oops my bad-Question for Zufus

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Todd1963
Veteran Member


Date Joined Oct 2008
Total Posts : 3257
   Posted 8/12/2010 4:50 PM (GMT -6)   
Bob I was wondering if the des had the same sexual repression side effects as lupron. I want to keep on desiring my sweet wife. Could you please elaborate. Thank you so much
dx:06/03/06
Age at dx: 42 age now 45
Treated for sciatic nerve pain 6 months prior to dx.
Heavy amount of blood in urine Unable to urinate 
Lung x-ray for pnumonia revealed multiple lesions in each lung
P.S.A. at time of dx. 3216.14
Began lupron and casodex
Cat scan showed large mass in the pelvic area affecting the bladder multiple nodules in both lungs and lymph node envolvement.
Bone scan revealed possible bone involvment in the pelvic area
Biopsy 12 of 12 cores positive gleason 3+4=7
P.S.A.s since lupron 2946, 1274, 532, 5.01 1.23, .09
Begining jan 08 psa .o9, .25, .44, .86, .73, 1.34, 1.49. Doubling time is a little over 3 months
Cat Scan 12/12/08 Prostate normal size and shape. No tumors detected. Left lung clear of all nodules right lung showing only benign scar tissue. Lymph nodes normal
Bone Scan 12/24/08. Clean!!! went off casodex January 4 2009
Current psa 2/13/09 .16
Latest P.S.A. 0.05 newest P.S.A. undetectable

zufus
Veteran Member


Date Joined Dec 2008
Total Posts : 3149
   Posted 8/12/2010 5:20 PM (GMT -6)   
Yeah you said you just wanted to love your wife, I guess in biblical sense and as an action verb, I understand. Well first off I did 2 yrs. of ADT3 and unique radiations before switching to DES....in effect the flag was at half staff and didn't wave to good even in breeze, although I never tried tri-mix and was not diligent about e.d. meds, tried them a little and did some improvement but not enough to click my heels...ya know what I'm sayin! (so I didn't have the luxury of the flight testing-LOL)

So, I cannot answer in perfection, but probably in the beginning of it yes, should work normal for awhile, eventually your T levels gets to near zero and there goes your hero I will presume along with that. But, tri-mix or drugs who knows, alot of guys herein know that area and I don't. Maybe they can stimulate some conversation on such and rise to the occassion (LOL).

I doubt your doc will endorse using it, but you never know. You might point to doctor Lee's long term success, it is another estrogenic drug.

You might have to sacrifice when going on PCa treatments, so that is a heads up.
Youth is wasted on the Young-(W.C. Fields)

Post Edited (zufus) : 8/12/2010 4:25:03 PM (GMT-6)


Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/12/2010 7:10 PM (GMT -6)   
This doctor might:

Stephen B. Strum, MD, PC
628 N. Main Street
Ashland, OR97520

Phone: (541) 201-0219
Fax: (503) 501-4993

Ashland is about a two hour drive for you, Todd. I wouldn't be surprised if he told you to do a local radiation, something you have not done as yet. And you also know about Mr Z's use of radiation to pre-empt breast growth. I'll let him take it from here...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/12/2010 7:34 PM (GMT -6)   
I just got off the phone with them. They are not taking new cases but after a little persuasion they are asking Dr. Strum if he would at least talk to the president of an UsTOO chapter.

If not I know I can get Vogelzang to see you but you have to bring Amanda so Ruth has someone to hang with...

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino

Tony Crispino
Veteran Member


Date Joined Dec 2006
Total Posts : 8128
   Posted 8/12/2010 7:58 PM (GMT -6)   
Well OK, never mind.

Stephen Strum is retired and will not take any new cases...

Vogelzang will take your case...Luckily it's a cheap flight to Las Vegas right now.

Tony
Disease:
Advanced Prostate Cancer at age 44 (I am 48 now)
pT3b,N0,Mx (original PSA was 19.8) EPE, PM, SVI. Gleason 4+3=7

Treatments:
RALP ~ 2/17/2007 at the City of Hope near Los Angeles.
Adjuvant Radiation Therapy ~ IMRT Completed 8/07
Adjuvant Hormone Therapy ~ 28 months on Casodex and Lupron.

Status:
"I beat up this disease and took its lunch money! I am in remission."
I am currently not being treated, but I do have regular oncology visits.
I am the president of an UsTOO chapter in Las Vegas

Blog : www.caringbridge.org/visit/tonycrispino
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