How do you prefer to hear PSA news?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Kark60
Regular Member


Date Joined Jun 2008
Total Posts : 91
   Posted 8/11/2010 4:35 PM (GMT -6)   
I'm curious how people prefer to learn results of post PC treatment PSA tests? I absolutely HATE the waiting game with my heart jumping each time the phone rings. My uro's office sometimes e-mails me results, sometimes calls at various times of day the next day, and sometimes forgets to call so I call near the end of the second day. The uncertainty and anxiety drives me nuts!!

For the last two tests, I asked the nurse to mail my results so I can have some "control" over knowing when I will receive the news. That way, I know when I go to the mailbox, that is the time I will learn the results. If it doesn't happen one day, I at least have a structured time the next (or the next).

Any thoughts??
Husband and father of two (current ages 6 and 8). Age 47 when diagnosed (currently 49).
Pre-surgery PSA: 13.7 Pre-surgery Gleason: 4+3=7
CT Scan, Bone Scan, PET Scan: Clear
Laproscopic Surgery on May 28, 2008, at Barnes Hospital in St. Louis.
Right nerve bundle spared; left bundle removed.
POST-SURGERY PATH REPORT: Gleason: 4+3=7;10% of prostate with all quadrants involved; extraprostatic extension at left base and apex; extensive perineurual invasion present. Bladder neck, lymphvasular space, seminal vesicles, 17 examined lymph nodes, and all surgical margins FREE of tumor. T3a.
Four-week post-surgical PSA = 0.1; Seven-week post-surgical PSA = .01;October 2008 PSA = 0.0; January 2009 PSA = 0.0; April 2009 PSA = 0.0; July 2009 PSA = 0.0; October 2009 PSA = 0.0; January 2010 PSA= 0.0; April 2010 PSA =0.1 (anxiety starts); May 2010 PSA still = 0.1.

goodlife
Veteran Member


Date Joined May 2009
Total Posts : 2692
   Posted 8/11/2010 4:40 PM (GMT -6)   
I have mine drawn at the local hospital. Two days later I can got to the records office and get the official report from the lab.

When I see the doctor, I already know the results.

Works best for me.
Goodlife
 
Age 58, PSA 4.47 Biopsy - 2/12 cores , Gleason 4 + 5 = 9
Da Vinci, Cleveland Clinic  4/14/09   Nerves spared, but carved up a little.
0/23 lymph nodes involved  pT3a NO MX
Catheter and 2 stints in ureters for 2 weeks .
Neg Margins, bladder neck negative
Living the Good Life, cancer free  6 week PSA  <.03
3 month PSA <.01 (different lab)
5 month PSA <.03 (undetectable)
6 Month PSA <.01
1 pad a day, no progress on ED.  Trimix injection
No pads, 1/1/10,  9 month PSA < .01
1 year psa (364 days) .01
15 month PSA <.01

Galileo
Veteran Member


Date Joined Nov 2008
Total Posts : 697
   Posted 8/11/2010 4:48 PM (GMT -6)   
I call the radiation oncology nurse a few business days after the blood draw. Takes the drama out of the actual visit.
Galileo

Dx Feb 2006, PSA 9 @age 43
RRP Apr 2006 - Gleason 3+4, T2c, NX MX, pos margins
PSA 5/06 <0.1, 8/06 0.2, 12/06 0.6, 1/07 0.7.
Salvage radiation (IMRT) total dose 70.2 Gy, Jan-Mar 2007@ age 44
PSA 6/07 0.1, 9/07 and thereafter <0.1
pcabefore50.blogspot.com

Purgatory
Elite Member


Date Joined Oct 2008
Total Posts : 25393
   Posted 8/11/2010 4:49 PM (GMT -6)   
My results are called to my phone as soon as they are done (1-2 days), and that is followed up by a postcard in my mailbox for a hard copy.
Age: 58, 56 dx, PSA: 7/07 5.8, 7/08 12.3, 9/08 14.5, 10/08 16.3
3rd Biopsy: 9/08 - 7/7 Positive, 40-90% Cancer, Gleason 4+3
open RP: 11/08, Rht nerves saved, 4 days in hospt, on catheters for 63 days, 5th one out 1/09
Path Rpt: Gleason 3+4, pT2c, 42g, 20% cancer, 1 pos margin

