Just got back from the Uro office. Had my blood drawn for my 3rd post-SRT PSA test. Should get results tommorow or Thursday, and as usual, they were instructed to call me and/or leave a message with the results. It's almost at the point with me, that any PSA test is just now a minor blip or reminder of my PC world. Once you have done all the curative treatments, there's no point in sweating it out, because you have done what you can do. I know we are all different on that point, and depends where you are at in your travels.
Sunday, August 1st, marked my 11th month with a continuous suprapubic catheter. Even I find that incredible to believe. Originally, it was expected to be in place 3 months tops. In that department, despite having 3 corrective surgeries since the radiation ended last November, there is no real healing or improvement. The bladder neck will still keep scarring closed within 2-3 month intervals. I still experience moderate amounts of penile shaft, rectal, and especially bladder neck pain on a daily basis.
Its' been a month since my last corrective surgery, and I most say, that this one caused me the most pain and grief of the lot. The dr. was shocked at how much radiation related damaged he can see in my lower bladder and bladder neck, both areas that the radiation clinic claimed they weren't targeting, and if IMRT is supposed to be so focused and "aimed", there shouldn't even been much if any "scattering". So for me, my worse fears about undergoing radiation for a second time in my life came true, and something went very wrong.
I meet with my uro/surgeon for a consultation in 2 weeks. I am sure we will have to have another painful SP tube swap, that will make cath #21 for those that keep score, and will be discussing what my thoughts are about having an urinary diversion surgery.
It's still a tough choice to make. I don't think I want to spend the rest of my life trapped and limited by these caths, SP or Foley, and the pain and spasms related to them. But, the next surgery is magor with a long recovery time, and another quality of life issue to consider, and that's assuming nothing goes wrong. I am leaning toward making the decision, I have spent endless hours talking with others that have underwent the same thing at other forumns and sites, and the overhwhelming opinion is that it helped improved the quality of life for most of them. Its a surgery, that's been done for over 50 years with low complications and risks. But the thoughts of undergoing another major surgery spooks me a bit.
It may be well worth going through another phase/ordeal, especially if ultimately I can return to some semblence of a normal life again.
I was out in my outdoor shed recently, and saw the brand new bicycle that someone gave me a full year ago, and it is sad, I have never ever been able to even sit on the seat, let alone ride it. Something has to change, my life is whittling away, a day at a time. Tough decision ahead.
The PSA part, I almost don't care at this point, I knew what my percentages were going into SRT, and that will be whatever it is. If it fails and I have recurrance for a second time, I still do not intend to go through HT, Chemo, or any other form of chemical castrations. Just a personal thing with me, no reflection on its value for any of my brothers that use those methods every day. Its all about choices.
David in SC
58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.33rd Biopsy
: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3Open RP:
11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09Path Rpt
: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest: 7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped 9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 ,Cath #11 - 21 days, Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19