PCa related stories from the past and some history..observational things

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zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/6/2010 8:16 AM (GMT -6)   
Here's one-  at one time maybe it was  around 2003 or so.  Bogus batches of Lupron got into some of the docs hands (they had no knowledge), patients injected with such apparently got a placebo effect  (no drop in T levels), somebody was making extra money in deception no doubt. Luckily the patients docs monitoring T level and or patient saying where is the side effects, lead to testings and later found phony Lupron batches..how it happened...who knows might be an inside job?
 
Don C. posted the one about the newbie brachy doc years ago now, that put a brachy seed into a patients seminal vessical, with complications...it did get removed.  (experienced??)
 
One guy on this forum a while back got apparently a newbie DaVinci doc, whom did not even remove all his prostate gland.   (yeah he thought he got it all-LOL???)  (experienced???)
 
Good story- friend in PCa I know of did Chemo as 1st protocol and then got brachy seeds, back around 2003...talked to him not to long ago and psa is still undetectable. That took some courage to do this protocol as primary treatment and bizarre that his doc mentioned it as a possible good protocol...results sure seem good and his quality of life it very good.
 
Good story- (Deja Vu) Rick K. (Michigan PCa patient from 1996)-Dx with psa 11.0 and 2 cores found with Gleason (2+3) back then, so say '6' now, no volumes known. Courage big time....ADT3 as chosen primary treatment..Leibowitz style protocol...13 months, then drop drugs except for proscar as a maintenance drug. His libido and manhood and all functions returned within months. He even had rebiopsies 2 times and nothing found in them, at different years too. He went 13 yrs. approx., until psa move upwards enough to question it all...he resumed 2nd round of ADT3 for 13 months as per Leibowitz protocol say may work more than once. I will call him soon for an update, I think he recently should have gotten off ADT3 again. Like to know his psa number thereafter. He has bought 14 yrs. without major invasive treatments and CAN STILL HAVE ANY TREATMENT option, surgery made more difficult of course.  How many docs mention this as a sane scenario for a lower or reasonable stats person??????  Manhood value_____? Continence___?  Now with Provenge and DCVax (trials), future vaccines look incredibly interesting and will only improve over time...how stupid does this protocol look now???
 
My fun story-DRE     So at my rad-onco-docs hospital and in the room on the reclining table thing and getting a DRE followup doc with glove on and inserted, in walks 3 interns all young people and one female to witness this fine event. The female when leaving says  'nice to meet you'....my reply was ...yeah!  Another DRE event, female rad-doc asks to do DRE on me and has to inform my wife to leave the room  (so who is embarr-assed more???) It wasn't me (LOL).
 
Anyone else have some so called urban legends to share, fun stories, ridiculous stories?
  tongue   
Youth is wasted on the Young-(W.C. Fields)

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25380
   Posted 8/6/2010 8:54 AM (GMT -6)   
Great stories there,

Wish I still had a way to contact that brother in SC like me, that had the prostate partially removed, then they blotched radiation on him too, and he was in the beginning stages of litigation. We use to phone back and forth, he lives about 200 miles from me in the other end of the state. He probaly had one of the rawest deals I have ever heard of. I will add, he lives in a very primative part of SC, and was with a hospital system (small) that had a lot of bad raps on it for years. The kind of place you wouldn't take your dog too, even if it got hit by a car. I hope that poor man has a fighting chance with his remaining PC

I had a surgeon, prior to PC, that did a few surgeries on me for my former cancer(s), he also doubled as the county corneror. Getting a DRE from him was a scary and painful event. He had huge hands and thick fingers, and I swear, he treated his living patients as if they were the dead from the other part of his job. When he had his fingers up your, it made the biopsy probe look like a tooth pick. W as so glad when I never had to see him again.
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
Open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin
Incontinence:  1 Month     ED:  Non issue at any point post surgery, no problem post SRT
Post Surgery  PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16
Post SRT PSA: 1/10 .12, 4/8 .04, next one: Aug 3
Latest:  7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped  9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4,  Caths #11 and #12 ,Cath #11 - 21 days,  Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19
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