&*%^#$##@!!!!!!

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Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3208
   Posted 8/4/2010 6:41 PM (GMT -6)   
Well guys and gals, I guess it was too good to last. My hormone vacation which began in november prompted me to take a vacation from cancer. My last psa in april was .46. I opted to pretend I was cancer free and have spent this summer living as though that were true. I , at he urging of my wife, had my blood drawn on monday. 6.0 /six point zero/ VI. You know what that really friggin sucks big time. I really was getting use to having a hairy chest and feeling masculine and looking at my wife and feeling hunger. CANCER SUCKS CANCER SUCKS CANCER SUCKS!!!!!!!!!!!!!!!!!!!!!!!!!. i HAVE YET TO DECIDE WHAT MY TREATMENT OF CHOICE WILL BE. If allowed to do its thing at the velocity it is doubleing at it will be at 3200 in a year. I guess that rules out watchful waiting. I am not too thrilled with waiting and dying so what will it be. Ahhh hormone or chemo. impotence or puking or both.$%*#*&^%%*&%%^&*((^^%% you get the idea.
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

Arnie
Regular Member


Date Joined Aug 2009
Total Posts : 372
   Posted 8/4/2010 7:02 PM (GMT -6)   
Yes, that really sucks....... I felt like screaming along with you. To come back so far and then have that hit you in the face.....well, I can't imagine. I'm truly sorry you have to face this. Thoughts & prayers, and hoping you find a way.
 
Arnie in DE
Age 56 (biopsy & surgery)
PSA at Diagnosis-3.9
Biposy 8/19/08--4 of 12 cores positive; 5% involvement, Gleason 6 (3+3)
 
Surgery 1/26/09-DaVinci Robotic Prostatectomy at Presbyterian Medical Center/HUP-Phila, PA
Dr. David Lee
 
Pathology Report- Adenocarcinoma, no capsular involvement, seminal vesicles clear, lymph nodes clear, negative margins, Gleason 7 (3+4), Stage T2C, NO MX, Prostate 61.8 grams, gland involvement 2-10%
 
Catheter removed after 8 days, totally dry at 3 months. ED issues continue, Viagra (via ADC) nightly (100mgs), VED use in earnest at 6 months. "Ball Park Frank" plumping at this point......ED at 10 months continues to improve, albeit slowly. Continued daily use of 100mg Viagra (ADC). Discontinued pump use; manual stimulation to varying states of erections; achieved penetratable erection on a couple of occasions----At 13 months, nocturnal erections are frequent. Still taking 100mg of ADC Viagra nightly. Libido still in the dumper, but working on it with doctors.
3 month PSA--<0.1
6 month PSA--<0.1
10 month PSA--<0.1
13 monthPSA--<0.1
18 month PSA--<0.1

Sleepless09
Veteran Member


Date Joined Jul 2009
Total Posts : 1267
   Posted 8/4/2010 7:02 PM (GMT -6)   
You're right. That really frigging sucks big time.

Whatever you decide to do next, here's hoping it whacks that PCa sucker for a loop to zero.

Sheldon AKA Sleepless
Age 67 in Apil '09 at news of 4 of 12 cores positive T2B and Gleason 3 + 3 and 5% to 25% PSA 1.5
Re-read of slides in June said Gleason 3 + 4 same four cores 5% to 15%
June 29 daVinci prostatectomy, Dr. Eric Estey, at Royal Alexandra Hospital Edmonton one night stay
From "knock out" to wake up in recovery less than two hours.  Actual surgery 70 minutes
Flew home to Winnipeg on July 3 after 5 nights in Ramada Inn  ---  perfect recovery spot!
Catheter out July 9
Final pathology is 3 + 4 Gleason 7, clear margins, clear nodes, T2C, sugeron says report is "excellent"
 
Oct 1st 09 -- dry at night, during day some stress issues.
Oct 31st padless 24/7 
 
First post op PSA Sept 09  less than 0.02
PSA on Oct 23, 2009 less than 0.02
PSA on Jan 8, 2010  less than 0.02
PSA on April 9, 2010 less than 0.02 
PSA on July 9, 2010 (one year) less than 0.02
  

