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polfred
Regular Member


Date Joined Dec 2009
Total Posts : 62
   Posted 7/31/2010 7:23 PM (GMT -6)   
Hi everyone,k
I haven't posted for a while, but just wanted to give an update.  Husband's last psa was undetectable.  His next one is scheduled in December. He is still getting the Lupron injections every 3 months. I am so thankful. Best wishes and blessing to all of you.
Jan
 
 
Age 59
PSA 9 on-08-09
Given antibiotics for 1 month/
PSA 10 on 10-09
Biopsy 11-18-09-Results 10 of 12 cores positive
CT and Bone scan negative
Diagnosed on 11-20-09
Lupron injection/ 7 dys of casodex on 11-20-09
Markers placed on 12-15-09
Planning scan scheduled 1-18-2010/ 8 wks radiation to follow
Treatments began 1-20-2010
Lupron injection-3-1-2010
Radiation treatments end (54)-3-26-2010
PSA undetectable/ 3-26-2010
 

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2842
   Posted 7/31/2010 7:27 PM (GMT -6)   
jan / miltdav:
congrats on the great PSA results - here's to a lifetime of zero's -
- all the best to you and your husband
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - June/2010 -have trimix - tried it twice - Aug 2010 -just lacking motivation right now
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs - August 2010 - still at one pad for day and one for night - primarily for hygiene and security - still having good and bad days due to stress and what I have consumed.
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2458
   Posted 7/31/2010 8:54 PM (GMT -6)   
Miltdav and Jan,
Congratulations on the undetectable PSA. Great start.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005

livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/1/2010 9:19 AM (GMT -6)   
thanks for the update Jan, I know that Lupron is a tough battle and it sounds like you guys are handling it well. Please stay in touch more often if you can.

peace to you
dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
I was on Lupron, Casodex, and Avodart for two years with my last shot March 2009. I am currently (7-22-2010) not on any medication.
My Oncology hospital is The Cancer Treatment Center of America in Zion IL
PSA July of 2007 was 16.4
PSA May of 2008 was.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13
PSA April 16th of 2010 is .16
PSA July 22nd of 2010 is .71
Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/1/2010 9:44 AM (GMT -6)   
You are basically following a protocol that is called the Bolla Study, ADT prior to radiations and ADT after, usually docs do this for 2-3 yrs. (atleast alot of them) and then consider holiday off time or intermittent use thereafter. Maybe post what non-detectable number was given to you as a reference. People whom did the Bolla protocol vs. radiation only, who used the ADT prior and after had very significant and longer survival times. Read about Bolla Abstracts:
www.ncbi.nlm.nih.gov/pubmed/12126818
www.nejm.org/cgi/content/short/360/24/2516  (or google Bolla Study Abstracts)
(there is more than one Bolla study done on this protocol, older one and newer one)

Post Edited (zufus) : 8/1/2010 3:42:10 PM (GMT-6)


Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/1/2010 9:52 AM (GMT -6)   
Jan, so happy for both you and your husband. Hope he continues to do so well :)
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2222
   Posted 8/1/2010 10:22 AM (GMT -6)   
Great to hear Jan, and blessings right back at you!
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 8/1/2010 10:35 AM (GMT -6)   
Jan, that is some really good news. Thanks for dropping by and giving us the update. May your blessings continue and you renew your membership in the zero club for many years to come.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -performed
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.
7/22/10 PSA test 1.3 - Begin radiation for MET on leg

polfred
Regular Member


Date Joined Dec 2009
Total Posts : 62
   Posted 8/1/2010 6:54 PM (GMT -6)   
Thanks guys. Zufus, thank you for the information. I will follow up. I was so excited to get the news from the nurse, that I didn't think to ask about numbers.  I will request a copy of the last results.
Jan
Age 59
PSA 9 on-08-09
Given antibiotics for 1 month/
PSA 10 on 10-09
Biopsy 11-18-09-Results 10 of 12 cores positive
CT and Bone scan negative
Diagnosed on 11-20-09
Lupron injection/ 7 dys of casodex on 11-20-09
Markers placed on 12-15-09
Planning scan scheduled 1-18-2010/ 8 wks radiation to follow
Treatments began 1-20-2010
Lupron injection-3-1-2010
Radiation treatments end (54)-3-26-2010
PSA undetectable/ 3-26-2010
 

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/2/2010 5:59 AM (GMT -6)   
Thank you-Jan- (Miltdav) and just hearing non-detectable would make anyone excited at anytime. If you see an increased psa at some point, don't panic you could have 'radiation bounce'  smhair within the first 2 yrs. even (usually sooner), the good news is that the bounce upwards is followed by a drop in psa thereafter (that being your clue).  idea This is why you need psa history and never judge anything on one psa  nono   always confirm the psa again for many reasons  yeah   including lab mistakes. This info is in Dr. Strums book- A Primer on Prostate Cancer-THE Empowered Patients Guide. cool    :-)
 
As you can see I got animated on this today-LOL!
:-)
Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 8/2/2010 6:02:17 AM (GMT-6)


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/2/2010 11:49 AM (GMT -6)   
Jan, great to hear this news ---- undetectable is such a beautiful word !

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  
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