Tony, Dale or anyone else who has been on long term HT

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 7/31/2010 10:38 AM (GMT -6)   
Guys:
I just finishe one year of ADT 3, I'm scheduled for one more year, then we'll sit back and see what my  PSA does.
 
Here's my question:  How long did it take you to get your T levels back to normal readings and for the other side effects to resolve?  I've been pretty lucky with the side effects so far, hot flashes seem to be the only issue. (Man, I'm having a big right now.) 
 
As a side note, I did 3 months of ADT before and after my surgery.  It took about a month and a half for my T level to get back in the normal range.
 
Dale:  I see that you're training for a triathalon, "you da man".  I just got off of the treadmill and 2 miles wore my a-- out.
 
David
 54 y.o.
 Diagnosed 4/10/08
 DRE Normal
 PSA-5.5
 Biopsy- 12 cores, 4 positive highest 4+4=8
 Bone scan, CT scan and Chest X-ray clear 4/16/08
 Urologist suggested surgery 4/16/08
 MRI on 4/24/08 clear no suggestion of lymph node   involvement.
 4/24/08 -Started on Lupron and Casodex preparing for HDRT and IMRT in late July.  This treatment will not preclude me from surgery if I change my mind.
Decide to have DaVinci surgery after another consult with surgeon.
6/19/08- DaVinci surgery at University of Washington.
6/25/08- Path report, clear margins, no noted extension
9/12/08- PSA <0.02 
12/05/08-PSA <0.02 Six months after surgery 
3/02/09-PSA <0.02 Nine months after surgery
5/02/09-PSA .10
8/17/09-PSA .21 Begin HT and set up for SRT to begin in 2 months.
 

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/31/2010 10:53 AM (GMT -6)   
David, good report. You ought to update your signature sometime, it ends in 8/9.
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/31/2010 11:06 AM (GMT -6)   
Hi David,
I stopped taking Casodex in September '09. My previous shot of Lupron was in May '09. My T levels on the day we started the off phase was 21. In January of this year it was 125. In May it was 230. That was my last measurement. We talked about the possibility of using androgel to accelerate the t levels, but Vogelzang said let's wait. His concern was that if we did start using androgel that my body may slow down making it's own testosterone. (visualize the body builder with the small cahunas).

That's the technical side. I stopped having hot flashes in February. Of course living in the desert I started having them again in June, but it had nothing to do with testosterone. Mentally, I lost interest in home decorating and shoe shopping, and I started noticing the female body again around March. Sexual function returned around that time as well. And the first encounter after three years without it was...well...how should I say...good!

Seriously, I feel good again. Pretty normal. I don't see my oncologist until November making it the first time I haven't been in a doctors office for 6 months ~ since the day my PSA came back elevated in a routine physical in October 2006.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Post Edited (TC-LasVegas) : 7/31/2010 10:39:17 AM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/31/2010 11:23 AM (GMT -6)   
Tony, thats good on the dr visit part. I was thinking about that part, since 11/2008, I have been seeing my uro/surgery anywhere from 1-3 times a month ever since. Think my longest gap was a full month here and there. Couldn't imagine a six month no-doctor time.
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/31/2010 11:34 AM (GMT -6)   
I guess I should clarify that. I will see my oncologist twice in about three weeks but not for a doctors visit. He has invited me to come to his oncology group board of directors where i will be presenting about where I am with prostate cancer, and I will also be introducing UsTOO to them as well. Then two days later he is speaking at our UsTOO group about Provenge, Abiraterone, and about Cabazitaxel... I have invited him to dinner that night, but not sure if his schedule is permitting.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 7/31/2010 11:50 AM (GMT -6)   

Purg, David:  Good idea, I'll update after this post.

Tony: Thanx for the info. on the rebound time, I would be super interested in what your Doc. has to say about the new drugs in the pipeline.  My philosophy on this diseaese is hit it as hard as you can as soon as you can because I believe we're going to find something that, although may not be a total cure it will put this disease into long term remission.  The new drugs/discoveries show that to be the case. Disclaimer:  I'm an optimist in most everything I do so take that last statement as such. You gotta believe!!!!!!!!

I go to both the Univ. of Washington and M.D. Anderson for 2 sets of eyes, both Drs. are very positive on the steps being taken now.