60Michael
Veteran Member


Date Joined Jan 2009
Total Posts : 2216
   Posted 8/4/2010 7:14 PM (GMT -6)   
Sorry to hear that Living, and yes the hairy chest is nice and pubic is even better, but they are coming back little by little. I support you in whatever tx you chose my friend. keep us posted.
Michael
Dx with PCA 12/08 2 out of 12 cores positive 4.5 psa
59 yo when diagnosed, 61 yo 2010
Robotic surgery 5/09 Atlanta, Ga
Catheter out after 10 days
Gleason upgraded to 3+5, volume less than 10%
2 pads per day, 1 depends but getting better,
 started ED tx 7/17, slow go
Post op dx of neuropathy
T2C left lateral and left posterior margins involved
3 months psa.01, 6 month psa.4, 6 1/2 month psa.5 on 11/28/10
Starting IMRT on 1/18/10, Completed 39 tx at 70 gys on 3/12/10
6 week Post IMRT PSA .44 a drop from .5 but maybe more
Great family and friends
Michael

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2840
   Posted 8/4/2010 7:23 PM (GMT -6)   
Todd - sorry to hear the bad news - this is when one of those bozo punching bags would come in handy to help deal with the anger and frustration - wishing you all the best in the choice of treatment so you can kick Cancer in the Ass for once and for all -
sincere hugs
BRONSON
..........
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - June/2010 -have trimix - tried it twice - Aug 2010 -just lacking motivation right now
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs - August 2010 - still at one pad for day and one for night - primarily for hygiene and security - still having good and bad days due to stress and what I have consumed.
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............

deer hunter
Regular Member


Date Joined Jan 2010
Total Posts : 246
   Posted 8/4/2010 7:43 PM (GMT -6)   
Todd that really really does suck!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!all you can do is do your best to fight this monster our prayers are with you and your family
dx age 57 01/06 open RP 4/06 psa in 01/06 8.1  surgery path report Gleason 3+4=7 poorly differentiated  tumor was 90%involved in both lobes surgical margins postive. in the right apex and right radial margins tumor grade G3  perineural invasion present high grade of PIN found  T2c NX MX PSA 0706  .01 10/06 .02 01/07 .03 04/07 .04  06/07 .05  07/07 .08 07/07 bone scans pelvic ct neg. 08/07 proscintic scan neg.9/07 psa.10 net with rad onc. wanted to do SRT but i did not do it 10/07  saw a new dr at Emory University [my old dr urg. suggested second opinion ]  bone scans negs ct scans pelvics neg. biopies of the bladder and adrinal glands neg.another proscintic scan neg.12/07 Psa .11 clinial trial Emory injected with protons to try and find the cancer cells no luck 3/08 psa .17 06/08 psa .23 psa 09/08 psa .32 12/08 psa .39 3/09 psa .39 6/09 psa .43  meet with medical onc. he said  i might have waited to long to start SRT 7/09 psa .50  another bone scan ct scan all neg.MRI neg. meet rad. psa the last of 7/09was .55 onc. 7/09 started casdex 50mg 1 day for 30 days 2 shots of lupron started rad treament 10/09 40 treatments 75 gm 12 shots each time all aroud pelvic finished 12/09  psa .07 and psa 01/10.05 next dr visit 03/10 wait and see 3/10 psa.05 5/14/10  family doc done blood work at my request her lab psa .01  
6/17/10 saw rad.onc. having problems with hips and muscles {bone density test sch, 6/25/10 wait and see

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2447
   Posted 8/4/2010 7:52 PM (GMT -6)   
Todd, what can any of us say to news like this, except man we are with you.

Yep! you are right, on every level there is, PCa sucks. From your posts to me and others, you have always come across as a strong and caring individual. You sound like you have a very strong support group in place at home as well. I am sure that you will arrive at the path the is right for you.

Please know that you and your family will be in the prayers of my family for a successful outcome with your chosen path.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -performed
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.
7/22/10 PSA test 1.3 - Begin radiation for MET on leg

Jakester
Regular Member


Date Joined Aug 2009
Total Posts : 284
   Posted 8/4/2010 7:56 PM (GMT -6)   
Stinks to be blindsided like that, but your note demonstrates a heck of a lot fight left. My bet is on you to come back stronger than ever.

Jake
Diagnosed 8/2008 Pre-op psa 4.2, Age 60 at dx
7 of 12 biopsies positive 3+3
DaVinci LRP 11/08
Post Op pathology clear margins, confined to prostate, absent extraprostatic extension, vascular or perineural. Gleason 3+4=7, 5-10% of 4 and location in right mid-gland.
3 month psa .1 2/09, 6 month .1 5/09, 9 month .2 8/09
broke ankle bones 6/09
9/21/09 Bone scan clear, psa still .2
11/12/09 chest xray was clear, psa however up to .3,
01/05/10 psa still .3, radiation setup done with tats, 01/19/10 started 39 sessions 70.2gy, psa at 6th week salvage IMRT up to .4
Post SRT psa at 10 weeks (5/31/2010) down to .2

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25364
   Posted 8/4/2010 8:05 PM (GMT -6)   
Todd, so very very sorry to hear that. Vent and fume all you want, you deserve it. We are all with you, all the way, no matter what you do or don't do. Can't advise you, just support you as a brother.

