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donnathewife
Regular Member


Date Joined Oct 2009
Total Posts : 27
   Posted 8/4/2010 9:39 AM (GMT -6)   
Hi guys,
 
After asking you all what to do for my husband's cancer, he chose HIFU, he said he was way too afraid of the other options (probably from reading here).
 
The treatment was so easy, we just went to the hospital and he was put to sleep and I waited with the other women in the waiting room.  He returned with a tube coming out of his belly and we returned to our hotel.  We walked downtown for dinner and I was so relieved,  he was a little groggy from being out to sleep but he had no pain.
 
He (we) were so happy when he peed while clamping off the catheter, as he was in control, he had no side effects other than a bit of "referred" pain at the tip of his penis, but that's gone.
 
His catheter has been removed now, so it's all over.  I thoroughly recommend anyone with low scores look into this ultra sound treatment.  I understand they are now treating men with light waves !  It's a brave new world, however, my husband would say he was chicken, thats why he took the pay now approach.

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/4/2010 9:53 AM (GMT -6)   
Hi Donna,

While I've had a great result from surgery, not a day goes by that I don't wonder if I'd not been better off going with HIFU. At the time I was so focused on Gleason and pathology it hadn't really got into my head that as I was rolled out of the OR the real issue would be my ongoing PSA --- not the pathology.

I do hope you'll post from time to time and let us know how Bob (it was Bob, right?) is doing. And, it would be interesting to know where you went to get the HIFU done and how you felt about the doctor, the clinic, etc.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/4/2010 10:38 AM (GMT -6)   
Good news and good luck to your husband, hope the rest of his recovery goes so well, and that the HIFU rid him of PC for good
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19

Magaboo
Veteran Member


Date Joined Oct 2006
Total Posts : 1210
   Posted 8/4/2010 11:25 AM (GMT -6)   
Making the decision as to which procedure to get done is difficult for most of us. Several guys here went with the HIFU procedure with good results. I wish and hope that your husband's treatment was successful in killing the monster. Please keep in touch so that new guys can learn from your journey and perhaps choose to follow in your footsteps. Since the seriousness of the cancer is often the determining factor in treatment choice, it would be helpful for us if you could give us some of your hubby's stats in a signature.
All the best to you.
 
Mag

Born Sept 1936
PSA 7.9
-ve DRE
Gleason's Score 3+4=7, 2 of 8 positive
open RP 28 Nov 06 (nerve sparing), Post op staging T3a
Gleasons still 3+4=7
Seminal vesicles and lymph nodes clear
Catheter out 15 Dec 06, Dry since 11 Feb 07
All PSA tests in 2007 (4) <.04
PSA tests in 2008: Mar.=.04; Jun.=.05; Sept.=.08; 3 days before Rad Start=0.1
Salvage RT completed (33 days - 66 Grays) on the 19th Dec., 08.
PSA in Jan., 09=0.05; July 09 <0.04; JAN 10 <0.04; Jul 10 <.04

donnathewife
Regular Member


Date Joined Oct 2009
Total Posts : 27
   Posted 8/4/2010 3:42 PM (GMT -6)   
thanks guys for all your best wishes,
Our doctor was Steve Scionti, we love him!   a wonderful friendly guy.  There was another doctor treating with HIFU as well, can't remember his name.
 
The hospital in Puerto Vallarta was perfect, very small, couldn't have been cleaner or better, there were alot of men in International HIFU coats.
 
There were a couple doctors there to learn HIFU, in anticaption of HIFU being approved.   It's such a shame it isn't available in the states yet.  I hope that I can help someone find HIFU, we are so happy!  I know, I know, now the waiting continues.
 
Bob's stats:
PSA was 5.7
Gleason was 3+3=6
3 cores of 12 had cancer, 2 were 5%, 1 was 10%
Free PSA was 11%

Minn1951
Regular Member


Date Joined May 2010
Total Posts : 21
   Posted 8/4/2010 3:48 PM (GMT -6)   
Just wondering how old your husband is?
Diagnosed with Prostate Cancer 4/10/2010
 
Age 58
Stage: T2B
Greason Score: 3+ 3 = 6
PSA: 3.0
Prostate volumne 19cc
Tumor present in 3 of 5 cores on both the right and left with 6 of 55  mm or 11% on the right  and 4 of 59 mm or 7% on the left
 
No angiolymphatic or perineural invasion.  No high grade prostatic intraepithelial neoplasia.

donnathewife
Regular Member


Date Joined Oct 2009
Total Posts : 27
   Posted 8/5/2010 7:55 AM (GMT -6)   

Minn1951,

He is 64, but I don't think age matters as the nurse told us that men as low as 38 and as old as 84 have been treated with HIFU.

 good luck

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