Incontinence: 1 Month ED: Non issue at any point post surgery, no problem post SRT
Post Surgery PSA: 2/09 .05,5/09 .1, 6/09 .11. 8/09 .16

Post SRT PSA: 1/10 .12, 4/8 .04, 8/6 .06, next test 11/10
Latest: 7/9 cath #6 - 41 days, 8/9 2nd corr surgery, 8/9 cath #7 - 38 days, mapped 9/9, 10/1 - 3rd corr. surgery - SP cath, 10/5 - 11/27 IMRT SRT 39 sess/72 gys ,cath #8 33 days, Cath #9 35 days, Cath #10 43 days, 1/19 - Corr Surgery #4, Caths #11 and #12 ,Cath #11 - 21 days, Cath #12 - 41 days, 3/2- Corr Surgery #5, Cath #13 - 4 days, Cath #14- 27 days, Cath #15 - 26 days, Cath #16 - 31 days, Cath #17 - 39 days, 7/2 - Corr Surgery #6, Cath #18 - 13 days, Cath #19 - 17 days, Total Blockage, Cath # 20 - 7/19

Ed C. (Old67)
Veteran Member


Date Joined Jan 2009
Total Posts : 2461
   Posted 8/11/2010 4:53 PM (GMT -6)   
I call the doctor's office the day after the test and get the result. I always ask her to give me the exact result of the ultra sensitive test.
Age: 67 at Dx on 12/30/08
PSA 9/05 1.15; 8/06 1.45; 12/07 2.41; 8/08 3.9; 11/08 3.5 free PSA 11%
2 cores out of 12 were positive Gleason (4+4) and (4+5)
Negative CT scan and bone scan done on 1/16
Robotic surgery performed 2/9/09 Dr Fagin, Austin TX
Prostate weighed 57 grams size:5.2 x 5.0 x 4.9 cm
Posterior lateral lesions measuring 1.5 x 1.4 x 1.0 cm showing focal capsular penetration over a distance of 3mm in circumference.
Prostatic adenocarciroma accounts for approx. 10-20% of the hemisphere.
Gleason 4+4
both nerve bundles removed,
pT3a Nx Mx, Negative margins
seminal vesicles clean, lymph nodes: not dissected
continent after 5 months
2 months PSA test 4/7/09 result <0.1
5 months PSA test 7/9/09 result <0.1
8 months PSA test 10/9/09 result <0.1
11 months PSA test 1/21/10 result 0.004
14 months PSA test 4/19/10 result 0.005

LV-TX
Veteran Member


Date Joined Jul 2008
Total Posts : 966
   Posted 8/11/2010 5:06 PM (GMT -6)   
I always have my blood drawn on Monday and set up a time late Wednesday for me to call them. I have asked that they don't call me or my wife.

Silly reason, but if the PSA isn't what I expected...I want to be the one to tell my wife...not the doctor's office. I know my wife well enough and I know how to present any bad news to her. When the doctor call to tell me I had cancer from the biopsy, they couldn't reach me and so they called her instead. (Married guys know exactly where I am coming from. Never again!!!)

A Doctors office can't see the other persons reaction over a phone and know exactly what to say and when to say it.
You are beating back cancer, so hold your head up with dignity
 
Les
 
Age 58 at Diagnosis
Oct 2006 - PSA 2.6 - DRE Normal
May 2008 - PSA 4.6 - DRE Normal / TRUS normal
July 2008 - Biopsy 4 of 12 Positive 5 - 30% Involved Bilateral w/PNI - Gleason (3+3)6 Stage T1C
Robotic Surgery Sept 18, 2008
Pathology October 1, 2008 - Gleason 7 (3+4) Staged pT2c NO MX - Gland 50 cc
Seminal Vesicles and Lymph Nodes clear
Positive Margins Right Posterior Lobe
PSA 5 week Oct 2008 <.05
                   3 month Jan 2009     .06
                   6 month Apr 2009     .06
                   9 month Jul  2009     .08
                 12 month Oct 2009     .09 
                 18 month April 2010   .19

