3 Cheers for Todd ~ Living1963

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Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/3/2010 12:07 PM (GMT -6)   
I received a call today from Todd. His PSA has climbed to 6 in just a short time. I just wanted to rally the troops for support of one of the most inspirational stories here at HW. For those who have not interacted with him, he is a year younger than me at 47, he has had prostate cancer since he was 42, his initial PSA was a whopping 3200+. He recently came off ADT and was feeling very normal, but now he will have to make a decision.

zufus, keep your email open, I told him to contact you when he could.

Ruthie and I love you, Todd. Please give our best to Amanda, too. As always call anytime...

PS: Remember it's riding season year around out here...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2845
   Posted 8/3/2010 12:50 PM (GMT -6)   
One thing I have found a bit overwhelming at times is the unconditional support members of this website -prostate cancer postings - have for one another.

We often see it in the mass media blitzes for Breast Cancer Awareness - Dragon Boat Races - Fun Runs and the like - but so hard to find for Prostate Cancer - almost like a secret club in which no one wants to be a member - but are.

To Tony - congrats to you and your successes and your caring and heart...

To Todd -Living1963 - you are in our thoughts and prayers - here's to a good steady resolution to the increase and bring you back into the zero club -
RAH RAH RAH ( 3 cheers!)

- give us a T - give us an O - give us a D - do it again - D ! what do you got?

TODD - TODD - TODD
yeah........yeah......yeah

healing hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - June/2010 -have trimix - tried it twice - Aug 2010 -just lacking motivation right now
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs - August 2010 - still at one pad for day and one for night - primarily for hygiene and security - still having good and bad days due to stress and what I have consumed.
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............

Post Edited (tatt2man) : 8/3/2010 4:36:18 PM (GMT-6)


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 8/3/2010 1:42 PM (GMT -6)   
Todd,
I heard a trip out East is Good For Mens Prostate Health. I'm sure there's a bed here with your name on it.
Jeff

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 8/3/2010 1:45 PM (GMT -6)   
Its people like Todd that make the world go round cool
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


Doting Daughter
Veteran Member


Date Joined Aug 2007
Total Posts : 1064
   Posted 8/3/2010 2:30 PM (GMT -6)   
Todd- you are one of the most positive members of this forum! Your strength and cheer are constant inspiration in here and out in the world! Our thoughts and prayers are with you as you embark upon the next step of your journey!
All the best!

DD
Father's Age DX 62 (now 64)
Original Gleason 3+4=7, Post-Op Gleason- 4+3=7,
DaVinci Surgery Aug 31, 2007
Focally Positive Right Margin, One positive node. T3a N1 M0.
Bone Scan/CT Negative (Sept. 10, 2007)
Oct. 17 PSA 0.07
Nov. 13 PSA 0.05
Casodex adm. Nov 07, Lupron beg. Dec 03, 2007 2 yrs
Radiation March 03-April 22, 2008- 8 weeks 5x a week
July 2, 08 PSA <.02
Oct. 10, 08 PSA <.02
Oct. 9, 09 PSA <.01 Last Lupron Shot
Praying for a cured dad.

Co-Moderator Prostate Cancer Forum

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/3/2010 3:07 PM (GMT -6)   
Todd, only the best thoughts, prayers, and hope to you, brother. You are quite a source of strength here at HW.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/3/2010 3:55 PM (GMT -6)   
Thanks Tony, Todd now has gotten my email with some info and web links to look at. I forgot how high his psa level was, nobody wants to see those numbers...so far his response has been very good, now how to watch it like a hawk. Todd I would get psa tests done often enough right now while waiting to choose something else, like 2-4 weeks if possible, but I have been one to get psa's often, with walkin psa tests at $15 whenever and compared with my quarterly docs tests, have even got 3 psas in June (experiment additive I was working on)-LOL! (I will go outside the box).

Switching drugs and trying to fool the PCa seems to work in most other patients (generally). Some guys are into year 17 battling this from the beginning (not the lower stats to start with guys). They also have done various protocols but got responses. There are some guys in Canada & USA at the hrpca group whom are into some longer term protocols right now that we can follow when posted onto their group as to the time frames and protocols, etc. (really invaluable information to see what goes on in the oncology world).

Probably at some point Todd will try on a different drug protocol and I'm going to say right now, very likely to get decent response because patients whom get good response on first line hormone therapies, usually do well on second line therapies...of course in PCa..it all can vary. I can only relate to what I have seen, witnessed and gone through on my own protocols and maybe read about too, so trying to be helpful if I can. Maybe find a top notch onco-doc right now even if you have to travel. I have a guy in my Michigan PCa group seeing Dr. Scholz in California a couple times a year and getting good results on Leukine and he is like year 12 or more on his case. (w/insurance of course).
TODD YOU GOT SOME FRIENDS IN THE HOUSE AT H.W.    yeah
Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 8/3/2010 3:04:57 PM (GMT-6)


Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/3/2010 4:52 PM (GMT -6)   
Tony, thanks for posting this.

Todd, I can't begin to give you the good advice others here are giving you, or even cheer as well as Bronson, but be assured I do cheer you on and wish you the best. As others have noted you are such a powerhouse here. I hope the advice and cheers you're getting will be as rewarding as the support you always give the rest of us.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

mikey1955
Veteran Member


Date Joined Dec 2008
Total Posts : 673
   Posted 8/3/2010 5:10 PM (GMT -6)   

Tony, thanks for putting this up.

Todd, I can't even think of anything that could even remotely resemble advice.

So, having said that...I will offer to you what you have given to many here...3 REALLY BIG CHEERS!!!!!!...and more.

