Three Years in Remission

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IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/31/2010 2:01 PM (GMT -6)   
With feelings of both trepidation and hope, I underwent robotic assisted laparoscopic radical prostatectomy on July 31, 2007.

Today marks three full years of remission!

So, we're having a kind of “Woo Hoo!” moment here in Idaho that we wanted to share.

I know many of you are sitting before, during, and after treatment decisions with varying degrees of concern, hope and satisfaction.

Perhaps these results will boost the hope of many that diagnosis containing the dreaded “C word" is not a certain death sentence.

To Healing Well including Peter, Great Moderators, and Forum Members: Thank you, sincerely, for continued support over the years!

A special "thank you" to our beloved former moderator Lee (a.k.a. Bluebird) for taking time to welcome me following surgery and to begin introducing me to great forum members. 

Wishing you all the very best today and always,  

Barry (a.k.a. Idaho)


Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
3/'10 <0.04; Latest PSA 6/'10 <0.01

Post Edited (IdahoSurvivor) : 7/31/2010 1:04:47 PM (GMT-6)


goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 7/31/2010 2:08 PM (GMT -6)   
Fantastic Barry. Life is good !
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 7/31/2010 2:29 PM (GMT -6)   
Great news Barry and my ask what part of Idaho you live in? I visit the Post Falls, Couer D Alene area several times per year and absolutely love it.

peace to you
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
I was on Lupron, Casodex, and Avodart for two years with my last shot March 2009. I am currently (7-22-2010) not on any medication.
My Oncology hospital is The Cancer Treatment Center of America in Zion IL
PSA July of 2007 was 16.4
PSA May of 2008 was.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13
PSA April 16th of 2010 is .16
PSA July 22nd of 2010 is .71
Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 7/31/2010 2:50 PM (GMT -6)   
BARRY - congrats on the three year anniversary - here's to another three "to the power of infinity" years of happy healthy zero's !!!
all the best
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - June/2010 -have trimix - tried it twice - Aug 2010 -just lacking motivation right now
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs - August 2010 - still at one pad for day and one for night - primarily for hygiene and security - still having good and bad days due to stress and what I have consumed.
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............

creed_three
Veteran Member


Date Joined Jan 2007
Total Posts : 762
   Posted 7/31/2010 5:57 PM (GMT -6)   
Hi Barry,
WOO HOO! WOO HOO and again, WOO HOO!!   turn This is great news, and good to hear from you that all continues so well. Congrat's on the 3 yr mark (we were just 3 months ahead of ya). Wishing you continued peace, health and happiness. cheers, Lana & CJ. tongue tongue
Creed_three (Lana) - with husband "CJ" now aged 52.5 yrs (49 years at diagnosis).
PSA (2002) 2.1. (2006) 3.5.  1 x 5% core of 12 positive at biopsy. Open Radical Prostatectomy with nerve sparing April 2007 Sydney, Australia. Gleeson 3 + 4 = 7. 2 x small multifocal lesions. Contained. Undetectable <.1 PSA since: June 2007-0.01, Oct 2007-0.02, April 2008-0.02: Oct 2008-0.03, Nov, 2008-0.02, April 2009-0.03, April 2010 - 0.03. 

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 7/31/2010 7:06 PM (GMT -6)   
Barry, my friend, this is such wonderful news to read. I share in your excitement and celebration, many more good years for you, I hope and trust.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19

IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 7/31/2010 7:55 PM (GMT -6)   
Thanks for all the well-wishes!

Goodlife: So true... Surviving is a good thing!

Dale: I live in Boise and visit the Spokane area a couple of times each year. If you'd like, send an e-mail from my panel icon (left) and if you're in that area during my next Spokane visit, and we may be able to get together with Jim (a.k.a. Biker) as well.

Bronson: 'Gotta love them zeros, however they get here!

Lana and CJ: Yes. 'Happy for your success as well. I'm following good leaders.

David in SC: Thank you, kind Sir. We're having lemon meringue pie today to celebrate!

 

Barry


Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
3/'10 <0.04; Latest PSA 6/'10 <0.01

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 7/31/2010 9:56 PM (GMT -6)   
Barry,
Thanks for posting your encouraging news. It gives the rest of us hope. Congratulations.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005

bluebird
Veteran Member


Date Joined May 2006
Total Posts : 2542
   Posted 8/1/2010 8:10 AM (GMT -6)   
tongue  BARRY ~ thank you for sharing this special day with all of us.  Your posting touches our heart!!!  It truly is a special bond that we have.  Each and every day ~ our thoughts and prayers ~ ripple out to touch a life.  

We love you and your family ~ dearly….

 

J Chirp~Chirp~Chirp  J

Hugs ~ Rainbows ~ Sunshine

The  Power  of Hope  ~  Positive  Thinking

Stepping Stones to HealingWell

 

It only takes “1 “Word”, “1” Thread, “1” Posting ~ to “Help” a friend.

There are so many people “here” willing to share their lives with others.

 

I am so happy to see “Newbies” come onboard

taking that 1st step to join us!

It’s a big step ~ but their lives are changed forever.

 

We (all of us) are part of the HealingWell family forever ~ even as we find ourselves moving on to other stones in our path to a new “norm” of life.

 

Leaving on our path information that is valuable…

the sharing of All of “Our Journeys”

each one being uniquely our own.

 

Woo~Hoo  from the 3 of us!!!!!


 *bluebird  ~ Lee, Buddy, & Murphy from North Carolina

Link to our personal journey…>>>     Our Journey ~ Sharing is Caring 

April 3, 2006  Radical Retropubic Prostatectomy

4 Years ~ 8th PSA April 2010 ~  less than 0.1 NON-DETECTABLE

 


biker90
Veteran Member


Date Joined Nov 2006
Total Posts : 1464
   Posted 8/1/2010 4:01 PM (GMT -6)   
Good job Barry and congrats!!!! Your patience and great attitude paid off big time...

