Much of my journey to date has been well documented here, so just a little recap for the newer folks.
This has all transpired since June 2009. Just a little over a year ago this thing started.
Had da Vinci, didn't get it all.
Went through 35 IMRT treatments, PSA tests indicate there is something still there.
Test found MET on my leg at the hip joint, just completed MET radiation. PSA test just before radiation was 1.30.
So we begin the next phase and see where it leads.
At the suggestion of some of my learned brothers here I have requested that my Onco have a Ploidy DNA test run on my prostate biopsy block. Research indicates that one of strengths of this test is to identify the normalcy or complete weirdness of my particular cancer. This will hopefully tell the docs whether my cancer would respond well to HT or other therapies. Not that I am in any hurry to begin HT and really don't know if I can (personal choice) or not.
I have a meeting with my Onco next week and if the test is completed in time we'll discuss it. If the test is not done they will re-schedule the meeting as there isn't much to talk about
until it is, as far as I am concerned.
In the meantime as a part of this phase I am beginning some new programs as part of my living with PCa. I have recently posted about
fatigue, muscle loss, weight loss, mood swings and generally just feeling like carp all the way around. MD Anderson has a complete program they call "Mind, Body and Spirit" as part of treating cancer patients and their families. I am going to avail myself to this program.
I have a meeting scheduled next week with a nutritionist to discuss foods and diet that can help not only my well-being, but my fight with PCa as well. Sure made the wife happy with this one. She has been on my butt about
"healthy" eating for a while now.
I have meeting scheduled with a therapist that deals with Oncology rehab to discuss work out programs and other physical stuff.
Yesterday I had a great meeting with the Mental Health Counselor. She took extra time with me and was in no rush. I guess she realized that there was a whole bunch of stuff I needed to say out loud. We discussed my cancer, my wife's cancer, my role as patient, as care-giver to my wife and lately my growing role as caregiver to my wife's father who is suffering from severe Parkinson's. Her mother (80 years old) has been doing it all on her own and it is beginning to take it's toll on her. The ability of Lynn to lend a hand is limited because of her own issues.
Don't want to get all mushy here and go into great detail, but there is one point of the conversation that I feel I must share with you my friends.
Being very honest with you, there were a number of times during this conversation when I teared up and had to regain my composure before continuing.
The first time and most profound time for me was during the part of our conversation where we were discussing all of these various roles and the energy and time required to deal with both.
The Counselor looked at me and said "Who is your SUPPORT SYSTEM"?
It was here I really teared up, my response was immediate, "My BROTHERS AND SISTERS of the Prostate Cancer Forum at Healingwell.com".
While I was silent for a while, she went on to tell me that she was personally familiar with Healing Well. She visits the site often to learn more about how folks are handling different things and has many times referred people to HW.
Not having any family other than my wife's (who rightfully spend their energies on Lynn, her mom and dad), I feel HW is my family, my support, my rock and the place I can always go to when I need to talk and air it out.
So once again, thank you my brothers and sisters for being here for me. It is not just trivial conversation when I say over and over to you folks, "this is not a journey I could have made without your support."
Okay, enough of the mushy stuff. I will of course keep you filled in on the results of this new test and the Onco meeting. And of course if I grow new muscles, get ripped, and begin to look really good for a 61 year old (til August 17th), I will find a way to post pictures and show off my new 4 pack. Hey gotta set achievable goals in the beginning. If I get the 4 pack, I will move on in trying to get the 6 or 8.
Thanks guys. It's a long post I know, but it was one I felt that had to be shared,
Bless you all for the time and energy you spend here,
60 years old when diagnosed
PSA 11/07 3.0
PSA 5/09 6.4
da Vinci 9/17/09
Post Surgery Pathology: GS 4+3=7
Tumor Volume 12.5%
positive margin, extra-prostatic extension
30 day PSA 0.4, 50 day psa 0.53, 64 day psa 0.6
IMRT completed 1/15/10 35 treatments- 70Gy
2/24/10 FIRST POST RAD PSA 1.0---CARRRP --waiting for the next test.
3/22/10 Second Post RAD PSA 1.5 Dammmmnnn stubborn son of a gun
4/19/10 YAHOO PSA dropped to 1.2 Moving in the right direction.
5/7/10 PSA test 1.3 Sodium Fluoride PET Scan & CT SCAN -performed
5/20/10 PSA test 1.2 Holding off on future tests for 3 months- single lytic lesion found and scheduling radiation.
7/22/10 PSA test 1.3 - Begin radiation for MET on leg
8/9/10 - Met radiation completed
Post Edited (Sonny3) : 8/11/2010 4:06:02 PM (GMT-6)