You have a lot of friends and supporters here, I am one of them.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19

Piy
Regular Member


Date Joined Mar 2010
Total Posts : 145
   Posted 8/4/2010 8:22 PM (GMT -6)   
You deserved your vacation from Cancer!  And let me add my &*%^#$##@!!!!!!!
Now it's time to regroup and put your fighting gloves back on.  Throw everything including the kitchen sink at this SOB. 
You have options so stay positive and please keep us posted on your progress. 

Dx June 2007 - age 48

davinci RRP October 2007
75% of prostate involved
Gleason 9
Positive margin
Scans clear
No detectable mets
SRT - February 2008
PSA:

At Dx: 8
Mar '09: 0.4
Jun '09: 0.7
Aug '09: 1.7
Feb '10: .008
Apr '10: .007
July '10: .006

Commenced Dr. Robt Leibowitz "Three Pronged Approach" protocol in August 2009

Completed chemo Dec 28 2009

rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1131
   Posted 8/4/2010 8:36 PM (GMT -6)   
Sorry to hear the news.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3208
   Posted 8/4/2010 9:52 PM (GMT -6)   
I believe with all my heart that Iwill be able with the help of God . my family and you. my friends to overcome any bump in the road. I just wish that I could maintain my masculinity. I am only 46 years old. I'm not suppose to have prostate cancer. Let alone be stage 4. I just want to want to love my wife. Todd
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/4/2010 10:04 PM (GMT -6)   
We love ya, buddy!
Give Amanda a big hug for us, too. Call me anytime you want.

We hate this stupid disease, too.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 696
   Posted 8/4/2010 10:04 PM (GMT -6)   
Todd, I just wanted to echo the sentiments posted above over and over again. I wish things had gone better for you, but I'm glad you had a break, and I'm interested in following your journey. Thanks for being a contributing member of the community here--your posts mean a lot.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
pcabefore50.blogspot.com

IdahoSurvivor
Veteran Member


Date Joined Aug 2007
Total Posts : 1015
   Posted 8/5/2010 12:07 AM (GMT -6)   
Todd,

We're frustrated along with you... a great guy with a lot of fight in him.

I believe, like you, that there has to be a way. I hope the windows of opportunity open to you very soon.

Kind regards,

Barry
Surgery: Da Vinci; July 31, 2007; 54 on surgery day;
Pathology: PSA: 4.3; Gleason: 3+3=6; T2a; Confined to Prostate;
Post RP PSAs: 09/'07 <0.04; 12/'07 <0.04; 03/'08 <0.04;
06/'08 <0.04; 12/'08 <0.04; 06/'09 =0.06; 09/'09 <0.04; 12/'09 =0.05;
3/'10 <0.04; Latest PSA 6/'10 <0.01

Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3732
   Posted 8/5/2010 3:44 AM (GMT -6)   
Todd,

I can't add anything technical of value but you know me, I always have to look for a bright side. So after I looked between that rock and hard place, buried under a pile of pee pads I found a faint glimmer of phosphorescence from a decaying mushroom. Here's a little something for you.
I have not seen any chest hair on TV or in magazines since 2005. Apparently it is mandatory for anyone under the age of 25 to have it shaved, yanked, lasered, or corroded away. You are just way ahead of the curve. (a very faint glimmer indeed).

Remember, the guest room here is always open for you and your wife if you want to use our place as a home base for travel.

You'll make the right choice.

Jeff (the leaking one)

Post Edited (Worried Guy) : 8/5/2010 3:50:52 AM (GMT-6)


livinadream
Veteran Member


Date Joined Apr 2008
Total Posts : 1382
   Posted 8/5/2010 4:57 AM (GMT -6)   
Todd
thanks for posting and sharing those feelings. I believe it is valuable to allow the anger and disappointment to come out. I have to agree with you and all the others that this sucks big time. In your research what have you found that is an option to hormone treatment? It is time to take the fight to the enemy and whip some butt.