As for the heat in Vegas, we recently bought a house in Maricopa Arizona, one day last month it was 118 degrees in our backyard.  I love the heat but that's a little much.

David


 54 y.o.
 Diagnosed 4/10/08
 DRE Normal
 PSA-5.5
 Biopsy- 12 cores, 4 positive highest 4+4=8
 Bone scan, CT scan and Chest X-ray clear 4/16/08
 Urologist suggested surgery 4/16/08
 MRI on 4/24/08 clear no suggestion of lymph node   involvement.
 4/24/08 -Started on Lupron and Casodex preparing for HDRT and IMRT in late July.  This treatment will not preclude me from surgery if I change my mind.
Decide to have DaVinci surgery after another consult with surgeon.
6/19/08- DaVinci surgery at University of Washington.
6/25/08- Path report, clear margins, no noted extension
9/12/08- PSA <0.02 
12/05/08-PSA <0.02 Six months after surgery 
3/02/09-PSA <0.02 Nine months after surgery
5/02/09-PSA .10
8/17/09-PSA .21 Begin HT and set up for SRT to begin in 2 months.
 

livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/31/2010 2:25 PM (GMT -6)   
for me the side effects took about a year to go away completely. I took my last Lupron shot March 2009 and it was a three month shot. I would say that around Feb 2010 I started feeling a little spunky again. I was always a runner and when I was on ADT 3 I found it very difficult to run so I switched to lap swimming and I am glad I did. Not that I am off and the T levels are climbing my triathlon training is much easier.
I believe you said that you had one more year to go is that right? If so I would keep doing treadmill runs since it is easier on the bones and if you can do some low impact high cardio stuff like swimming or stationary biking. ADT3 is a touch combo of drugs however the side effects can be managed better if you can find the strength to get moving.
Thanks for writing and please stay in touch

peace to you
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
I was on Lupron, Casodex, and Avodart for two years with my last shot March 2009. I am currently (7-22-2010) not on any medication.
My Oncology hospital is The Cancer Treatment Center of America in Zion IL
PSA July of 2007 was 16.4
PSA May of 2008 was.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13
PSA April 16th of 2010 is .16
PSA July 22nd of 2010 is .71
Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 7/31/2010 3:37 PM (GMT -6)   
I would say we're about the same Dale. That is if you look at from the time of the last shot. My last Lupron injection was May '09. It was a 4 month dose (30mg). I stopped the Casodex in September, but I was still under the influence for several months. I could say it was about a year after my last Lupron injection that my T level was just a tick below low normal.

But doing good now!

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

dkob131
Regular Member


Date Joined Apr 2008
Total Posts : 364
   Posted 7/31/2010 8:28 PM (GMT -6)   

Dale:  Thanx for the info, I know I'm looking down the road a ways but it's better than looking back I believe.

good luck in the triathalon.

 

David

 


54 y.o.
Diagnosed 4/10/08

DRE Normal

PSA-5.5

Biopsy- 12 cores, 4 positive highest 4+4=8

Bone scan, CT scan and Chest X-ray clear 4/16/08

Urologist suggested surgery 4/16/08

MRI on 4/24/08 clear no suggestion of lymph node involvement.

4/24/08 -Started on Lupron and Casodex preparing for HDRT and IMRT in late July. This treatment will not preclude me from surgery if I change my mind.

Decide to have DaVinci surgery after another consult with surgeon.

6/19/08- DaVinci surgery at University of Washington.

6/25/08- Path report, clear margins, no noted extension

9/12/08- PSA <0.02

12/05/08-PSA <0.02 Six months after surgery

3/02/09-PSA <0.02 Nine months after surgery

5/02/09-PSA .10

8/17/09-PSA .21 Begin HT and set up for SRT to begin in 2 months.

12/31/09- SRT completed, still on HT and will be for 2 years, PSA is <0.01

7/30/09- PSA still <0.01, on HT 1 year with 1 to go.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, September 21, 2018 4:14 PM (GMT -6)
There are a total of 3,005,521 posts in 329,236 threads.
View Active Threads


Who's Online
This forum has 161781 registered members. Please welcome our newest member, Grey Eagle1.
319 Guest(s), 10 Registered Member(s) are currently online.  Details
Tim G, Mind body spirit, Grillmaster, Alex ArmPain, Toadie, Fairwind, InTheShop, ddyss, kittytalk371, noodlesnoodles