Just a good story

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don826
Veteran Member


Date Joined May 2008
Total Posts : 1010
   Posted 8/4/2010 6:59 AM (GMT -6)   
A couple of years ago when I was diagnosed and it became know to my colleagues that I had PCa I had an interesting conversation with one of them. A lady with whom I work shared a story about her fathers experience with PCa. He had been diagnosed and treated with radiation as primary at the age of 70 some twenty eight years prior. I assumed that he had most likely passed on after that period of time and inquired as to whether or not the PCa was instrumental in his demise. She laughed and said "no, he is still living and has had to slow down after falling off the roof at age 95 a few years ago". Well, today I ran into my friend and she shared that she was going to Arizona to visit her father on his 100th birthday in a couple of weeks.
 
Just thought this was a good story as we do not often hear from thirty year survivors.
 
Best to all.
Don
Diagnosed 04/10/08 Age 58 at the time
Gleason 4 + 3
DRE palpable tumor on left side
100% of 12 cores positive for PCa range 35% to 85%
Bone scan clear and chest x ray clear
CT scan shows potential lymph node involvement in pelvic region
Started Casodex on May 2 and stopped on June 1, 2008
Two years on Lupron completed 01/2010.
Started IMRT/IGRT on July 10, 2008. 45 treatments scheduled
First 25 were full pelvic for a total dose of 45 Gray to lymph nodes.
Last 20 to prostate only. Total dose to prostate 81 Gray.
Completed IMRT/IGRT 09/11/08.
PSA 02/08 21.5 at diagnosis
PSA 07/08 .82 after 8 wks of hormones
PSA 10/08 .642 one month after completion of IMRT, 6 months hormone
PSA 03/09 .38 six months post radiation and nine months into hormones
PSA 06/09 .36 or .30 depending on who did the test
PSA 09/09 .33 one year after IMRT and 16 months into hormone
PSA 03/10 .32 18 months after IMRT Still on hormones
PSA 05/10 .42 Rising a little as the lupron wears off. Last lupron shot 01/10.
PSA 06/10 .322 Maybe the .42 reported in May was in error?
PSA 07/14/2010 0.1

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 8/4/2010 7:10 AM (GMT -6)   

Thanks - that is a nice story.

My parents are 80 & 82 and in not too bad of shape. I hope I make it at least that long and in at lease as good of condition.


Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/4/2010 7:13 AM (GMT -6)   
That is encouraging to see such and back then, no doubt he got the old tech radiation machines which are synonomous with more collateral damage to the patient, and appears likely he was cured by such in this scenario. Great story.
Youth is wasted on the Young-(W.C. Fields)

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4119
   Posted 8/4/2010 7:28 AM (GMT -6)   
This is a GREAT story.

Cajun Jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3741
   Posted 8/4/2010 9:04 AM (GMT -6)   
Nice story.

(If you tell me he stopped taking viagra last year because of extended erections, I'm going to cry.)
Jeff (the leaking one)

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/4/2010 9:07 AM (GMT -6)   
Great first story of the day to read, Don.
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/4/2010 1:30 PM (GMT -6)   
Great story --- thanks for sharing.

My mother is a 50 plus year breast cancer survivor and in those days surgical technique wasn't what it is today!

She'll be 97 in November. I just spoke to her on the telephone. She's at her cottage and has just been for a walk to check out the beach area, yesterday she went with my sister to get some stuff she wanted at the hardware store and this afternoon she says she's going to have a nap! Me too.

Here's to us all being 100 with zeros --- but, I'd just as soon not be in Arizona in the summer, if that's okay.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  
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