peace and love
Dale
My PSA at diagnosis was 16.3
age 47 (current)

http://www.caringbridge.org/visit/dalechildress

My gleason score from prostate was 4+5=9 and from the lymph nodes (3 positive) was 4+4=8
I had 44 IMRT's
I was on Lupron, Casodex, and Avodart for two years with my last shot March 2009. I am currently (7-22-2010) not on any medication.
My Oncology hospital is The Cancer Treatment Center of America in Zion IL
PSA July of 2007 was 16.4
PSA May of 2008 was.11
PSA July 24th, 2008 is 0.04
PSA Dec 16th, 2008 is .016
PSA Mar 30th, 2009 is .02
PSA July 28th 2009 is .01
PSA OCt 15th 2009 is .11
PSA Jan 15th 2010 is .13
PSA April 16th of 2010 is .16
PSA July 22nd of 2010 is .71
Testosterone keeps rising, the current number is 156, up from 57 in May

T level dropped to 37 Mar 30th, 2009
cancer in 4 of 6 cores
92%
80%
37%
28%

tatt2man
Veteran Member


Date Joined Jan 2010
Total Posts : 2840
   Posted 8/5/2010 5:27 AM (GMT -6)   
Todd - you nailed it on the head with your... "I really was getting use to having a hairy chest and feeling masculine and looking at my wife and feeling hunger. "

We are all angry at this disease - and the worse part of it, due to the conservative nature of society in North America, we can't openly admit to being denied the right to be complete - to be whole again. The boobs=good and peckers=bad scenario.
Maybe that is why Prostate Cancer is lagging behind in research, media coverage, support and funding - it's because the guys in charge don't want to think about losing their XXXXXXX - you fill in your own blanks...

Todd - please continue to be angry and fight this &*%^#$##@!
You have more love and support here at HW and at home than you will ever know.
sincere hugs
BRONSON
.................
Age: 54 - gay - with common-law spouse of 13 years, Steve - 60
PSA: 04/2007- 1.68 - 08/2009 - 3.46 - 10/2009 - 3.86
Confirmation of Prostate Cancer: October 16, 2009 - 6 of 12 cancerous samples , Gleason 7 (4+3)
Doctor: Dr. Mohamed Elharram -Urologist / Surgeon - Peterborough Regional Health Centre
Radical Prostatectomy Operation: November 18, 2009 , home - November 21, 2009
Post Surgery Biopsy: pT3a- gleason 7 - extraprostatic extension - perineural invasion - prostate weight - 34.1gm -
ED Prescription: Jan 8/2010 - started daily 5mg cialis - girth back to normal -but not much length - June/2010 -have trimix - tried it twice - Aug 2010 -just lacking motivation right now
Incontinence: Feb 2010- 3-5 pads/1-2 clothes changes/day- March 3, 2010 - week 14 after surgery -finally seeing improvement - March 29- incontinence better - 1-2 pads a day - one pad at night - May 25 - 1 pad during day - 1 pad at night for security (barely needed at all) - stress incontinence at work - lifting trees and shrubs - August 2010 - still at one pad for day and one for night - primarily for hygiene and security - still having good and bad days due to stress and what I have consumed.
location: Peteborough, Ontario, Canada
Post Surgery-PSA: - April 8, 2010 - 0.05 - I am in the ZERO CLUB - hooorah!
Next PSA - October 8, 2010 - TBA -
............

BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 8/5/2010 5:37 AM (GMT -6)   
Todd, very sorry about your PSA rise. No way you should be dealing with this at your age. You did get the s**t end of the stick. Be positive and keep up the fight. BB
Dx with PC Dec 2008 at 56, PSA 3.4


Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
psa May 10 .50

April 10 MRI and Bone Scan show lesion on lower spine, false positive.

Started HT 5/25/10 with 3 month shot of Trelstar. SRT scheduled for late July

psa July 10 <.01 HT at work

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/5/2010 6:02 AM (GMT -6)   
You are supported by whatever you and your doc decide, and it should be a consensus between you both, as only the patient does the protocol, myself very leary of 'soup n_z_' types of docs. Witnessed enough other patients over these years to see that many choices and avenues can be taken fighting this, sometimes you need to switch from one drug protocol to another to stay ahead of progression, but if something works well and side effects are tolerable...go with the flow.

I hope you can repost soon enough, that you found a new protocol that is working well. Your second line drug therapies should work for you, as those whom got good response on first line (like LHRH or casodex) as you did (Lupron)considering your numbers, also seem to do pretty well on second line drugs, I hope that resonates with you right now.

I have been known to rant on PCa from time to time, purges the steam from your system before one might explode...good therapy...and free to use!
Youth is wasted on the Young-(W.C. Fields)

Cajun Jeff
Veteran Member


Date Joined Mar 2009
Total Posts : 4089
   Posted 8/5/2010 7:58 AM (GMT -6)   
Todd:  I just want ti scream it one more time.
 
mad  PCA  SUCKS!!!
 