Jim
Age 76. Diagnosed 11/03/06. PSA 7.05. Stage T2C Gleason 3+3.
RRP 12/7/06. Nerves and nodes okay.
Catheter out on 12/13/06. Dry on 12/14/06.
Pathological stage: T2C N0 MX. Gleason 3+4.
50 mg Viagra + .05 cc Trimix = Excellent Results
PSAs from 1/3/07 - 7/17/09 zero.
Next PSA - July/2010
Lung cancer dxed on 5/16/08. Surgery on 6/25/08 T1N1M0 - Stage IIA Finished 4 cycles of chemo on 11/7/08.
CT scans on 12/2/08 - 12/22/09 - in remission!!!
Next scan in August 2010.
Biker90's Journey
http://www.caringbridge.org/visit/jimrobinson
"Patience is essential, attitude is everything."

mvesr
Veteran Member


Date Joined Apr 2007
Total Posts : 823
   Posted 8/1/2010 6:26 PM (GMT -6)   

Hi Barry

 

Such a milestone on your journey.  If not for the wonderful people here at Healing Well including our great friend BlueBird we would all be in a sad state of affairs.  I am just past my three year period and things are doing very well also.  Hope you have many good years on your journey.

 

Mika


age at dx 54 now 58
psa at dx 4.3
got the bad news 1/29/07
open surgery Duke Medical Center 5-29-07
never more than 2 pads
ED is getting better
the shots work great, still can't give them to myself
three years of zero's
Retired again after 36 years February 1, 2010

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 8/2/2010 8:21 AM (GMT -6)   
Great news! I know 3 years is along time. What is your interval for check-up (6 months or annual)?
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/2/2010 12:43 PM (GMT -6)   
Hey Barry, this is the best news to come out of Idaho since you invented McDonald's fries!

Congratulations.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

apacker1950
Regular Member


Date Joined Nov 2008
Total Posts : 122
   Posted 8/2/2010 1:00 PM (GMT -6)   
Congratulations from another Idaho boy.  Eastern side of the state.  Keep the Zeros coming.
 
Allan
Current age 59
Dx PCa age 54. Jly 05- PSA 8.1 Sept 05- PSA 10.7
Sept 05- Biopsy  9 of 12 cancerous, Gleason 3+3=6, T2
Bone scan and cat scan showed hot spot on hip bone.
Oct 05- bone biopsy, ouch.  benign , no cancer in bones.
Nov 05- PSA 15.4 Nov 18, 05- Nerve sparing open RP at Huntsman Cancer Center, by Dr. Robert Stevenson. 100% continence at 3 months. ED- Tried the big 3 pills with no results. Feb 06-Started VED, worked, but painful with constriction rings. May 06 started Trimix injections.
ED appears to be perminant but doing great with Trimix.
PSA remains undetectable.

gold horse
Regular Member


Date Joined Nov 2009
Total Posts : 360
   Posted 8/2/2010 4:05 PM (GMT -6)   
congratulations and keep bringing those zerooooooooooooos tongue

DIAGN=46 YEARS
GLEASON=3+3
FATHER HAD PC,THEN I THEN MY BROTHER STILL HAS TWO BROTHER PC FREE.
MARRIED,TWO CHILDREN.AGE 13 AND 8.
LAPROSCOPY SURGERY 6/2005
PATOLOGY REPORT.
GLEASON=3+3
TUMOR VOLUME=5%
LYMPHOVASCULAR INVASION=NEG
PERINEURAL INVASION=POSI
TUMOR MULTICENTRICITY=NEG
EXTRAPROSTATIC INVASION=NEG
SEMINAL VESICLES BOTH=CLEAN
MARGIN ALL=NEG
PT2ANXMX
DEVELOP SCART TISSUE AND NEEDED A SECOND SURGERY BECAUSE COULD NOT URINATE,
PSA 6/05=0.04,0.04,0.04,6/06,0.04,0.04,0.04,6/07,0.04,0.04,0.04,6/08,0.04,0.04,1/09
0.04,10/09,0.04
 

IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 8/2/2010 5:08 PM (GMT -6)   
Ed C. - Thank you, sir.
Bluebird – What can I say? You've been there since day one. Thank you for everything!
Biker – Thanks for your continued support over the years, my friend.
Mika – Thanks and congrats on your three year stretch as well!
Rob – Thanks. My doctor prescripts annual checkups now, but I'm going every six months for my own mental health. tongue
Sheldon – LOL. Thanks for supporting a spud in Idaho!
Allan – Thank you. You prop up the east, I'll take care of the west.
Gold – Thanks to you as well.

Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
3/'10 <0.04; Latest PSA 6/'10 <0.01

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/2/2010 8:37 PM (GMT -6)   
Great news Barry,
It's hard to believe how long we've been here, but i sure love the friends and hope. This site is full of wonderful stories of hope...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 8/3/2010 2:31 PM (GMT -6)   
Woohoo is right!! Barry we miss you around here, but are soooo happy that you are doing so well and in remission. I will never forget your kindness when I joined this forum! Cheers to you!
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum

IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 8/3/2010 2:57 PM (GMT -6)   
Tony: The years are passing quickly and this is a great forum! Thanks for continuing to be a "mod" tongue

Doting: Yes... I'm on occasionally. I've been traveling lately, more than in the last two years. You have been very kind to me as well. Thank you for being a "mod" too!

Wishing both of you and families the very best,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
3/'10 <0.04; Latest PSA 6/'10 <0.01
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