Sonny3
Veteran Member


Date Joined Aug 2009
Total Posts : 2448
   Posted 8/11/2010 5:13 PM (GMT -6)   
I go into the lab for the blood draw and receive the results the next morning via phone. One of the nice benefits of being able to deal with MD Anderson here for all my and my wife's issues, is that they have the labs on site and they don't mess around with getting it done. The next time I am personally there (at least once a week either for my wife or me), I pick up a printed copy of all of the results and add it to my file.

Sonny
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Stage: T3a
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy

2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -performed
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.
7/22/10 PSA test 1.3 - Begin radiation for MET on leg
8/9/10 - Met radiation completed

Post Edited (Sonny3) : 8/11/2010 4:33:09 PM (GMT-6)


BB_Fan
Veteran Member


Date Joined Jan 2010
Total Posts : 1011
   Posted 8/11/2010 5:31 PM (GMT -6)   
I have the lab send the report directly to me through the mail,
Dx with PC Dec 2008 at 56, PSA 3.4


Biopsy: T1c, Geason 7 (3+4) - 8 cores taken with 4 positive for PCa, 30% of all 4 cores.

Robotic Surgery March 2009 Hartford Hospital, Dr Wagner
Pathology Report: T2c, Geason 8, organ confined, negitive margins, lymph nodes negitive - tumor volume 9%
nerves spared, no negitive side effects of surgery

One night in hospital, back to work in 3 weeks

psa Jun 09 <.01
psa Oct 09 <.01
psa Jan 10 .07 re-test one week later .05
psa Mar 10 .28 re-test two weeks later .31
psa May 10 .50

April 10 MRI and Bone Scan show lesion on lower spine, false positive.

Started HT 5/25/10 with 3 month shot of Trelstar. SRT scheduled for late July

psa July 10 <.01 HT at work

alf203
Regular Member


Date Joined Jun 2010
Total Posts : 52
   Posted 8/11/2010 10:50 PM (GMT -6)   
HI,I ,go in the morning to have my blood drawn and  about three hours later the doc lets me know what the results are .
AL 49 Found in Feb 2009 PSA 118 Gleason score 5-4=9 cores 11-12-90% Stage T4m Cat Scan -mri -Bone scan/ show caner has spread to spine/lung/liver. Treatmen; casadex + trellstar 3 months PSA droped to .054- pulled off casadex liver not handling med. PSA rose to 7.43 in three month next 2 months PSA 11.65 started lupron/and new drug tak700 PSA 5.46 PSA now 3.48 3/10 4/10 psa 3.34 5/10 psa 3.23 6/10 psa 3.36 drug starting to fail wait till next month to see if still going up
7/10 psa 4.10 it's on the way up again, gathering steam

compiler
Veteran Member


Date Joined Nov 2009
Total Posts : 7270
   Posted 8/11/2010 11:32 PM (GMT -6)   
I actually have a friend who is a doctor in town. I have the results sent to him (as well as my Ford doctor, family physician, and urologist). He will email the results to me the next day.
 
Mel

63 years old . PSA-- 3/08--2.90; 8/09--4.01; 11/09--4.19 (Free PSA 24%),  after 45 days on cipro! DREs have always been normal. PCA-3 was about 75 (way above the 35 threshold). That led to:

Biopsy on 11/30/09. 5 out of 12 cores positive. Gleason 4+3. 2 cores were 3+3 (one 5% and the other 30%) on one side. On  other side:2 cores are 4+3 (5%)--1 core 3+4 (30%) no peri-neural invasion. prostate is 45 grams. Stage: T1C.  