You're in my thoughts.

 

All the best.

 


-Nov/Dec 07, March 08 and Dec 08: Severe perineum pain . Septra/Bactrim for 8 months for diagnosed prostatitis.
-PSA start of 2008: 5.3..... PSA June of 2008: 7.3
-14 DRE all benign or nothing felt
-TRUS Biopsy Nov 08: 5 of 8 cores positive GS 3+3 or 6. 30-65%. Perineural invasion.
-General Health: pretty good, 5' 10", 180 lbs, slim.
-Open RP surgery: May 09 both nerve bundles spared. Bilateral lymph node dissection performed. Discharged 48 hours after surgery.
-Post Surgery Pathology: pT3a N0 MX, extraprostatic extension (EPE), stage III prostate cancer, lymph nodes clear, seminal vesicles clear, Gleason upraded to 3+4 GS 7. EPE within surgical margins. Other than prostate and EPE, all tissue removed negative for cancer involvement.
-Bladder control within 48 hours of catheter removal
-ED ongoing but improving. ED oral meds didn't do much initially. TRIMIX was working very well. Initial dose of 0.1 mL too much. Had priapism at 0.075 mL that ended up in a humiliating ER visit. Doses recently after 50% dilution by Uro about 0.025 mL or less. Don't use Trimix anymore...I'm too sensitive to it, even at very low doses and the Alprostadil is pretty consistent in causing erection pain...had a few episodes of 3+ hour wood with pain.
-Levitra now starting to work at low doses of 5 mG to 10 mG. Sometimes the side effects like stuffy nose aren't fun...sometimes OK.
-Was supposed to see ED doc last week, but due to his schedule, will now be late August. Will discuss bimix with him.
 

don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 8/3/2010 5:40 PM (GMT -6)   
Tony,
 
Thanks for letting us know.
 
Todd, you have been and sitll are my inspiration on this site. I hope that you are able to find something else to sustain your success. You will be in my thoughts.
 
Don
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Two years on Lupron completed 01/2010.
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 were full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones
PSA 06/09 .36 or .30 depending on who did the test
PSA 09/09 .33 one year after IMRT and 16 months into hormone
PSA 03/10 .32 18 months after IMRT Still on hormones
PSA 05/10 .42 Rising a little as the lupron wears off. Last lupron shot 01/10.
PSA 06/10 .322 Maybe the .42 reported in May was in error?
PSA 07/14/2010 0.1

Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 460
   Posted 8/3/2010 7:35 PM (GMT -6)   

 

Todd,

MJ and I are praying for you and know that you have the strength to again beat this PC monster down.

 

Jerry1

 


Age 70
DX 8/13/08 , PSA 4.0, Biopsy 14 samples 1 positive 12% of sample,
Gleason Score 4+4 =8  Bone scan and MRI negative
Da Vince surgery on Oct 17, 08 Florida Hospital Dr Vipul Patel
Post Gleason report  4+4 = 8 Lymph nodes on both sides negative
margins Negative  Stage II (pt2a) 
Cath out on October 29th left in longer due to small leak.
11/19/08 dry no more pads
12/2/08 first PSA <0.1
 3/6/09 6 Month PSA 0.0
6/3/09 9 month  PSA 0.1
7/14/09  PSA still 0.1
10/15/09 PSA 0.3
10/26/09 surgery to remove 3 clips in bladder neck  
11/16/09 PSA 0.3
12/14/09 PSA 0.4 
12/28/09 PSA 0.5
Start salvage radiation treatments on January 18th. 
Finished IMRT
First PSA after 3 mos. 1.5 not good news


BillyMac
Veteran Member


Date Joined Feb 2008
Total Posts : 1858
   Posted 8/3/2010 8:15 PM (GMT -6)   
Todd is a fighter that's for sure. Overcoming a PSA that high and his success to date is an inspiration to all of us. The highs and lows of this battle are enough to wear any of us out so here's to Todd and his wife overcoming this next challenge. All my best for beating it back down again.
Bill
Biopsy

4 of 10 cores positive for Adenocarcinoma-------bummer!
Core 1 <5%, core 2----50%, core 3----60%, core 4----50%
Biopsy Pathologist's comment:
Gleason 4+3=7 (80% grade 4) Stage T2c
Neither extracapsular nor perineural invasion is identified
CT scan and Bone scan show no evidence of metastases
Da Vinci RP Aug 10th 2007

Post-op

Positive for perineural invasion and 1 small focal extension
Negative at surgical margins, negative node and negative vesicle involvement
Some 4+4=8 identified ........upgraded to Gleason 8
PSA Oct '07 <0.1 undetectable
PSA Jan '08 <0.1 undetectable
PSA April '08 <0.001 undetectable (disregarded due to lab "misreporting")
PSA August '08 <0.001 undetectable (disregarded due to lab "misreporting"-----it is not possible for any lab to get a reading of less than .003)

Post-op pathology rechecked by new lab:

Gleason downgraded to 4+3=7
Focal extension comprised of grade 3 cells
PSA September '08 <0.01 (new lab)
PSA February 09 <0.01
PSA May '10 <0.01

www.yananow.net/Mentors/BillM2.htm

Never underestimate old people ............ you don't get to be old by being stupid.

IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 8/4/2010 1:38 AM (GMT -6)   
Many cheers for you and Amanda, Todd.

I truly hope you'll find a way through this thing and beat it.

Our thoughts and prayers are with you. yeah

All the best,

Barry


Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
3/'10 <0.04; Latest PSA 6/'10 <0.01
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