DRE "Abnormal"
PSA at age 65: 8.5, DRE " normal", biopsy, 12 core, negative...
PSA at age 66 9.0 DRE "normal", BPH, Finesteride. (Proscar)
PSA at age 67 4.5 DRE "normal" second biopsy, negative.
PSA at age 67.5 5.6, DRE "normal" U-doc worried..
PSA at age 68, 7.0, third biopsy positive for cancer in 4 cores, 3 cores Gleason 6, one core Gleason 9. Finesteride discontinued, still no urinary symptoms, never had any..From age 55 to 65 I had no health insurance.

I have a date with the robo surgeon on Sept 3 but I'm keeping my options open. I'm also looking at seeds combined with IGRT which seems to be having good results with high-risk patients..


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1211
   Posted 7/25/2010 11:59 AM (GMT -6)   
Hi Old Dad and welcome to our little exclusive club. No one wants to be here, but........................
Sorry to hear about your hip pain. Hopefully your Dr. will be able to help you with that quickly. With your initial numbers, I would think it very unlikely that mets are the cause. However, perhaps a bone scan would remove any doubts. What are your latest PSA numbers?
Wishing you all the best.
 
Magaboo

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 days - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09 <0.04; JAN 10 <0.04; Jul 10 <.04


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 7/25/2010 1:04 PM (GMT -6)   
Gooday 'chronically dated-challenged dad'- LOL! Yeah I am older still, but under 60 I don't feel fossilization happening just yet. So age must be a state of mind.

You might not have any mets(less likely than likely with those stats), could be ruled either way. Going to hold my tongue on the scans thingy right now. There are other tests that can be performed on biological level also and less costly, might be useful to do and usually only the oncologist docs look at such things using: PAP, CGA, NSE, CEA, Pyrilinks-D, routine blood counts, chemistry evaluations on kidney, liver, bone and electrolyte status and examination for enlargement of lymphnodes. Still may or may not find conclusive, this is the world of PCa. Read the book- 'A Primer on PCa' (page 35).
Youth is wasted on the Young-(W.C. Fields)


geezer99
Veteran Member


Date Joined Apr 2009
Total Posts : 990
   Posted 7/25/2010 1:55 PM (GMT -6)   
The first piece of advice is that if you are worried -- share it with your doctor. A good doctor would always want to deal with a problem sooner rather than later.

Given what I have read, it is unlikely that your pain is associated with the spread of your PCa (Metastasis) Mets are generally associated with much higher levels of PSA. You don't say if the pain has continued but if it it has not, what you had was probably related to the surgery. Remember that among other insults to the inside of your body they pump you full of CO2 -- a kind of balloon effect to give them more space to work. The gas can persist in odd places for several weeks. Also remember that while on the table you are tilted in a head down position -- something your body isn't used to.

Anyway, welcome and feel free to participate in any way that helps you.

P.S. My use of "geezer" is ironic I hope not to be ready for "geezerhood" for another 20 years.
Age at diagnosis 66, PSA 5.5
Biopsy 12/08 12 cores, 8 positive
Gleason 3+4=7
CAT scan, Bone scan 1/09 both negative.

Robotic surgery 03/03/09 Catheter Out 03/08/09
Pathology: Lymph nodes & Seminal vesicles negative
Margins positive, Capsular penetration extensive Gleason 4+3=7
6 weeks: 1 pad/day, 1 pad/night -- mostly dry at night.
10 weeks: no pad at night -- slight leakage day/1 pad.
3 mo. PSA 0.0 - now light pads
6 mo. PSA 0.00 -- 1 light pad/day
9 mo. PSA 0.00 -- 1 light pad/day ED remains
12 mo. PSA 0.00 -- still one light pad and ED
16 mo PSA 0.00 -- light pad just for security, ED still an issue


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/25/2010 3:50 PM (GMT -6)   
Welcome to the club no one wants to join. Please partake in the discussion and have some fun.

peace to you
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
I was on Lupron, Casodex, and Avodart for two years with my last shot March 2009. I am currently (7-22-2010) not on any medication.
My Oncology hospital is The Cancer Treatment Center of America in Zion IL
PSA July of 2007 was 16.4
PSA May of 2008 was.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13
PSA April 16th of 2010 is .16
PSA July 22nd of 2010 is .71
Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%


Old Dad
New Member


Date Joined Jul 2010
Total Posts : 2
   Posted 7/25/2010 8:35 PM (GMT -6)   
Thanks for the many encouraging messages. Some of you asked for more information regarding the post-op path reports. They were clear. Also, the pre-op CT Scan and Bone Scans were negative except for a couple of enlarged lymph nodes near the prostate which were removed during the surgery. They were also clear. Margins were clear as well. My 6 week post-op PSA count was <0.01 (Whew!!!) I have the next test scheduled for 8/30.  
 
It is always good to interact with folks dealing with the same issues. Thanks for providing an excellent forum for sharing information and providing support.
 
Peace,
James
Dx Prostate Cancer 01/29/10
Age 56
Gleason 7 (3+4)
PSA 7.4
RALP 03/15/10

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, September 20, 2018 10:26 AM (GMT -6)
There are a total of 3,005,068 posts in 329,194 threads.
View Active Threads


Who's Online
This forum has 161760 registered members. Please welcome our newest member, Adrianna1023.
326 Guest(s), 9 Registered Member(s) are currently online.  Details
SoMuchFun, 81GyGuy, sandyfeet, Admin, Tudpock18, InTheShop, tiredofallthispoop, cppoly, suchatravesty