A little explanation about the missing Mod.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

James C.
Veteran Member


Date Joined Aug 2007
Total Posts : 4462
   Posted 7/26/2010 1:34 PM (GMT -6)   
Now I'm not looking for sympathy or the like, I just want to take a moment to explain something. Some may wonder at my scarcity (and see that as a good thing lol) so I will explain a little, in case someone may feel that I have dropped out or lost interest or neglected them. A large part of the mods job is to watch for trouble, maybe reading every post, usually, welcome new friends, console those with not so good news, congratulate those with good and serve as a source for further info for those asking for it. In other words, be a daily presence and helpful person to all. You may be a new friend and noticed I didn't welcome you, or an old friend who I didn't congratulate their good news, or just haven't joined in the banter, like I used to.

The reason for that is I am now having to spend much more time caring for my Dad, who is Stage 4 Lung Cancer, and has maybe 3 months left, and my blind, diabetic and renal failing Mother. My brother, sister and I are sharing time and responsibilities, but anyone who has been there can tell you that you can never have enough help or time for yourself. I try to keep up with the Forum, what time I have at home, and on my phone when caring for them. Coming here is a needed change of pace, even if I don't spend a lot of time now replying to you folks. So if I miss a congrats, or a welcome, or don't respond to questions or such, it isn't that I've lost interest, or don't care about you or anything, it's I am conserving what time I do have. I don't want anyone to feel that I have slighted them, if they have read in the past when I welcomed almost everyone here, or shared in the joys of zero's or shared in the let downs of other not so good news.

Now, you spammers and troublemakers, don't take this admission as an opportunity, as I will still be watching for that, along with doting daughter and TonyC, so there's still sheriffs in town. nono devil smilewinkgrin
James C. Age 63
Gonna Make Myself A Better Man www.youtube.com/watch?v=a6cX61oNsRQ&feature=channel
4/07: PSA 7.6, Recheck after 4 weeks Cipro-6.7
7/07 Biopsy: 3 of 16 PCa, 5% invloved, left lobe, GS3+3=6
9/07: Nerve Sparing open RRP, 110gms, Path Report- Stg. pT2c, 110 gms., margins clear
3 Years: PSA's .04 each test since surgery, ED continues: Bimix- .3ml PRN, Trimix- .15ml PRN


142
Forum Moderator


Date Joined Jan 2010
Total Posts : 6947
   Posted 7/26/2010 1:43 PM (GMT -6)   
James,

The fact that you have any time for us at all in the front of challenges like that is to be respected and admired.

As always, thank you for your "stellar" - got the marshall's star in there ;) - contributions and balance.

My best wishes always to you and yours. We tend to forget that we are not the only ones with less than perfect days.

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 7/26/2010 1:43 PM (GMT -6)   
You got plenty on your plate right now, a man has to do what he has to do, family takes presidence. Best to you, others can help with the welcome wagon effect.
Youth is wasted on the Young-(W.C. Fields)


Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 7/26/2010 1:50 PM (GMT -6)   
James,

Thank you for letting us know what's going on in your life. For those of us that believe in the power of prayer, we will be adding your family to our lists.

It is a given that HW could not function without the countless hours and energy that you and the others put into it. We thank you most heartedly.

Zufus was dead on when he said that family takes precedence. So spend your time and energies where you MUST and we are thankful when you have any left over for us.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.
7/22/10 PSA test 1.3 - Begin radiation for MET on leg


John T
Veteran Member


Date Joined Nov 2008
Total Posts : 4226
   Posted 7/26/2010 2:06 PM (GMT -6)   

James,

Thanks for donating your time to make this forum work as well as it does. We all appreciate what you have done.

JohnT


64 years old.

PSA rising for 10 years to 40, free psa 10-15. Had 5 urologists, 12 biopsies and MRIS all neg. Doctors DXed BPH and continue to get biopsies yearly. 13th biopsy positive in 10-08, 2 cores of 25, G6 less than 5%. Scheduled for surgery as recommended by Urological Oncologist.

2nd Opinion from Dr Sholtz, a Prostate Oncologist, said DX wrong, pathology shows indolant cancer, but psa history indicates large cancer or metastasis. Futher tests and Color Doppler confirmed large transition zone tumor that 13 biopsies and MRIS missed. G7, 4+3, approx 16mmX18mm.

Combidex MRI in Holland eliminated lymphnode mets. Casodex and Proscar reduced psa to 0.6 and prostate from 60mm to 32mm. Changed diet, no meat and dairy. All staging tests indicate that tumor is local and non agressive. (PAP, PCA3, MRIS, Color Doppler, Combidex, tumor reaction to diet and Casodex, and tumor location in transition zone). Surgery a poor option because tumor is located next to the urethea and positive margin is very likely; permanent incontenance is also high probability with surgery.