Surgery with Dr. Menon at Ford Hospital, 1/26/10. He says all looked good. Spared nerves. Unfortunately: Pathology Report: G 4+3 (65%-35%). Cancer in 15% of gland. Lymph Nodes: Clear.  Perineural Invasion: yes. Seminal Vessical Involvement: No.  Extraprostatic Extension: yes.  Positive Margin: Yes-- focal-- 1 spot .5mm. Final Weight is 52.7 gms.  (Second opinion from Jon Epstein at Hopkins confirmed these results)

 Incontinence: joined that club-- definite leaks—1 pad/day. Night is dry, was  using 1 pad at night for security, but pretty much dispensed with that most nights. Update: no pads at night. No pads while at home, but still very uncomfortable. Use 1 pad for out-of-house activities. Suddenly got MUCH better on 3/10/10, almost overnight. Still some urgency but no pads about 90% of the time.  As of 3/12/10--completely continent! Uh...OH. As of about 3/16/10 problems with constant urgency although no pads needed--feels like an infection but none showing in urine.

Update: since late March all is well in that area. I would say 99.9% continent (a spurt here and there, maybe 5 spurts per week). As of 6/22/10, I would say I am 100% continent, but I do have (controllable) significant urgency.

First post-op PSA on 3/10/10--DRUM ROLL: 0.01 Next PSA in mid-June.

Second post-op PSA on 6/21/10--0.02--Not too bad!


Worried Guy
Veteran Member


Date Joined Jul 2009
Total Posts : 3742
   Posted 8/12/2010 4:39 AM (GMT -6)   
I ask the person writing the order to put my name in one of the "Send results to " boxes.
The report comes in the mail a couple of days later.
Jeff

Steve n Dallas
Veteran Member


Date Joined Mar 2008
Total Posts : 4849
   Posted 8/12/2010 6:10 AM (GMT -6)   
I get blood drawn a WEEK before a meeting with the Surgeon and get the results then. Piece of cake and nerves of steel yeah
Age 55   - 5'11"   215lbs
Overall Heath Condition - Good
PSA - July 2007 & Jan 2008 -> 1.3
Biopsy - 03/04/08 -> Gleason 6 
06/25/08 - Da Vinci robotic laparoscopy
05/14/09  - 4th Quarter PSA -> less then .01
11/20/09 - 18 Month PSA -> less then .01
05/18/10 - 24 Month PSA -> less then .01
Surgeon - Keith A. Waguespack, M.D.


rob2
Veteran Member


Date Joined Apr 2008
Total Posts : 1132
   Posted 8/12/2010 6:21 AM (GMT -6)   
I get the results the within an hour of the blood being drawn. I have the blood drawn before I see the doctor and he gives me the news during my office visit.
 
Age 48 at diagnosis
occupation accountant
PSA increased from 2.6 to 3.5 in one year
biopsy march 2008 - cancer present gleason 7
Robotic Surgery May 9, 2008 - houston, tx
Pathology report -gleason 8, clear margins
22 month  PSA <.04
continent at 10 weeks (no pads!)
ED is still an issue

fertree
Regular Member


Date Joined Jun 2010
Total Posts : 118
   Posted 8/12/2010 2:48 PM (GMT -6)   
My lab has an online service where they claim to post the results as soon as available. I've only had 1 test, but the results were there when I checked the next day. My uro called me that evening, but I already had the results.
PSA 2.1 on Avodart
Biopsy: 1 of 12 cores positive >5%, Gleason 8
open RP: 05/10/2010 Dr. Gary Steinhoff, Victoria BC
Pathology: pT2c Gleason 3 (80%) 4(20%)=7, no lymph invasion, no extraprostatic extension, negative margins, tumor 5% of tissue.
Nerve bundles removed (based on original Gleason 8)
Incontenence: 6+pads for 9 weeks, dropped to 3 pads in 1 day.
First PSA >.01
Urethral Stricture requiring additional surgery Aug 20 (darn! If I'd known I was 80% Gleason 3 I could have gone for the robot, saved the nerve bundles and bypassed the stricture issue! In my next life, I'm having that biopsy sample checked twice!)