So sorry to hear you news.  Like Worried Guy mentioned.  Just about anything of importance has been said.  I just had to chime in and let you know that we are thinking about you.
 
I will add the South as a travel spot if you choose.  You and you wife are always welcome to our home in Louisiana. 
 
We may need to make a fad of chemical Manscaping!
 
Cajun jeff
9/08 PSA 5.4 referred to Urologist
9/08 Biopsy: GS 3+4=7 1 positive core in 12 1 pre cancer core
10/08 Nerve-Sparing open radical
Surgery Path Report Downgrade 3+3=6 GS Stage pT2c margins clear

3 month: PSA <0.1
6 month: PSA <0.1
10 month:PSA <0.1
1 year: PSA <0.1
16 month:PSA <0.1

ED - Started Cialis at 3 months, tried all 3, 6 months added pump, 9 months Tried MUSE (YUCK) Bad experience.
1 year mark Found new Urologist visit was at 14th month post surgery
Started Injections, Caverject! (Success)
17 month: ED making improvements : Oral Meds gets me 85%

medved
Veteran Member


Date Joined Nov 2009
Total Posts : 1096
   Posted 8/5/2010 9:04 AM (GMT -6)   
Any guy who is tough enough to fight the battle you are fighting is a "real man" -- regardless of body hair or libido. Best wishes.
Age 46.  Father died of p ca. 
My psa starting age 40: 1.4, 1.3, 1.43, 1.74, 1.7, 1.5, 1.5
 

rhb47
Regular Member


Date Joined Mar 2010
Total Posts : 208
   Posted 8/5/2010 11:26 AM (GMT -6)   
Hi Todd,

Ditto what everyone above said-just wanted you to know I'm thinking about you and sending positive thoughts your way.

Renee
Husband diagnosed 3/10
Age 56, PSA 4.7, free 7.6%
Biopsy 5 of 10 cores positve-all right side-25% to 57%
Gleason 6
DaVinci surgery with Dr. Vip Patel scheduled 8/9/10
 

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3208
   Posted 8/5/2010 5:20 PM (GMT -6)   
I do not see my Dr. for another week. I do not know what here recommendations will be. I am not too sure about how much I trust an h.m.o. but kaiser does seem to be one of the better ones out there. Still I take issue with for proffit health care. no-one should get rich because other people are sick. Even in argentina they have universal and someof the finest medical care in the world. I hate to say it but this country has lost sight of what is important and what is not. My only consilation is that those big fat cat cats will be lying in the dirt 6 ft under just like me and as my sunday school teacher use to hammer home. it is easier for the camel to enter the needles eye than for a rich man to enter the kingdom of heaven. sorry about your luck richy rich
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/5/2010 7:38 PM (GMT -6)   
Todd totally agree with the vision of the country you are seeing, it is all about the money and not all about what is in the complete interests of the patient or giving them all of their choices laid before them, no matter what they may actually be, even if unprofittable. You may have to become your own advocate in next therapy if they limit your choices, and either tell them what you want to try or go elsewhere for mulitple opinions. I had an onco-doc early on in my quest to get ADT3 combo, she would not allow me an Rx for proscar....I questioned why not (a few times to her)??? She did not have any answer as why not, just because she thought so...so I fired her immediately...I thought she was biased, ignorant and likely less than cutting edge...I have a case that will kill me and early on you cannot answer a question on this little common drug which generally is pretty harmless. Smelled like a soup n_zi to me, so fired and moved on, got Rx from another doc the next day. Fired a radiologist too, for lying to me on a couple of questions I asked(and verified)...this is no time to play games...or put profits above a patients choices or concerns. You can liteally try any of the second line hormone therapy drugs and still some others. IF you are only given one choice from the dictator, ask why not on the other drugs and listen closely and compare to reality thereafter.

see secondline hormone drugs: www.hrpca.org  and www.hormonerefractorypca.org
(click on tab that says 'Proven Treatments')

I have seen other patients in proactive mode...obtain better results. One of the leaders of UsToo.org is an example, 5 yrs. on drug that is unprofittable and usually not mentioned much to patients, he is pleased with using it....should resonate that choices are more than you usually are told about.
 
I don't know if you ever read Dr. Fred Lee's PCa story, another happy camper whom went outside the normal box and having excellent control for many years.
Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 8/5/2010 7:50:36 PM (GMT-6)

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