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alf203
Regular Member


Date Joined Jun 2010
Total Posts : 52
   Posted 8/5/2010 9:55 PM (GMT -6)   
Hi everyone; has any one been on chemo and how bad is it . runing out of drugs that work.  alf
AL     49  Found in Feb 2009   PSA 118  Gleason score 5-4=9            cores 11-12-90%  Stage T4m  Cat Scan -mri -Bone scan/ show caner has spread to spine/lung/liver. Treatmen; casadex + trellstar 3 months PSA droped to .054- pulled off casadex liver not handling med. PSA rose to 7.43 in three month next 2 months PSA 11.65 started lupron/and new drug tak700 PSA 5.46  PSA now 3.48  3/10      4/10 psa   3.34    5/10 psa 3.23 6/10 psa  3.36    drug starting to fail  wait till next month to see if still going up

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/6/2010 12:48 AM (GMT -6)   
Al,
Talk to David Emerson. He's in our age group and he has danced around and with Chemo. He spent 4 years trying to avoid it, did it, and has also done some things after it...Well!

He has a blog page and posts here as David E (FLHW). Beautiful man and has been down this road...

Davids Blog page: prostatecancerat42.blogspot.com
Davids charity: www.flhw.org

I have his personal email address if you can't find it...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/6/2010 7:00 AM (GMT -6)   
I don't know that much on chemo but witnessed many using such over the years, in other groups.
I knew one guy whom did Chemo- 1st then Brachy sees back in 2002-3, talked to him less than 1 yr ago., he has still an undetectable psa. But I would need to refresh what his original stats were, I cannot remember, I don't think he was high risk, probably was an intermediate risk patient at the most and that is why the chemo (bizzare protocol for primary treatment). How many docs have done that protocol on a patient or had a patient say let's do that??? (rare from what I have seen). Who knows how this may work in others?

In your situation, if you decide on chemo read about Cabizataxel the newer FDA chemo drug, it was used in abstract studies published recently, on patients whom already failed on Taxotere chemo, and still got results and more survival time. It out performed some other chemo drug in the abstract also. So, looks like as a chemo drug that is more useful, maybe more potent, google it. Personally would look at all other proven second line therapies before jumping into chemo, as the side effects can be rough. If I get to that area, looks like I will someday, would be trying plenty of other things prior to considering chemo, but that is my biased thoughts on such. I question everything the docs do or prescribe out of instinct now. (lol)

The guy you need to talk with after consulting with David E. is moderator at group at www.hrpca.org www.hrpca@yahoogroups.org (??? I think it is) Howard H.
Has done it and has coached many people and compared scenarios in hrpca (globally) for years....i.e...has references and knowledge you won't find easily elsewhere. One of the goto laypersons whom is the veterans-veteran lay person, 17 yrs. fighter thus far and helps others on a daily basis. Since we don't have alot of docs discussions for free(and maybe biased), this is worthy territory and more objective overall. You will learn from them about abstracts, journal articles and protocols you never heard of before.

Post Edited (zufus) : 8/6/2010 7:08:03 AM (GMT-6)


alf203
Regular Member


Date Joined Jun 2010
Total Posts : 52
   Posted 8/6/2010 7:28 AM (GMT -6)   
Thanks guys for info. I'm trining to hold off chemo as long as I can, doc agrees, looking for drug that will work for awhile longer then 4-5 months
AL     49  Found in Feb 2009   PSA 118  Gleason score 5-4=9            cores 11-12-90%  Stage T4m  Cat Scan -mri -Bone scan/ show caner has spread to spine/lung/liver. Treatmen; casadex + trellstar 3 months PSA droped to .054- pulled off casadex liver not handling med. PSA rose to 7.43 in three month next 2 months PSA 11.65 started lupron/and new drug tak700 PSA 5.46  PSA now 3.48  3/10      4/10 psa   3.34    5/10 psa 3.23 6/10 psa  3.36    drug starting to fail  wait till next month to see if still going up

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/6/2010 7:52 AM (GMT -6)   
Checkout www.yananow.net  for histories ('experiences-mentors') on other patients that you can atleast look at their journies and can usually contact the person also.
Youth is wasted on the Young-(W.C. Fields)

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/6/2010 8:59 AM (GMT -6)   
Alf,

I can't add anything to what has been suggested, but I wish you the best of luck in finding that next level and layer of help for your cancer situation. You have a tought set of stats there, and you are in that young group.

My thoughts are with you, hope you find an answer soon.

David in SC
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19

LuvMyDAD
Regular Member


Date Joined Dec 2009
Total Posts : 315
   Posted 8/6/2010 6:04 PM (GMT -6)   
Hi I am sorry to hear that you are trying to avoid chemo, I have heard the side effects can be pretty harsh. HOwever, my friend's father has been on chemo for about 4 yrs now (his psa is undetectable as of a month ago) and he has very minimal side effects, I guess its a case by case basis.
Might I suggest Provenge, have you considered it at all? I know the side effects are much less compared to chemo. Just a thought. You are in my prayers.
LuvMyDAD
Father diagnosed Nov. 9, 2009
Open radical prostatectomy Dec. 21, 2009, post op pathology report T3a, Gleason 7
5 week post op psa .55
Combination therapy, hormone and IMRT. 40 sessions 72gy.
Hoping and praying for a cured dad.

Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 8/6/2010 6:46 PM (GMT -6)   
Once again, check out David Emerson's blog. I've met the man and he's up on all the treatment options and doing pretty well. He recently held another fund-raiser for advanced PC and got local news coverage as well about 2 weeks ago. Great guy!

Bob
 AGE:58
 Dx: October,27, 2008(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T2c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive
 Confined to prostate.
 DaVinci Jan. 19th, 2009. No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 6 month Psa , 0.1 
 9 month Psa,  0.2  Doubled! Criminy!
 Started RT 10/28...one year since diagnosis.  RT over 12/22.
 3 month post RT Psa 0.1. 6month post RT Psa 0.1
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