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Regular Member

Date Joined Jun 2010
Total Posts : 76
   Posted 7/27/2010 5:52 AM (GMT -6)   
Doctor had me on 10 mg cialis every other day to help with blood flow to nerves. This went fine for the first four doses then boy did the back and leg pain begin, started about 12 hours after taking the pill. Up most of the night taking hot showers, heating pad, pain pills. It finally subsided by late morning. Called the PA and she said stop taking it and we will try viagra instead, hope it works better.
age 50, diagnosed April 2010
pre-op PSA 3.7
Gleason 6 uppud to 7 post surgery
post op. surgical margins clear
Bone scan clear

Forum Moderator

Date Joined Jan 2010
Total Posts : 6855
   Posted 7/27/2010 2:59 PM (GMT -6)   
I have noticeable lower back pain with Cialis, but unless I Kegel too much and upset some muscles in that same area, it is tolerable.
I did have to stop it completely while doing IGRT, because holding still worsened the pain. Am now back on 5mg +/- per day - have to cut 20's, so its not very precise.

Veteran Member

Date Joined Nov 2008
Total Posts : 696
   Posted 7/27/2010 3:05 PM (GMT -6)   
I get delayed muscle pain in my legs starting about 24 hours after taking Cialis. I can handle it with ibuprofen. I haven't tried Viagra. Levitra works for me but I've had a couple of nosebleeds when it kicked in, which kind of take the romance out of things.

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1

Regular Member

Date Joined May 2010
Total Posts : 84
   Posted 7/27/2010 10:04 PM (GMT -6)   
Think you might better tolerate daily 5mg doses? That's what I'm on right now. They're a little odd-shaped, but it's not hard to cut them in half with a pill-splitter.

Veteran Member

Date Joined Nov 2007
Total Posts : 598
   Posted 7/28/2010 12:41 PM (GMT -6)   
I used to have those side effects, but after taking viagra for several months, I now have no side effects to any of the Oral meds. Jump around from one to another. Believe it or not, they all react differently.
Paul ED website for PCa guys

46 at Diagnosis.
Father died of Pca 4/07 at 86.
10/07 PSA 5.06 (Biopsy 11/07 1 of 12 with 8% involvment) (1mm)
Da Vinci surgery Jan 5, '08 at Mt. Sinai Hosp. NYC
Saved both nerve bundles.
Path Report: Stage T2cNxMx
-Gleason (3+3)6
Pad free on March 14 - (10 weeks.) Never a problem since.
ED - at one year, ED is fine with viagra.
Two year PSA - undetectable!

Veteran Member

Date Joined Sep 2009
Total Posts : 5467
   Posted 7/28/2010 1:03 PM (GMT -6)   
about 2 mos ago My uro gave me a prescription for 30 5mg cialis which was free per a cialis promo. you have to give the pharmicist a coupon which I got from the Uro. It may still be available
age 67 First psa 4/17/09 psa 8.3, 7/27/09 psa 8.1
8/12/09 biopsy 6 out of 12 pos 2-70%, rest <5% 3+3
10/19/09 open rrp U of Washington Medical Center, left bundle spared
10/30/09 catheter out. continent from the jump.
pathology- prostate confined, only thing positive was the report.everything else negative
9% of prostate affected. gleason 3+4, I suppose thats a negative
After reading pathology myself, gleason was 3+4 with tertiary 5, 2-3 foci, extensive PNI, That is a negative, but I am a positive !!
Ed an issue but keeping the blood flowing with the osbon pump
Dec 14,2009 psa 0.0 May 10 2010, psa 0.0

" Hypocrisy is vice's homage to Virtue " Francois de la Rochefoucauld, source courtesy of Tatt2

Veteran Member

Date Joined Aug 2009
Total Posts : 2447
   Posted 7/28/2010 1:43 PM (GMT -6)   
My doc put me on 5mg Cialis daily for rehab purposes. Can't take them more than 3 days in a row because of the back pain. And it drives my sinuses crazy. I hate not being able to breath through my nose. Can't sleep with it. So I started nasal spray and what do ya know, began to get hooked on the stuff.

Now I take the Cialis once in a while and forget about using the spray. Lynn says not to worry about it. If something came up she couldn't do anything with it anyway. LOL

60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
Diagnosis confirmed July 9, 2009
12 Needle Biopsy = 9 clear , 3 postive
Gleason Score (3+4) 7 in all positive cores
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -scheduled
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.
7/22/10 PSA test 1.3 - Begin radiation for MET on leg

Veteran Member

Date Joined Dec 2008
Total Posts : 672
   Posted 7/28/2010 3:04 PM (GMT -6)   
I had some leg pain due to Cialis, usually when sitting still...delayed by about 24 hours after taking. Have had stuffy nose with all oral ED meds.

Presently using Levitra and as Paul says, the stuffiness is decreasing with use (5 mG maybe 2X a week) for me.

When I was younger (allergies in late teens/early 20's) I used a nasal decongestion a bit dependent on it. So, what Sonny has experienced is not unusual. I had "rebound" congestion where I would stuff up as soon as the decongestant started wearing off. Won't go near the stuff now unless I have a cold; and then, only occasionally.

Good luck...I think we all react a bit differently to the ED meds.
-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds didn't do much initially. TRIMIX was working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Doses recently after 50% dilution by Uro about 0.025 mL or less. Don't use Trimix anymore...I'm too sensitive to it, even at very low doses and the Alprostadil is pretty consistent in causing erection pain...had a few episodes of 3+ hour wood with pain.
-Levitra now starting to work at low doses of 5 mG to 10 mG. Sometimes the side effects like stuffy nose aren't fun...sometimes OK.
-Was supposed to see ED doc last week, but due to his schedule, will now be late August. Will discuss bimix with him.

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