SHU93
Regular Member


Date Joined Aug 2008
Total Posts : 328
   Posted 8/12/2010 2:57 PM (GMT -6)   
I get the blood drawn a week before, then I have to wait a week to get results from Doc.  The worse part is my urlogist office is sooooo busy where last time I sat for two hours before I saw him. He came in last time and said I have an urgent problem will see u in a bit. My heart is pumping!!!  I like my Doc alot but it is tough. During a benefit dinner his office had he did mention that he thanked the patients for being patient with him and his office where he spends alot of time with the patients that need it which I totally understand! I wish I got an email.......
Age Dx 37, 7/2008, First PSA : 4.17 5/2008
Second PSA After 2 weeks of antibiotics : 3.9 6/2008
DRE: Negative 5/2008, Biopsy: 6 out 12 Postive all on right side, Gleason 7 (3+4). Bone Scan/CAT Scan: Clear 7/2008
Cystoscope: Normal 7/2008, Prostate MRI: Normal 7/2008
Da Vinci Surgery 7/2008, PostOp: T2c (On Both sides), margins clear, seminal clear, nodes, clear. Gleason 6(3+3).
6 Post OP PSA's from 9/2008 to 6/2010: <0.1
 
 
 

coxjajb
Regular Member


Date Joined Nov 2008
Total Posts : 184
   Posted 8/12/2010 6:22 PM (GMT -6)   
My doctor communicates PSA results via US mail if the news is good and delivers bad news via the phone.
Age 51 @ DX
Pre - Op PSA, 4.3
Gleason 3+4=7
Stage T1C
da Vinci Prostatectomy 8/1/08
No issues with incontinence since day 1 after catheter removal
Mild ED for about 10 months. Levitra worked well for me. No ED at one year.
PSA 0.00 at 18 month post op

Ralph Alfalfa
Regular Member


Date Joined Nov 2008
Total Posts : 469
   Posted 8/12/2010 7:23 PM (GMT -6)   
I have my blood drawn locally, about 2 minutes away, and have the Uro's. nurse have them fax me the results, as well as to the Dr.'s office. I know the results when I see the doc a week later.

Bob
 AGE:58
 Dx: October,27, 2008(the day after my birthday)
 Psa 14.5
 Gleason:(4+3) 7 T2c
 Bone scan:Negative
 Cat scan: Negative
 Biopsy: 4 of 12 positive
 Confined to prostate.
 DaVinci Jan. 19th, 2009. No lymph node involvement, all margins clear.
 8 week PSa <0.01
 Gleason downgraded to (3+4)7
 6 month Psa , 0.1 
 9 month Psa,  0.2  Doubled! Criminy!
 Started RT 10/28...one year since diagnosis.  RT over 12/22.
 3 month post RT Psa 0.1. 6month post RT Psa 0.1

DS Can
Regular Member


Date Joined May 2009
Total Posts : 195
   Posted 8/12/2010 10:07 PM (GMT -6)   
I have the results at HMO's online MyChart the next day.
Haven't seen the need to spend another $30 copay for the uro visit.
PSA Jan'07:1.2,  Jan'08:1.9,  Jan'09:2.5
BIOPSY Feb'09  PCa DX, age 52
Right: 3+3=6, 3/6 cores 10% involved,PNI-Y
Left:  3+3=6, 1/7 cores <5% involved,PNI-N
LARP April 9,2009 nerve sparing. Final pathology:
GS 3+4=7, Margins uninvolved, 2 lymph nodes negative
Catheter 8 days, Last pad May 2,2009
latest PSA: April 8,2010 <0.1
 
 

142
Forum Moderator


Date Joined Jan 2010
Total Posts : 7084
   Posted 8/14/2010 12:28 PM (GMT -6)   
My Ins. co. requires a specific lab, so my GP's bloodwork has to be sent off. It is usually 4-5 days for a response. If it is "normal", the sr. nurse calls, and since I see her often and feel like she is very good, I trust that she explains things well. If bad, the Dr. calls.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 6:37 AM (GMT -6)
There are a total of 3,005,641 posts in 329,246 threads.
View Active Threads


Who's Online
This forum has 161792 registered members. Please welcome our newest member, hanry.
248 Guest(s), 2 Registered Member(s) are currently online.  Details
hanry, Old Mike