One of the longest metastatic PCa cases...still going strong...Dr.______?

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zufus
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Date Joined Dec 2008
Total Posts : 3149
   Posted 8/11/2010 7:05 AM (GMT -6)   
At my PCa local specialized support group meeting (onco-doc does this on his own doings), he had a Michigan guest speaker Dr. Bob Ba...... (uro-doc...you can figure out the name if that matters).  He is a friend of Dr. Fred Lee the inventor of the cryo therapy technique, color doppler sonographer master in PCa analysis and long time PCa survivor himself.
 
HOW LONG?  I didn't know his complete story only parts of it. Dr. Lee is a 25 year survivor of metastatic PCa...I asked the doc to repeat that and said that many years with known mets all that time.  That would make him amongest the longest living mets patients, he is now 80 years old and performs his works 2 days a week still, still doing color doppler ultrasound.
 
 
A salute to a man whom has made a huge difference in PCa research, studies and as a patient.  Clone a few more like this and you may find your break throughs alot sooner, we need pioneer type docs, some are out there right now and we are watching you.
Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 8/12/2010 6:58:26 AM (GMT-6)


cooper360
Regular Member


Date Joined Jul 2010
Total Posts : 161
   Posted 8/11/2010 7:38 AM (GMT -6)   
I also salute Dr Fred Lee! My husband just had an appointment w/him last week, excellent doctor!!!!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/11/2010 10:38 AM (GMT -6)   
An amazing story to share, Bob. Hard to believe.
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin

Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16

Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, next test 11/10
Latest: 7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped 9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 ,Cath #11 - 21 days, Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19

Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3257
   Posted 8/11/2010 12:44 PM (GMT -6)   
wow I have a new hero. Sorry david david and bob.
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/12/2010 7:54 AM (GMT -6)   
Let's try this weblink:  (I also went to the top of this thread a fixed the weblink, need the http thingy added)

http://www.rochesterurology.urologydomain.com/images/uploaded/rochesterurology/drleestory.cfm
 
Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 8/12/2010 6:59:39 AM (GMT-6)


Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3892
   Posted 8/12/2010 6:14 PM (GMT -6)   
Show me Dr. Lees Gleason scores and PSA results and I will join his cheerleaders...He takes estrogen daily, was orchiectomy part of his treatment??

Perhaps his NEXT book should simply be titled "Side Effects"...

Post Edited (Fairwind) : 8/12/2010 5:21:33 PM (GMT-6)


zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/12/2010 6:25 PM (GMT -6)   
:-) how about a beer and a pizza?
Youth is wasted on the Young-(W.C. Fields)

Fairwind
Veteran Member


Date Joined Jul 2010
Total Posts : 3892
   Posted 8/12/2010 6:30 PM (GMT -6)   
Lets do it!!

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/12/2010 6:31 PM (GMT -6)   
I will spring for the Pizza
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin

Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16

Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, next test 11/10
Latest: 7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped 9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 ,Cath #11 - 21 days, Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19
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