Seed implants on 5-19-09, 3 hours door to door, no pain, minor side affects are frequency and urgency; very controlable with Flowmax and lasted 4 weeks. Daily activities resumed day after implants with no restrictions. Gold markers implanted with seeds to guide IMRT.

25 treatments of IMRT 6 weeks after seed implants. No side affects at all.

PSA at end of treatment 0.02 mostly the result of Casodex. When I stop Casodex next week expect PSA to rise. Next PSA in November. Treatments and side affects have greatly exceeded my expectations. Glad to have this 11 year journey finally conclude.

JohnT


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/26/2010 2:07 PM (GMT -6)   
Hi James,
Your commitment to this website has been enormous. But your family comes first.

I tried handing in my moderator keys early this year. I have been so very busy at work/church/support groups, etc. that I have not read most posts since March. Our good Lord has blessed me with strong health. Enough so that I have stopped all treatment for prostate cancer and maintain undetectable PSA's while feeling normal again. Which means I am also very busy at work.

After three years, that's good enough for me...

Miss Doting Daughter has also been busy in her life, new babies, and good scores for her father. Her father and I have been on similar protocols and he too is doing well.

So it is that Peter asked me to stay on with the moderator tag if only for filling in occasionally. This would be one such time and if I can help, please let me know where...Again, I just don't have time to read all posts, but this site runs very well on its own.

Peace to all...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 7/26/2010 2:23 PM (GMT -6)   
James, I know you have your hands full, what a burden with both your mother and father that the same time. I will have to remember what you are dealing with, the next time my 83 year old mother is driving me crazy being a pain in the A*. At least she takes care of herself, still lives alone on her own property, etc. I wish you all the best as you continue with your own family's needs.

David in SC
Age: 57, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19


spottydog10
Regular Member


Date Joined Dec 2009
Total Posts : 345
   Posted 7/26/2010 3:14 PM (GMT -6)   
James,
Thanks for everything you do here and best wishes for your family situation.
Mike
Age 52
PSA 5.5  june 09
biopsy july 09 gleason 3+3 = 6   5% and 50% in 2 of 12 cores
robotic prostatectomy nov 7 prostate weight 45gm
path report gleason 3+4 = 7 (yukk)
clear margins

post op psa 22/12/09   0.04
                    09/04/10 <0.03
                    09/07/10 <0.03

no incontinence after 7 days
total ed, good erection using the pump

 


Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 7/26/2010 3:15 PM (GMT -6)   
Hi James..about 16 years ago, my father was at Stage 4 lung cancer and failing fast. My mother was a basket case emotionally, and had recurring brain tumors (non-malignant) that affected her ability to do a lot of things. I was blessed with robust health at that time (age 42) and it drained me to no end. Hospice was called in, and I had to bring my father to my house to die because my mother couldn't cope--------------so I understand completely what that looks like, even when you have sibling assistance. Do what you have to do, and we'll be pulling for you to deal with things the best you can. It's a very critical time to be paying attention spiritually as well-------peace!
 
Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1
18 month PSA--<0.1


Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 7/26/2010 4:10 PM (GMT -6)   
Hi James,
 
I just wanted to add my voice to those thanking you for the great job you've been doing for us, even so your life is full of personal responsibilities. I would also like to extend my thanks to all moderaters and those members that so regularly contribute so much to the smooth running of this site. Even so I am a member now for about four years, I never fail to be impressed by the knowledge, compassion, articulateness and willingness to help by so many members. I feel truly blessed and fortunate that I've found this forum in my darkest hour. Thank you all.
Wishing for the best for all of you.
Magaboo


Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
Open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 days - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09 <0.04; JAN 10 <0.04; Jul 10 <.04


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 7/26/2010 4:12 PM (GMT -6)   
Thanks for sharing. I know you are a great care giver.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue


reachout
Veteran Member


Date Joined May 2009
Total Posts : 725
   Posted 7/26/2010 4:45 PM (GMT -6)   
James
Wow, that is just wow....  you have an unfathomable ability to help others.  May God bless you and your parents, and in the end I have to believe that our just rewards will come.
Age 64 yrs
DX 5/2009
8 out of 12 cores positive
PSA 5.6
Gleason Score 3+4=7
Stage T2a
Da Vinci Surgery 08/07/2009
Upgrade Gleanson Score 4+3=7
Stage pT2c
Neg Margins and Nodes
Extracapsular extension noted but neg Extraprostatic Extention (??)
Dry immediately
Daily Cialis 5mg slow recovery
First PSA 3 Nov 09 <0.1
Second PSA 2 Feb 10 0.01
Third PSA 1 Apr 10 <.014
Fourth PSA 19 May 10 <0.1
Starting trimix July 10


60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 7/26/2010 4:48 PM (GMT -6)   

My thoughts are with you James as it is difficult but rewarding caring for our aging parents. We are at the age when we can be ill and caring for the ill at the very same time. My best to you and take care of yourself thru all of this.

Michael

 


Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 7/26/2010 5:58 PM (GMT -6)   
James,

We all appreciate your efforts. It's the mods that set the tone of this neighborhood and keep it such a welcoming place.
Do what you have to do. Priorities are priorities.
Even if you don't write or call, we still love you, man.

Jeff (the leaking one)

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 7/26/2010 7:02 PM (GMT -6)   
James:
We wish you and your family peace and contentment in this time of turmoil and thank you most sincerely for your hard work, kindness and support we have received as members of the HW family.
hugs,
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - will go for trimix in April when I see doc
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs...
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............


Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4106
   Posted 7/26/2010 7:07 PM (GMT -6)   
James: Thanks for sharing now it is our time to give you that support from the group. I know that you parents are very proud of you. Do what you have to do. We will just block the spammers.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%


Geebra
Regular Member


Date Joined May 2009
Total Posts : 476
   Posted 7/27/2010 1:50 AM (GMT -6)   
James,

You are a rock to many on this site. And, I am sure, you are a rock for your family. May God send you strength and peace. Thank you for all you do here.
Father died from poorly differentiated PCa @ 78 - normal PSA and DRE
5 biopsies over 4 years negative while PSA going from 3.8 to 28
Dx Nov 2007, age 46, PSA 29, Gleason 4+4=8
Decided to participate in clinical trial at Duke - 6 rounds of chemo (Taxotere + Avastin)
PSA prior to treatment 1/8/2008 is 33.90, bounced on 1/31/2008 to 38.20, and down at the end of the treatment (4/24/2008) to 20.60
RRP at Duke (Dr. Moul) on 6/16/2008, Gleason downgraded 4+3=7, T3a N0MX, focal extraprostatic extension, two small positive margins
PSA undetectable for 8 months, then 2/6/2009 0.10, 4/26/2009 0.17, 5/22/2009 0.20, 6/11/2009 0.27
ADT (ongoing, duration TBD): Lupron started 6/22/2009
Salvage IMRT to prostate bed and pelvis - 72gy over 40 treatments finished 10/21/2009
PSA 6/25/2009 0.1, T=516, 7/23/2009 <0.05, T<10, 10/21/2009 <0.05, T<10


Sephie
Veteran Member


Date Joined Jun 2008
Total Posts : 1804
   Posted 7/27/2010 5:18 AM (GMT -6)   
James, thanks for the explanation but none was necessary...you have alot on your plate and, yes, family always takes precedence. You do what you have to do and don't worry (too much) about some of us troublemakers!

On a personal note, I hope that your dad is being kept comfortable. No doubt your presence must give him solace and the strength to move on to the next phase. Our thoughts and prayers are with you, your dad, your mom, and everyone who cares about all of you.
Husband diagnosed in 2/2008 at age 57 with stage T1c. Robotic surgery performed 3/2008. Stage upgraded to T3a (solitary focus of extraprostatic extension). Perineural tumor infiltration present. Apex margin, bladder neck and SVs negative. Final Gleason 3+4. PSA: 0.0 til July 2009. August 2009 - 0.1, September 0.3, October back to 0.0, December 0.0, March 2010 0.0. Next PSA in 6 months. Thank you God!


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 7/30/2010 7:44 AM (GMT -6)   

James ~

Thank you for sharing with all of us.  Keeping you and your loved ones…

extra close in our thoughts and prayers. 

Here’s a little HUG from the 3 of us. 

*bluebird  Lee, Buddy, and Murphy!

 

“GOD Bless You”

 

It's a little prayer

"God Bless You"

but it means so much each day,

It means may angels guard you

and guide you on your way.


bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 7/30/2010 7:48 AM (GMT -6)   

«     «     «     «     «     «     «

 

This Hug is for You !!!

 

~   You “are” someone special   ~

 

 

yeah  


logoslidat
Veteran Member


Date Joined Sep 2009
Total Posts : 5818
   Posted 7/30/2010 9:24 AM (GMT -6)   
Thank you so much for the work you do here, you are in our thoughts and prayers.
age 67 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of Washington Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci, extensive PNI, That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
Dec 14,2009 psa 0.0 May 10 2010, psa 0.0

" Hypocrisy is vice's homage to Virtue " Francois de la Rochefoucauld, source courtesy of Tatt2

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, June 20, 2018 8:32 PM (GMT -6)
There are a total of 2,973,875 posts in 326,141 threads.
View Active Threads


Who's Online
This forum has 161145 registered members. Please welcome our newest member, MaxMaxMax.
496 Guest(s), 8 Registered Member(s) are currently online.  Details
tarawa, hopenchange, Jackiema44, summer16, Pratoman, MaxMaxMax, straydog, Lanie G